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Found 9 results

  1. My son started with an eye twitch at about 2 years old. Went away on its own. He is no 5 and getting ready for kindegarten. Since about Feb/March of this year, he has started eye twitching again and neck rolling. (chin to neck and roll) It gets really bad when he eats or plays. We saw a neurologist who said it was due to stress/anxiety. He is very anxious and has some OCD traits. He was on Miralax for a long time and we have since cut that out, about 6-8 weeks ago. Havent really seen any improvement. He also lacks coping skills and has meltdowns when something doesnt go right. Read
  2. This is my first post and i rly need help so plz answer if you can:) I apologize for the sexual content... I have a tic syndrome characterized by a bunch of complex motor tics. These usually get worse at night or when i am alone. I am currently taking no treatment or medication for this because i believe i can manage to live with it (I also have ocd, add and posibly ptsd) However there is one thing that really bothers me and I'm not sure if its a tic or some sort of sexual dysfunction. What happens is this: countless times a day at home, outside, at night, in the day i feel an urge to
  3. I need this groups help on a topic I feel like autism and PANS may be one in the same ,,,, I have heard of other doctors thinking this too that classic PANS is an occurrence after age three, & my sons situation is before he was three with his tick bite when he was a baby.my son is now almost 4 & has a twin with typical chattery development..... We are doing oral human gamagobulin for 2 months and starting our 3rd month we now have good speech but very little desire to be social or use language in a back fourth receptive way, very little desire to socialize with his brother. We had
  4. Dan had a positive lyme test (I think) It says positive :5 of the following Borrelia -specific bands:18,23,28,30,39,41,45,58,66,and 93 Then it says under that Negative No bands or banding patterns which do not meet the criteria What does this mean???
  5. My doctor wants us to try Oral IG. It is the IVIG used but not with needles, We are told to give him a childs does of Pepsid to stop stomach acid and the oral amount is small & given every other day for many months. It is expensive $600. a month and I am fully aware of that. Background: My son is 3.5yrs old, and is in & out of being with us.He has some OCD, it used to be EXTREME. He talks some but not conversationally. He did 20 days of Cefdinir 2 different times. On both occasions he did speak conversationally. And permanently lost some of his worst OCD & separation anxiety s
  6. Hello everyone, I will be brief so you can read me without get bored. I am 22 years old, had been with OCD and motor tics from 8 years old approximately, this tics are all about crushing joints and jaw clenching (my social hidden tic) I live in a shitty comunist country, I am sure I know more about tics that doctors here I don't want to get drugs, I am convinced to fight this from a comprehensive way Supplements will be one of this ¿could you people help me with main and basics must I take? ( I will buy each one for separately because my country condition ) Thanks for all,
  7. I don’t post very much because when my twins are home from pre-school the minute I open the iPads they both grab one & jump on ABC Mouse. Background: my son is 3.5 years old he has had PDD-NOS since he was 18months maybe longer. He has a twin brother & they were initially both verbal at 16 months then one progressed verbally & social and the other had terrible diarrhea & stomach problems for many months & he then did not progress, he actually regressed for a year. I see a DAN that was in California but is now in Florida & my son is on Methyl B-12 injections, DMG, Dig
  8. This, too, is slightly off-topic. But as I thought many of us could relate to Randi's plight, I would post it here in the hope that we could perhaps lend her a hand. Why do insurance companies think it is morally or ethically acceptable to deny people care for which their premiums have effectively "prepaid" and/or which are deemed medically necessary by the professional caregivers?!?! Randi's right; it is unconscionable. Thanks! https://www.change.org/petitions/patricia-hemingway-hall-approve-randi-s-blood-plasma-immunoglobulin-treatments-ivig-scig?alert_id=oQQBbzvpKt_ErIeifmA
  9. My son is 19 years old. He was diagnosed with PDD-NOS at a young age and we're just looking for advice now. He is very intelligent academically, and is now attending college, but his uncle has a very similar diagnosis and he is 53 and still lives with his mother and we just don't want this for him. We really want to help him be independent. One of the biggest issues is that he really struggles to think outside of the context of himself. When he is upset, he claims himself as the victim. When there is a conversation, he turns it back to himself (ex: if we're talking about the British royal fami
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