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extreme expense of IVIG-88K !
thomasmom posted a topic in PANS / PANDAS (Lyme included)Hello all, it has been a long time since I have visited this forum. We have been very blessed. After 7 years of battling tics and PANDAS with several IVIG doses, Thomas "grew out of it" when he started having signs of oncoming puberty. Many thanks to those on this forum that helped me through one of the darkest periods of my life. Now, I am helping a dear friend whose daughter has been diagnosed with PANDAS primarily with OCD symptoms. She is getting better after PEX and 2 doses of IVIG. The first was in Chicago and the second in our local hospital. Here is the problem. This family was just presented with an outrageous bill. $88,000 for 2 outpatient days of 6 hours each to get IVIG. Our bills never went over 5 K for each of our IVIG treatments (and we were hoppin mad about that !) Has anyone had this experience ? Have you been able to fight it ? I told them at first it was a typo. But the family went through several meetings with the financial department of the hospital who claim it is correct. The bill reads that it cost the hospital 54K just to order the drug. !! How can that be possible ? Wouldn't a hospital make you sign a form that said you were aware of the cost before you had the treatment ? Any advice or insight would be appreciated ! Thank you