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jcmom posted a topic in Tourette Syndrome and TicsI am constantly searching for the right type of magnesium for my 4yo. He has a few tics - eye blinking being the worst. We have been dairy free for 1 week (only avoiding milk, yogurt and cheese, not avoiding cooked dairy) and we have also been giving my son 1/4 serving of this supplement once a day with dinner: http://www.lifeextension.com/Vitamins-Supplements/item01602/Neuro-Mag-Magnesium-L-Threonate-with-Calcium-and-Vitamin-D3 Has anyone else tried this? It has 2 grams of Magtein in it which is a form of L-Threonate I think? I think Magtein might be the best form of magnesium for my son as it is supposedly highly absorbable. After 1 week of this daily supplement (only 1/4 dose) and dairy-free, we have seen a marked improvement in my son's tics. He has very long periods with no tics at all - 30min to 1 hr. But then he will have "spells" of blinking and winking. Hoping the long periods without tics just continue to get longer! I am not sure if the dairy free diet or if this supplement is the reason for his improvement.
Is Magnesium Deficiency the Cause of Tics?
jcmom posted a topic in Tourette Syndrome and TicsMy son was diagnosed with transient tic disorder around his 4 yo birthday. He repetitively clears his throat, sniffs, and blinks his eyes funny. I have had him allergy tested and found no environmental allergies and just a few food intolerances - none of which were severe. He is moderately allergic to nuts and wheat. He does not eat nuts and we are working on getting wheat out of his diet which is very difficult! He has a short list of foods that he is mildly allergic to and I have not even begun to eliminate those from his diet yet. I treated his first bout of tics (he's had two now) with Natural Calm. It took 3 months, but the tics did finally disappear only to return 3 months later. My question is - are we just treating the symptoms of tics with eliminating allergens and providing magnesium supplementation? What is the root cause of the tics? Could the root cause be that our kids are deficient in magnesium because there is something going on in their bodies that prevent them from absorbing magnesium correctly?
Magnesium from Natural Foods vs. Supplements
fluxvi0lin posted a topic in Tourette Syndrome and TicsHi, I'm glad I found this forum, seems like a very resourceful forum, so I'm hoping that I can get my questions answered. A bit about myself - I'm a 39 year-old male, diagnosed with TS around 7-8 years old. I have taken meds like haldol and catapress (sp?) and both turned me into a vegetable, as I kept falling asleep, and couldn't focus too well. Since about 11, I stopped taking meds altogether, and my symptoms have been a bit of roller coaster ever since. My main symptoms are facial tics, muscle tensing in the neck and shoulders, forced breathing, and repeating words and/or actions until I 'get it right'. At times, it can be taxing to the body, as i feel muscle aches and pains. I do try and stay active and try to workout on a consistent basis, as well as maintain a healthy-ish diet, which helps. I have been reading a ton of articles about magnesium and b complex to be main supplements to possible assist in reducing TS symptoms. I talked to my doctor about trying supplements, and he told me that it sholdn't be a problem. He recommended that I take between 400-420 mg of magnesium, coupled with a b complex bill for a couple of months and see how I react to that. I also take 5000 IUs of vitamin D3, since i hvae a deficiency there as well. So with that info, I then found that there are different types of magnesium that are better absorbed by the body. Based on several forums and articles, it seems as though magnesium glycinate is a good choice for tourettes. I also discovered that magnesium is easily attainable through natural foods (leafy greens, nuts, seeds), and shouldn't be too hard to reach the recommended 400-420 mg per day. So my question is, is it better to just get your dose from natural foods, or better from the supplement? Also, would it be feasible if i switched it up between natural foods some days and supplement on others? Sorry for all the babble, any thoughts, adivce or recommendations are greatly appreciated. Thanks for the help!
