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Found 85 results

  1. Our 13 yr.old son has demonstrated various tics since he was 3. It is getting worse and worse with each year despite our efforts of going all organic in terms of food and the living environment.We urgently seek help from an experienced practitioner so if anyone could recommend a doctor-Environmental or Integrative one, we would greatly appreciate it! Many thanks in advance for your help.
  2. Hi, I'm new to this site and am hoping someone can help me. My son has just turned 10 but has suffered from what I now realise are motor tics since the age of 4-5. It took a while to get to this realisation as it started with his eyes burning and itching following a nasty pseudomonas eye infection to which he would then respond by eye rolling and excessive hard blinks. He was checked out by ophthalmology and they could find nothing else wrong once the infection was cleared. This went on for a few years and then some other tics appeared. He also has been under ENT as he had sinus issues and had pus aspirated from one of his maxillary sinuses. We thought some of the eye irritation was due to that. In hindsight I think most of these were tics all along with the sensory feelings of itching and burning being part of it. He now has a nose twitching tic and opens his mouth wide as well as still odd eye tics. He says his nose itches (he has no allergys) and his jaw feels 'funny' so he has to move it to make it feel right again! I do try not to mention them but he does talk to me about them sometimes especially when a new or particularly bothersome one appears. I just reassure him it's ok and he's perfectly normal whilst inside I feel so sad about it all. In every other way he is fine, no OCD or anything like that and is doing well at school although other kids are starting to notice it. My biggest fear is he will be bullied for it - you know how cruel kids are. Apparently his dad had some tics growing up as his mum remembers him touching his nose all the time. I am in the UK and just wondered if anyone has any advice? He sees a neurologist next Friday just to rule out any underlying reason for the tics and to hopefully confirm what we think is happening. I am so worried he will always be like this as it's been going on so long with no respite from them, they never go away not even for a few days. They do wax and wane though and he is bad at the moment. I haven't known him to have any obvious vocal tics so am hoping he may not get those as they will be even harder for him to live with. I guess I just want someone to say it'll be ok and he will grow out of them! Any advice will be much appreciated 😊
  3. Hi there, I am a 23 year old female. I've been doing quite a bit of reasearch on PANDAS lately, and everything is just pointing to it. I developed a sudden onset of severe OCD at the age of 10, followed by a sudden onset of Anorexia at age 15. I also had PLMD at age 16. And at age 21, I started getting tic like sypmtoms and body movements (I'm not really sure if they were present when I was younger as well). As a child, I was in the doctor's office almost every month getting a throat culture for strep or had some sort of ear infection. I was sick quite often as a child. I even remember having a fever of 107 at the age of 2. My question is, does anyone know if antibiotics could help an adult who possibly has PANDAS untreated? I have tried countless treatments and therapies and medications for my OCD and anorexia and nothing has helped. I feel like things just keep getting worse, and I just want some relief. I remember being totally fine as a child, and the one day waking up and feeling like my world turned upside down and had no idea why I was doing the things I was doing. This happened with the OCD and Anorexia. No previous implications of it, just literally overnight. Does anyone know (or suffer themselves) and are older? Is there anyway to know if it's PANDAS even though I am older now - symptoms never got better over the years, only worse. And of course al ldoctors do is just push this SSRI or that SSRI. I'm worried it's too late in the game to test for anything or possibly treat it. It wasn't ever a known thing when I was younger, and I've even tried to bring it up to doctors now, but I'm just looked at like I have 10 heads. I just want to be okay and recover from these horrible symptoms that didn't plague me for years. If anyone has any words of support or anything they could offer/advice/anything at all - it would be greatly appreciated. I feel like I am trapped in my own body and have been for years. Thanks everyone.
