Jump to content
ACN Latitudes Forums

Search the Community

Showing results for tags 'Bad reaction'.

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


  • Welcome to our Forums
  • ACN Services
  • Advanced, Complementary, and Alternative Approaches
    • PANS / PANDAS (Lyme included)
    • Tourette Syndrome and Tics
    • Attention Deficit Disorders
    • Autism Spectrum Disorders
    • Obsessive Compulsive Disorder
  • School and Home Related
    • Academic Challenges
  • General


  • ACN Latitudes Blog
  • sarama37's Blog
  • kptrsn's Blog
  • lulu648's Blog

Product Groups

  • Advertisements
  • Test Category


There are no results to display.

Find results in...

Find results that contain...

Date Created

  • Start


Last Updated

  • Start


Filter by number of...


  • Start





Website URL







Found 1 result

  1. I want to post this in case others are in the same position--I feel like yelling: Warning, warning!!! Tindamax had a HORRIBLE effect on our PANS/PANDAS d (13). She has been out of school for over a month now with classic PANS OCD/ticcing. Regretfully, after testing for lyme the blood results indicated some ind. bands. Tindamax was tried. We lasted two Saturdays, and then the prescribing llmd doctor said to stop and to increase Augmentin instead. (We had a weekend phone appt. in desperation.) Tindamax is supposed to help with lyme, as it crosses the barriers and is a known "cyst buster" -- Well, if your child is in a PANS or PANDAS exacerbation I cannot help but wonder (AFTER our experience these past two weeks) if the use of Tindamax could accelerate the autoimmune reaction -- make it worse -- as it is said to permeate "walls"-- if your child is in a PANS AUTOIMMUNE exacerbation could this open the flood gates? I feel we all need to be very cautious about treating "lyme" if your child has PANS. Yes, PANS may be triggered by a reaction to lyme initially, (that makes sense.) However...since PANS is an autoimmune reaction, if it is treated as lyme I can't help but wonder if great caution needs to be used as to how and with what it is addressed. Our daughter's OCD went off the charts, she developed a screaming vocal tic, screaming at us, counting rituals, destroying the house again, OCD intrusive thoughts take-over, it has been HORRIBLE!!! OK, so at first I thought "possible herx"...but really??? Finally we called the lyme doc this weekend and he said TAKE HER OFF--she is having a BAD reaction. TRY AUGMENTIN, double it to the SS dose of XR 2000mg a day and see what happens in a few days. This has all been a terrible episode -- but then to have this TINDAMAX issue...
  • Create New...