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Found 9 results

  1. My son started with an eye twitch at about 2 years old. Went away on its own. He is no 5 and getting ready for kindegarten. Since about Feb/March of this year, he has started eye twitching again and neck rolling. (chin to neck and roll) It gets really bad when he eats or plays. We saw a neurologist who said it was due to stress/anxiety. He is very anxious and has some OCD traits. He was on Miralax for a long time and we have since cut that out, about 6-8 weeks ago. Havent really seen any improvement. He also lacks coping skills and has meltdowns when something doesnt go right. Reading book natural treatments for tics and tourettets. Anyone else been through this.... we just dont know what steps to take first. Thanks Katie
  2. This is my first post and i rly need help so plz answer if you can:) I apologize for the sexual content... I have a tic syndrome characterized by a bunch of complex motor tics. These usually get worse at night or when i am alone. I am currently taking no treatment or medication for this because i believe i can manage to live with it (I also have ocd, add and posibly ptsd) However there is one thing that really bothers me and I'm not sure if its a tic or some sort of sexual dysfunction. What happens is this: countless times a day at home, outside, at night, in the day i feel an urge to clench or move my vaginal muscles. It is a little similar to having a split second orgasm but it is NOT VOLUNTARY AND NOT CAUSED BY ACTUAL AROUSAL it's just sort of like I have to do it and I hate it. It's like having zero control over my body and worse over my sexual experience. Usually it follows or is followed by a lot of my other motor tics, especially those in my legs and feet. It feels exactly like a tic does--the urge and the helplessness to stop. Does anyone know anything about this???? When I actually am sexually active in a normal voluntary way it calms the tics down for a little, but it always comes back after some time. I end up twitching in my seat, which looks like the tic is in my whole body but its only because of the movement down there.... Please please someone help me !!! Thank you
  3. I need this groups help on a topic I feel like autism and PANS may be one in the same ,,,, I have heard of other doctors thinking this too that classic PANS is an occurrence after age three, & my sons situation is before he was three with his tick bite when he was a baby.my son is now almost 4 & has a twin with typical chattery development..... We are doing oral human gamagobulin for 2 months and starting our 3rd month we now have good speech but very little desire to be social or use language in a back fourth receptive way, very little desire to socialize with his brother. We had a process of getting rid of candida overgrowth and use probiotics & Nystatin to keep it away. The funny thing is I was holding a friend of mine's little girl at a birthday party on Saturday & at 11 months of age she was attempting to have a conversation with me, it showed me something I had NOT thought about in a while, which is ....just how young the human desire to communicate can be My question is: Now trying to move forward to get receptive language and socialization, has anyone tried oxytocin or Respen-a? We will continue the oral hg , but I am just trying to see what others have done in this situation, thinking of the future. Thanks
  4. Dan had a positive lyme test (I think) It says positive :5 of the following Borrelia -specific bands:18,23,28,30,39,41,45,58,66,and 93 Then it says under that Negative No bands or banding patterns which do not meet the criteria What does this mean???