  4. My daughter is 8 and started blinking quite a bit last January. I'm not sure how it lasted but I'm thinking less than a month. This happened again a few months later. Each time we thought it was something with her glasses. About a month and a half ago (I think) she started scrunching up her nose. Sometimes it would happen at the same time as the blinking. It started to get constant and I was freaked out. My pediatrician didn't seem to know tons on the topic and said it was probably just transient tic disorder, don't worry, etc. Well, we ended up seeing a highly-regarded pediatric neurologist two weeks ago and he said 20-30% chance of mild Tourette's. Our world has been turned upside down. This has been the hardest thing we've even been through. The doctor recommended the Paleo diet, no gluten, no dairy, no eggs, no artificial flavors, no sugar. We've been following this about 90%. My daughter ate normally yesterday (Thanksgiving) and has had two birthday parties with cake. She does have milk with cereal (we are trying to get her to like almond milk). I am also giving her B complex vitamin, Magnesium Taurate (250 mg) and Tic Tamer. Epson salt baths occasionally too. These modifications have been going on for two weeks (some are newer like the Tic Tamer and Mag). We've seen some improvement. I'm wondering how long it takes to see more improvement? Can someone recommend other things we should do? It's so tough. I try to take it one day at a time and not worry too much. We have no family history and she doesn't have any other things going on. Please tell me that time will help all of us. Oh, and to end on a positive note...my daughter has not been bothered by any of this at all except for the diet changes. She's perfectly happy and I'm praying it stays that way.
  5. Copied from another forum: "I was listening to Dr David Perlmutter's amazing talk on the Autoimmune Summit today. (His talk is available for free until Mon 11/17 at 10 am eastern time...here is the link: http://autoimmunesummit.com/david-perlmutter/ He shared about a 13 year old male patient he had from Canada with a serious tic/movement disorder. Dr P took a good history and noted that this boy had lots of infections and antibiotics at a young age. His mother was already giving him probiotics, but Dr P wondered just how much of the probiotics were actually making it past the stomach and into the bowel? It was possible that very little was making it into the bowel. At the end of their appt, Dr P told the mother to go to the pharmacy that day (they were scheduled to return to Canada the following day) and get an enema. He instructed her to add 6 caps of probiotics to the enema and administer it. Fortunately, the 13 yr old was open to this since he was not finding help elsewhere, and was grateful that Dr P was thinking outside the box. Dr P said conventional medicine's answer to a tic disorder would be to prescribe Haldol or another antipsychotic drug. The next morning, the mother called Dr P at his office and told him that after administering the probiotic enema the night before, her son's tic disorder had stopped! The 13 yr old continues to administer daily probiotic enemas to himself with up to 12 caps of broad spectrum probiotics per enema. That is quite an amazing testament to the power of our immune system in our gut! Dr P said that when recovering from any disease/illness,especially inflammatory conditions and autoimmune conditions, we should focus on restoration of gut bacteria." "Dr P also told about an MS patient who had a gait disorder and also had one pupil that was larger than the other. This person had a history of Lyme disease and had taken lots of antibiotics. The patient had 6 fecal transplants. After the fecal transplants, the patient's gait and pupil became normal! Dr P said the gut wall lining is only one cell thick and mediates what gets in and out (intestinal permeability or leaky gut)."
  6. My son started eye blink and head jerking tic in March this year. It started following an ear infection in Feb, followed by chicken pox, followed by another ear infection treated with antibiotics. Since then he has had many tics including scratching, picking nose, nail biting, sniffing, facial grimacing, burping. I live in the UK, and getting any help has been difficult. I tried to investigate PANDAS and saw a paediatrician privately who did a blood test (aso titresi think) which came back negative and he basically discharged us. I have cut out tv/vdu which initially helped with the eye blink and head jerk tic. This tic is now back with a vengeance, the head herking can be quite vicious. I have no idea why this has returned. His diet is good, no junk, he has had acupuncture with little effect. Normal EEG. Am desperate. My son only turned 5 in August and this is breaking my heart. I currently give him Saludynam (mag/zinc/cslcium/vit D) and Kindervital multivitamin. Any help in how to alleviate these tics would be much appreciated.