Tics and pain
Anne_Linn posted a topic in Tourette Syndrome and TicsI am so glad I found this forum. I hope someone can help me with my quiestions. My 7 yrs old son has tics. They started as blinking when he was in kindergarden. Then they stoped for a while and came back when he started school. We hoped they would go away again, but the opposite happened. He now has other tics. He opens his mouth a lot, nearly all of the time. He rises his eye-brown, does someting with his head/neck and he makes an r-sound. We are trying to be gluten and milk-free, not using artificial colouring etc. He takes vitamines, specially magnesium etc. It doesen`t seem to help. Not so far. We are waiting for appointment with a doctor. But these last weeks he has been complaining about pain in his mouth, neck and upper back. This pain is really troubling him. I ask him if it`s real pain or if it`s just that he feels uncomfortable. He says it`s pain. It makes him angry and easily irritated. We have almost stopped doing homework because it`s to hard for him. It may be he find it hard to explain exactly what he is feeling. But is it normal to have pain because of tics? Is pain normal for people with Tourette? I wil be thankfull for any advice and answere to my question. Anne Linn
Daily Persistant Headache with Allodynia
Rachel posted a topic in PANS / PANDAS (Lyme included)My son has had a daily persistant headache since January 2011. A headache specialist diagnosed this several years ago. There was a 3 month time period when my son's headache was totally gone and his allodynia was almost gone. My son was on 1000mg of magnesium and high dosages of B vitamins. During this 3 month period (October -December 2012), he was also able to stand and walk for about 10 minutes before his walking tremor would start. At this time, his cardiologist thought the medications for POTS were kicking in and that my son was on his way back to a normal functioning life. However, flu, strep, mycoplasma infections, and ear infections sent him spiraling downhill in 2013. It was not until later that year, that an immunologist ran testing that indicated my son had past strep and mycoplasma infections without showing symptoms or fevers. It's hard to treat infections when child will not spike a fever and the doctor wants to only run rapid strep test. I always request a culture test now and refuse antibiotics until proven positive. The Cunningham test was also ran in August 2013 and October 2013. The first time results indicated unlikly but the symptoms my son was having could not be denied by anyone. Keep in mind my sons symptoms did not happen over night but kept getting worse after infections since December 2010. In October 2013, my son had a double ear infection and his symptoms went through the roof. He was also on an antibiotics for his ear infection. The Cunningham Panel was ran again and showed Highly Likely, My sons D1,Tublin, and Cam Kinese was very high. Another important test that my son had was a neurotransmitter test that showed high glutamate and norephrinphrine levels So what does all this have to do with a Daily Persistant Headache/allodynia and POTS. The antibodies measured on the Cunningham Panel affect the human nervous system. Cam Kinese seems to be a major player because it affects glutamate, NMDAR receptors, and the heart organ. About a month ago, my son was started on Nemenda to see if it would help with his headache and pain levels. Instead of his headache level at an 8, it has dropped down to a 7. So our doctor has called in the higher dosage that was used in a study. Through research I have also learned that Magnesium and NAC help regulate Glutamate and the NMDAR receptors. Here are some articles that have been helpful in figuring some of this out. Maybe these articles can be of help to someone else. BTW the best test for magnesium is the RBC magnesiunm test. It's very accurate and can be order without a doctor's order. Here are the articles. http://news.vanderbilt.edu/2013/10/magnesium-impacts-vitamin-d-status/ http://www.biomedcentral.com/content/pdf/1741-7015-11-187.pdf http://www.nature.com/ejcn/journal/v57/n10/full/1601689a.html http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3318689/ http://pharmrev.aspetjournals.org/content/63/1/35.full http://toxsci.oxfordjournals.org/content/68/1/9.full http://www.psychiatryadvisor.com/magnesium-an-essential-supplement-for-psychiatric-patients/article/362253/ http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3044191/ http://www.jneurosci.org/content/26/17/4690.full http://gotmag.org/how-to-restore-magnesium/ http://gotmag.org/vitamin-d-deficiency-mg-deficiency-period/ http://www.rsds.org/pdfsall/Sinis_Birbaumer_Gustin.pdf
Natural Calm/Kids Calm - advice please
JaneFBH posted a topic in Tourette Syndrome and TicsI am really needing some advice specific to my DD situation. 12-year old about 85 pounds. TS with eye blinking, facial grimaces and vocal tongue-clicking tics. Started about a week ago on Kids Calm and Elderberry as a result of success stories seen on this forum. Also bought Natural Calm because KidsCalm is only 240 mg of Magnesium and Natural Calm (for adults) is 325. My thinking is that she is almost adult sized I would add 1 tsp of Natural Calm to Kids Calm to up the magnesium. Also bought Taurine which I am planning to add to the mix today. After almost a week I do see a slight improvement. Here's my questions - Do you think my plan is a good one for her weight and age? Can I give her more in a day? Have seen that it's OK to give more per day until you see that the stools are getting too loose. I am totally willing to try that but not sure if it is safe. Does anyone else have experience with Elderberry? Wondering if this is helping. Started both Kids Calm and Elderberry at same time. We have autoimmune issues so I thought it would help. Any thoughts on the Taurine? Does not seem to be included in KC or NC, yet I read it is important to properly absorb the Magnesium. Also had her on Nordic Naturals Omega 3 but stopped because Omega 3 is in the Kids Calm. Seeing a nutritionist this week, but wanted to get perspective from this forum too. Any advice would be greatly appreciated! Thank you all and thank you for this excellent, life-saving forum.