  5. My doctor wants us to try Oral IG. It is the IVIG used but not with needles, We are told to give him a childs does of Pepsid to stop stomach acid and the oral amount is small & given every other day for many months. It is expensive $600. a month and I am fully aware of that. Background: My son is 3.5yrs old, and is in & out of being with us.He has some OCD, it used to be EXTREME. He talks some but not conversationally. He did 20 days of Cefdinir 2 different times. On both occasions he did speak conversationally. And permanently lost some of his worst OCD & separation anxiety symptoms. It was amazing!!! So his conversational speech & socialness did go awa when we stopped the Cefdinir. He has a bit of a yeast Candida battle going on since he was a baby & so we could not keep him on long term antibiotics. I give him Sacchamoyers Ballardii & FiveLac & Nystatin to help that battle and that does work BUT it is not enough when he is on antibiotics. and I am nervous about long term antibiotics with long term Fluconizole/Diflucan. IS that a true concern? The Candida problem is reason we are thinking very seriously about the Oral IG because if he had to be on antibiotics for a year or two I think it is not recommended to be on Diflucan that long. I saw a post from doctor McChandless saying ORAL IG works well for some kids. Are there any families out there that have had experience with Oral IG, Please let me know!!! Thanks,
  6. Hello everyone, I will be brief so you can read me without get bored. I am 22 years old, had been with OCD and motor tics from 8 years old approximately, this tics are all about crushing joints and jaw clenching (my social hidden tic) I live in a shitty comunist country, I am sure I know more about tics that doctors here I don't want to get drugs, I am convinced to fight this from a comprehensive way Supplements will be one of this ¿could you people help me with main and basics must I take? ( I will buy each one for separately because my country condition ) Thanks for all, this website and you people that are sharing expriencies here are tremendous helpful
  7. I don’t post very much because when my twins are home from pre-school the minute I open the iPads they both grab one & jump on ABC Mouse. Background: my son is 3.5 years old he has had PDD-NOS since he was 18months maybe longer. He has a twin brother & they were initially both verbal at 16 months then one progressed verbally & social and the other had terrible diarrhea & stomach problems for many months & he then did not progress, he actually regressed for a year. I see a DAN that was in California but is now in Florida & my son is on Methyl B-12 injections, DMG, Digestive Enzymes before meals & cod liver oil & Probiotics. No dairy no wheat and limited carbohydrates is his diet. After 60 days of Methyl B-12 & DMG he began to talk, he can spell and writes things to me with his ABC sets that I bought him. He ACES the spell curriculum on ABC mouse (more than his Nuerotypical brother), but he is not social and he still vocally stims very loudly 3 times a day for an hour each time. So 3 hours a day. At that time it is very difficult to pull him out & back with us. This usually happens when people are at our house or if we are in a store. Currently he is on his 3rd round in 6 months of Fluconazole & Cefdinir. He makes big social & verbal gains when he is on this course. He can communicate better and stims a little less. Two days ago I accidental missed his Fluconazole and he had trouble communicating the next day, so now I am thinking the Fluconazole is the most helpful. Where do we take this? I need advice? IVIG? Stem Cells? Fecal transplant from brother? GcMAF? What could replace these medication rounds OR do the medication rounds sometimes help workout the problem for good? Please let me know.
  8. This, too, is slightly off-topic. But as I thought many of us could relate to Randi's plight, I would post it here in the hope that we could perhaps lend her a hand. Why do insurance companies think it is morally or ethically acceptable to deny people care for which their premiums have effectively "prepaid" and/or which are deemed medically necessary by the professional caregivers?!?! Randi's right; it is unconscionable. Thanks! https://www.change.org/petitions/patricia-hemingway-hall-approve-randi-s-blood-plasma-immunoglobulin-treatments-ivig-scig?alert_id=oQQBbzvpKt_ErIeifmAmw&utm_campaign=47969&utm_medium=email&utm_source=action_alert
  9. My son is 19 years old. He was diagnosed with PDD-NOS at a young age and we're just looking for advice now. He is very intelligent academically, and is now attending college, but his uncle has a very similar diagnosis and he is 53 and still lives with his mother and we just don't want this for him. We really want to help him be independent. One of the biggest issues is that he really struggles to think outside of the context of himself. When he is upset, he claims himself as the victim. When there is a conversation, he turns it back to himself (ex: if we're talking about the British royal family, he'll ask if we think he's kingly). To him, it seems like everything exists in relation to him. He gets so upset when he sees his twin and older sister going to hang out with the people he considers friends and it just seems like it would be so much easier for him to have friends of his own if he could learn to empathize and relate to others better. I know social problems are directly related to his disorder, but is there a way to help him? He's taken classes on social skills and we try to remind him when it's relevant, but is there anything else we can do?
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