  7. Hello, I am new to these boards, though I have been a fan of Sheila Rogers for many years after reading her book Natural Remedies for Tics and Tourette's. I have yet to post our full story and will do so soon (it's a long one!), but I have a quick question for anyone who can help. My daughter, 11 yrs old, has had tics on and off for years, but over the past year or so they have exacerbated, becoming more frequent and more extreme. I know for sure that she has some environmental triggers (colouring, fragrance, chlorine just to name a few). We have been avoiding all known triggers, but where avoidance used to work before, we now are at a standstill. I am in the midst of trying a gluten-free and casein free diet, but am not sure it is helping, and am not sure how long to keep going with it. With the understanding of the effects of pesticides on tics, does anyone have any knowledge on the effects of going on a purely organic diet? Successful? Not? Thank you so much in advance! Sandra
  8. My 5 year old son with tics always wake up from his bed sniffing, saying his nose is dry the past few years, despite what season it is in NJ. I was very ignorant not thinking there is anything wrong with the environment until now we knows he has tics disorder. He also often tell me his nose is stuffy when he lie down before falling asleep. Now I suspect he may be allergic to the air inside the bedroom, maybe dust mite, dust, anything in the air... We have carpet that haven't been cleaned for 5 years-- I know it is terrible!!! My husband has scheduled someone to use organic green products to clean the carpets while we are traveling outside the country. I am researching to buy allergy proof products to better the environment at the bedroom. 1) What brand of air purifier do you recommend that is HEPA filtered and free of ozone (ion generators)? I read someone use rabbit air. I hope to use sth that is easy to move around from room to room and effective to cut down mold and dust and dust mite in the air... 2) Which website do you order allergy proof pillow and bedding etc from? Should they be cotton? My son will see a allergist, hopefully he will test him for allergy to dust, dust mite and mold and food in Sept. Thanks. Barb
  9. Does anyone have a good referral for a Dr. or Therapist in the Orange County or LA area? I am an adult who is 36 years old and have suffered from TS that has gotten progressively worse since I was about 11. I have read Natural Treatment for Tics and Tourette's by Sheila Rogers and consulted the resources for Doctors and therapists listed in that book and on this website. Unfortunately, I have not had any luck at all. In fact, many of the Doctors listed in those resources said they don't even treat people with TS, and some of them seem to be no longer practicing or I couldn't find a working number for them. It is starting to get pretty frustrating. Is anyone out there currently seeing a Dr. or Therapist for TS that they can refer me to? I am in Long Beach but I can probably travel anywhere within Southern California, preferable in the LA or OC areas. Any help would be GREATLY appreciated. Thank you all, I am glad I found this forum. CMonfort
  10. Ugh. Need to vent. DS' new tic these past three days is screaming at the top of his lungs. Makes driving with him a rather harrowing experience. I'm hoping this doesn't last long. I thought the loud whistling was bad but I'll take whistling any day over this.
  11. Hello everyone, I will be brief so you can read me without get bored. I am 22 years old, had been with OCD and motor tics from 8 years old approximately, this tics are all about crushing joints and jaw clenching (my social hidden tic) I live in a shitty comunist country, I am sure I know more about tics that doctors here I don't want to get drugs, I am convinced to fight this from a comprehensive way Supplements will be one of this ¿could you people help me with main and basics must I take? ( I will buy each one for separately because my country condition ) Thanks for all, this website and you people that are sharing expriencies here are tremendous helpful
  12. Hello - My DD age 12 has TS, including a screaming tic. Confirmed malabsorption and gut issues. We seem to be having some success with a regimen of 100% Gluten-free, 90% dairy free, moving toward GAPS diet, non-GMO, Young Living essential oils (massage and diffuser), 500 mg of Taurine, Therbiotic Probiotic and digestive enzymes with some meals. My problem is she dislikes taking any supplements - even chewables. The probiotic and enzymes are chewables that she will only take mixed with yogurt - which is dairy and sugar! She will not swallow pills. Does anyone have a probiotic and/or digestive enzyme that they recommend that is either a liquid or some other form? Also I have not explored taking something to combat candida/yeast which she does have. Any recommendations? I have been adding one thing at a time because her anxiety increases with each additional "thing" she must take. Thank you ALL - this forum has been a lifesaver.
