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Antibiotic side effects!
Hitman3161 posted a topic in PANS / PANDAS (Lyme included)So I've recently attended a much needed ENT appointment, and am awaiting immunomodulation therapy overseas. During the physical exam the Dr pushed a camera up my nose which showed a whole load of green gunk! Thankfully she prescribed a 5 week course of clarithromycin (500mg for the first 5 days, 250mg there after). The medicine has resulted in an almost instant benefit on cognition and sleep, but has gave me some ghastly side effects - mostly stomach cramping and toilet trouble. Will this pass during the course of treatment? Or will it only pass after termination of the medication? I really don't want to give up the beneficiary effects of the medicine as I have noticed a slight but noticeable improvement. Anyone had similar experiences or could shed some light to the matter? Many thanks
Help with PANS
Momwithacause posted a topic in PANS / PANDAS (Lyme included)I don’t post very much because when my twins are home from pre-school the minute I open the iPads they both grab one & jump on ABC Mouse. Background: my son is 3.5 years old he has had PDD-NOS since he was 18months maybe longer. He has a twin brother & they were initially both verbal at 16 months then one progressed verbally & social and the other had terrible diarrhea & stomach problems for many months & he then did not progress, he actually regressed for a year. I see a DAN that was in California but is now in Florida & my son is on Methyl B-12 injections, DMG, Digestive Enzymes before meals & cod liver oil & Probiotics. No dairy no wheat and limited carbohydrates is his diet. After 60 days of Methyl B-12 & DMG he began to talk, he can spell and writes things to me with his ABC sets that I bought him. He ACES the spell curriculum on ABC mouse (more than his Nuerotypical brother), but he is not social and he still vocally stims very loudly 3 times a day for an hour each time. So 3 hours a day. At that time it is very difficult to pull him out & back with us. This usually happens when people are at our house or if we are in a store. Currently he is on his 3rd round in 6 months of Fluconazole & Cefdinir. He makes big social & verbal gains when he is on this course. He can communicate better and stims a little less. Two days ago I accidental missed his Fluconazole and he had trouble communicating the next day, so now I am thinking the Fluconazole is the most helpful. Where do we take this? I need advice? IVIG? Stem Cells? Fecal transplant from brother? GcMAF? What could replace these medication rounds OR do the medication rounds sometimes help workout the problem for good? Please let me know.
For those who are newer and don't know my DS's history, he was on Augmentin XR (amoxicillin + clavulanic acid) for nearly 2 years, fighting his way back to his "normal" from his worst ever exacerbation. We weaned off those abx almost two years ago now, and he's done well . . . no further exacerbations and no significant illnesses in the meantime, either. This fall, he's fought off two colds, the latest one of which was big, bad and long. Head congestion, chest congestion, laryngitis and cough. No fever, though, and no sore throat. Friday evening, he complained that his ear hurt. Complained again intermittently on Saturday, though a decongestant and ibuprofen seemed to handle it for him. Woke up Sunday and said that his ear hurt now more than ever, and we could see red around his ear, behind his ear, and stretching down his jaw line. Still no fever though. Hello MinuteClinic! Diagnosed with an ear infection and given amoxicillin 875 mg. oral, 2x daily, as well as steroid ear drops. After one day of abx and ear drops, he said he felt significantly better. Was able to go to school for the full day both Monday and today, and when he got home today, he was back to his old self . . . perky, happy, and thrilled to be facing a long holiday weekend. So . . . clearly no issue with antibiotic resistance here. Kid is responding exceedingly well to regular old amoxicillin after two years of taking its bigger, badder cousin! I think I might just have a "regular" kid with a "regular" immune system on my hands . . . finally! Crossed fingers, anyway!