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Showing results for tags 'IVIG Protocol'.
Found 3 results
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Can anyone speak to their experience with having a child who carries both a diagnosis of CVID and PANS? I am wondering (hoping?) that my 12 y/o son's PANS symptoms will improve and stay better now that we have discovered that his hypogam is actually part of CVID, but I can't find any information out there on how monthly IVIg for CVID manages PANS symptoms. I am freaked out that my needle phobic kid will have to receive monthly IVIg for the rest of his life, but if it means that he can actually get better, have some quality of life, and have periods of remission, then we have to do it. I just
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How long (days, weeks) did you continue Benadryl, Tylenol or Ibuprofen post IVIG? (Apologies, I got tired of searching all the way back on forum to 2012 and didn't want to bump and old post.) Thanks! ~Tracy
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How many IVIG you do with your PANDAS child? What protocol was used? What was the outcome? Thanks for the input.