  13. I am a new member to the forum. My daughter is 22 and has a diagnoses of facial tics since toddler age. Her medication she is on is not working for her and looking for something to help control them. I was wondering what others take for their tics? She is currently on tenex. I am happy to find this forum so I can educate both of us. We kind of just accepted it because her dad suffers with them.
  14. Ill try to be brief.... DD8 referred by regular MD to CAMHS at age 7.5 for anxiety and other behaviours- fears, auditory hallucination About 3 times in 3 years), separation anxiety - mild. emotional lability {sp?} Most of the time seemed sad- worries of the = world. Behav = need to be bearhugged, skin itchiness ( no excema), hanging upside down off the sofa / bed. climbing the kitchen cupboards looking for treats- a need to be ' up' high - hence the climbing. fear of someone outside at night, fear of the house alarm being set off by younger siblings wandering to toilet in middle of night. fear of getting locked into a toilet -never has done- fear of going anywhere in an aeroplane - last trip was 3 years ago. nightmare - sore ears. silly goofy behaviour at times. social anxiety . cannot enjoy parties where there may be dancing- self conscious. fear of Santa and def fear of the tooth fairy. Writing lists - Names, car registrations - all the names of moshi monsters Xmas 2013. I always reckoned these issues were worse when she was sick - on an antibiotic or fever med - actually i put it down to colours in the antibiotic - yellow - amocicillin usual one .She has had tonsillitis frequently as a young child - def around the time of our first family holoday - she was about 3 year old. Def worse behaviour during breaks from school - much more anxiety, so much so I could not wait for school to return - ( DD8 had antibio at 3 weeks for excema on face) Enough said. DD6 is showing similar symptoms- JAn 13 - cough sniff tic - lasted about 3 weeks - i think - I forgot about it. wasnt overly concerned. Gran was dying during this time and i think I attributed it to stress in the family. I think at some point during that year OCT ?? I saw an increase in adhd type behaviours- - aggressive to younger dd3- out of character and my immmediate reaction was - someone must be bullying you - sure enough - a little boy was doing some minor things - making faces etc. spoke to teacher - moved the little boy and i thought things resolved. ( by the way dd6 had excema - 90% clear since last NOV. However has had a chronic cough since then and always gets same between NOV and April on and off. has been on steroids once and anti bio once but didnt really help - Ps DD6 had antibiotic at2 weeks for cough. Roll on Feb 12th - I was off with tonsillitis - DD6 began tic around week later? sniff cough comes back - a full year later - with hyper behaviour- and a constant looking for sweet stuff, biscuits, anything with sugar- Im thinking she has diabetes ?? While watching her one day recently I noticed - lots of twirling, shoulder shrugging, fiddling with her hair - knotting it ( fear of getting nits- big campaign recently in school re nits) writing a list of what way she would tie up her hair on a daily basis- constant need to hug me when im leaving or she's leaving. hoarding - lots of stuff under her pillow - which she refuses to remove - she lost a tooth on dec 24th 2013 and another beginning FEB- She has had about a full month of having trouble passing faeces -constipated ON DEC 31st spent one hour in the toilet , crying and trying to go - eventually did - but the fear has not gone - and had many accidents during JAnuary as a result of leaving it too late. Now she goes but requires me to be present in case she has trouble - dont know about her having infections - or strep - was called to school in Dec as she had a high temp but nothing materialised. DD3 had tonsillitis of very bad throat on DEc 7th - My DH had history of tonsillitis as a child - I never got tonsillitis until I was 21 - my twin did tho- But I was always a worrier - unlike my sister - so I UP UNTIL NOW JUST THOUGHT I AM REARING DIFFICULT ANXIOUS KIDS _ am I though? I am a teacher and pretty au fait with kids behaviours but feel I am failing with my own - sometimes I dread the thought of going home - what behaviours dd8 would be displaying- on sat night she said - I wish i wasnt in this world - now she did not really understand the concept of what she said - but it was a reaction she had to a hard day she had had at a a friends party - she cannot deal with rejection - even minor falling out with friends - takes it so much to heart - Im never going to speak to her again - shes so mean". Please advise - should I be looking for help ? I know others have more difficult cases- I feel I am just about managing these behaviours - but should I be - just about managing - My close family reckon - they are attention seeking kids- they have me wrapped around their little fingers- and manipulate situations to get what they want. There is probably an element of truth there.. Any advice appreciated - PS I am in UK/ IRELAND
  15. So after reading llm's post about the antibiotic that can remove excess glutamate, I am even more confused about the whole glutamate/GABA thing. I had been thinking about GABA supplements for DS because GABA is calming and his PANDAS symptoms are fairly large/prolonged motor tics and vocal tics. But now I have read that GABA and glutamate and glutamine all get converted to one another, so giving a GABA supplement wouldn't do much if it just gets converted into glutamate anyway?? Is it better to try l-theanine instead? I have read that it gets converted into calming substances such as GABA. I'm interested to hear if anyone has tried these, with success or not. Thanks!
  16. All the success stories and info about magnesium and diet changes are so incredibly helpful. Would you please let us newbies know approximately how long before you saw results with these regimens? Understanding every child is different, it would be so helpful to have a gauge of some kind. Also, did tics decrease then increase at times? I would expect that is to be expected. Thank you.
  17. I went to a support group for woman with children that have health issues. They discussed that Round-UP and GMO's not only chelate magnesium creating deficiencies but also zinc and believe that zinc supports strong sperm and there may be a link to lower zinc and difficulty conceiving. Isn't low zinc implicated in Anorexia and OCD? What are your thoughts? Our Dr doesn't supplement. I understand he has seen benefits and harm just like some here have both positive and negative reactions. I am sure it needs to be based on your 23 and me but thought I would ask.
  18. I am really needing some advice specific to my DD situation. 12-year old about 85 pounds. TS with eye blinking, facial grimaces and vocal tongue-clicking tics. Started about a week ago on Kids Calm and Elderberry as a result of success stories seen on this forum. Also bought Natural Calm because KidsCalm is only 240 mg of Magnesium and Natural Calm (for adults) is 325. My thinking is that she is almost adult sized I would add 1 tsp of Natural Calm to Kids Calm to up the magnesium. Also bought Taurine which I am planning to add to the mix today. After almost a week I do see a slight improvement. Here's my questions - Do you think my plan is a good one for her weight and age? Can I give her more in a day? Have seen that it's OK to give more per day until you see that the stools are getting too loose. I am totally willing to try that but not sure if it is safe. Does anyone else have experience with Elderberry? Wondering if this is helping. Started both Kids Calm and Elderberry at same time. We have autoimmune issues so I thought it would help. Any thoughts on the Taurine? Does not seem to be included in KC or NC, yet I read it is important to properly absorb the Magnesium. Also had her on Nordic Naturals Omega 3 but stopped because Omega 3 is in the Kids Calm. Seeing a nutritionist this week, but wanted to get perspective from this forum too. Any advice would be greatly appreciated! Thank you all and thank you for this excellent, life-saving forum.
  19. Hello - does anyone know of any tic/TS support groups for kids in the northern NJ area? My DD is 12 and I think a support group could really help her. Anyone have a child around that age who would be interested in emailing with her? She is really into theater and singing, which strangely enough seems to calm her tics signifcantly.
  20. Hello Friends, There is no time or energy to revisit our 4 year history on all the things we have done up to this point. We do know that we have moved from plain ol' PANDAS to PANS for the last year. Our DS14 is doing very well compared to the overnight dysfunction 4 years ago. I was thinking about ordering 23 and me as our next step. DS14 still has OCD, ADD, and also added vocal tics last year with the lovely Coxsackie Virus. His OCD and ADD used to be a 10 on a scale of 1-10, but seems to be manageable at a 2 or 3. So, life is manageable for him and no longer torturous. The tics seem to be getting worse. Here are a few things that stand out: He is never cold and sweats as if he has just climbed out of a pool (NOT exaggerating) Excessive sweat Excessive heat Excessive ear wax Excessive bowl movements (3-4 times a day, but not diarea) His vocal tics seem to be worse during a full moon. He has been tested 3 times for Lyme and yes, with Igenex. He was bitten by a tick 5 years ago and I still have that lingering suspicion. But when all the tests come back negative for Lyme.....could it be a false negative from being on antibiotics? I am suspicious of some type of parasite but he has been tested in the past. Not sure what I should be asking the doctor to test for next. I am going to ask about glutamate as well. Thanks in advance, Linda
  21. Hi I have a 7 year old. Last year in November, he developed some vocal tics. These eventually evolved into coprolalia. He was put on guanfacine, zolofot and risperdal. That improved things and the only thing that remained were some grimaces. In an attempt to eliminate his tics and move away from these powerful drugs, we've tried a whole bunch of alternative treatements and dietary changes. - put him on a gluten free, dairy free, reduced sugar diet. - We have him on a bunch of supplements - Ca, Magnesium, Methionine,etc. - for a while, he was on a very strict, candida free diet and diflucan and probiotics Given that all of the above did not get rid of his grimaces, our suspicion turned to PANDAS. We spoke to a Pandas specialist and now have him on a dose of antibiotics with a steriod (prednisone). Three days into this treatment, we noticed a significant change in his behavior - a lot of rage and frustration. After about 5 days, we also noticed that his vocal tic had started to come back. Today is the 6th day, we've stopped prednison (after reading online that it is a significant tic triger). His grimaces are much reduced but his vocal tic is back and we are besides ourselves. The nightmare has returned.How long till Prednisone is flushed out of my son's system? And will his tics subside (or are they now at a "new normal")? Has anyone experienced the above before? Are his vocal tics really prednisone or just a herx reaction - is this just a strep die-off?Could his tics be the antibiotics?I've read that TS is usually inherited and there is no neurological conditions that exist in our family - or even the extended family...so if this is TS then it is extremely strange...any thoughts on this? I forgot to add that we did Lyme testing through IGeneX. Here is what we got... IGenex TES : NEGATIVE CDC / NYS TEST: NEGATIVE 18 KdA -- **23-25 kDa -- 28 kDa -- 30 kDa -- **31 kDa IND ** 34 kDa -- ** 39 kDa IND **41 kDa ++ 45 kDa -- 58 kDa + 66 kDa -- ** 83-93 kDa -- Does this indicate Lyme? Is it possible that his tics are also worse because of die-off (herx) reaction? Your help and advice is much appreciated.
  22. Hi Everyone. So glad I found this forum. My son's first tic started when he was around 5 - he is 9 now. There are many contributing factors that could have triggered the onset. We suffered from longterm exposure to carbon monoxide and after 7 mos. of the exposure - right before we found out we were being poisoned - his tic started. He also had swine flu and tamiflu months before...so who knows..it was all too much on him. We've both suffered lifelong damages from the exposure - but it's too much to explain here. His tics used to happen every 6 mos. in the beginning after the first one - last a couple weeks and be gone for about 6 mos. I had no idea what they were - involved blinking eyes and making a face with the eyes involved, then breathing, inhaling noises, coughing, throat clearing, squeezing his hands and flinging his head back (the worst one he's had) - or a combination of that and some other upper body movements were his worst. He has also had Strep and I often wonder about PANDAS. I have tried a lot of different things. I've been writing down everything as things change with him - to keep an eye on what's working or not - and what's triggering if possible. A few months ago my friend told me about Elderberry syrup. I bought some - take a teaspoon with a couple tablespoons of grape juice (tastes great if you make it yourself) supposed to be extremely strong immune system booster - used in other countries as a replacement for antibiotics and to treat illness, chronic fatigue, fibromayalgia, etc. I could go on and on. There have been studies on it also - you can look it up. We have been taking a teaspoon or two (or three if getting sick) every day for the last couple of months. I noticed his tics waned down to almost nothing - just a little hand tic when reading or stressed out, etc. Then I had us stop taking the elderberry syrup for a week as we had stomach problems and for some reason I thought it might be linked to it (I had just made my first batch of elderberry syrup from dried elderberries and it was around the same time we got stomach problems which developed). During that week with no elderberry, a new tic developed with him making a strange face and sometimes licking his lips and doing something with his nose. After that week I started giving him (and myself) the elderberry syrup again as usual as we started having some other issues with a cold developing. I realized the elderberry syrup did not cause us any stomach problems. Since I started him up again the tic is completely gone and has stayed gone - he has had no tics that I've seen for the past few weeks or a month maybe. This is a huge huge deal as I have tried all the vitamins, magnesium, supplements, etc. and they haven't done anything noticeable. I will update if anything changes...OH by the way - the tics that he has had over the past 8 months or so have been consistent and nonstop everyday - something happening with them. It has been the LONGEST stretch of nonstop tics as when he first started having tics they would only last a couple weeks and go away for about 6 months. If anyone else tries this - please let us know the results..I would love to know if it helps others!!!!! If you want a recipe to make it yourself, I can give you a link to the recipe. Or else you can buy it from a natural health store, organic store, but some brands have a lot of alcohol in them to preserve them and the taste isn't the best. Depends on the brand anyway. ...So far - the past month to two months - nearly no tics - lately I just give him 1 teaspoon a day. All the normal triggers for him are not triggering them as of now. I am really happy for that. Take care everyone! (Also - since doing this with the elderberry syrup - I haven't been giving him anything more than a regular vitamin and sometimes forget also)
  23. Hi - my 12-year old daughter has PANS, I believe. Seeing PANS/PANDAS neurologist in northern NJ. Very elevated titers for myco (1400) and slightly for strep. Treating with Amoxicillin AND Zithromax. Has tics which may have actually increased since being on antibiotics (only about 9 days though). She will not take pills, tried Biaxin liquid but will not tolerate so switched to Zithro. Also has increased anxiety and has had one rage since on meds. Used to take Omega3 (Nordic Naturals with DHA for kids) , then stopped, and recently started again. Taking probiotic too. Her diet is GF and mostly dairy free but she is a picky eater and so has a lot of carbs. Trying to get her off sugar and carbs but taking the meds is easier when she has something sweet (nutella is her favorite chaser, also soy choc milk mixed with plain almond milk). Questions: Does anyone have any ideas/thoughts on antibiotics she is taking? Seen an increase in tics/anxiety/rages on these drugs? Read some kids have increased tics with Omega3 - maybe stop that? Any luck with steroids? Does anyone report ANY relief from just doing nothing - no meds, no discussion, just ignoring tics? All my daughter's anxieties and tics got 10x worse once I actually started looking into it and treating it. Started therapy. But scared to not treat myco and strep after reading Saving Sammy and online info. Any advice would be so helpful. Thank you. Bless you all for this forum and for your information.
  24. My 9 year old son woke up complaining of serious neck pain. Within a few hours he developed a neck tick followed by eye roll.. He has suffered from various tics for years. Has had neck tics in the past. I'm wondering if the neck pain triggered the recent neck tic or the tics triggered the neck pain. I'm hoping when pain subsides the tics will wane.
  25. My ds 15 had a bad bout with Flu B last week --- very high fever, body aches, etc. Took Tamiflu, and is now left with a chesty cough. Oddly enough, his Pandas symptoms were not bad during the flu week...tics decreased, OCD, anxiety, and ADHD symptoms were all surprisingly decreased. Two days ago, however, the Pandas symptoms came back with a vengeance. Tics, OCD, anxiety, hyperactivity are worse than they've been in a long time. He also has a red, dotted rash on his face (we think this rash--which we've seen on his trunk before-- is yeast related). AND, he is finding it hard to make eye contact-- he has never mentioned this symptom to me before. He has consistently been on antibiotics, and he has ongoing mycoplasma. Any help would be greatly appreciated. Thank you.
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