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petie_tk

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Posts posted by petie_tk

  1. My son was doing great about 2 months post Strep from Antibiotics, Steroid Burst and low doses of an SSRI and an Anti-psychotic. The PANDAS OCD was gone for about 1 week and then he got a fever and virus that caused the PANDAS symptoms to get exacerbated again. Does anyone know about this syndrome? Do the symptoms recur with every virus post PANDAS even if it's not a strep throat infection. How do you permanently get rid of PANDAS? How do you differentiate between the mental/emotional triggers and the PANDAS triggers?

  2. My son has made a great recover with ABX(500 mg. per day for several weeks of Zithromax), a Prednisone Steroid Burst, Prozac(10 mg.) and Risperdone(.25 mg.) - it does go away so hange in there - make sure to check for Co-viruses and Co-Infections:) Streptozyme, Anti-DNAase Test and ASO Titers test as well as check for Herpes Virus and Epstein Barr Virus as well as Lymes Disease.

     

    Hello everyone, I'm new here. My son was just recently diagnosed with PANDAS. I'm so scared for my little guy. For those with older children with PANDAS, what is the outcome? Does PANDAS go away? Is damage permanent? I've been reading and reading so many mixed things! I'm new to all of this, not sure which way to go, not sure what to believe. Any help/input would be appreciated. Especially with the permanent damage part! It scares me!

  3. I am very excited by the article - this is me and my son Brody in the photo! We have been thru a terrible episode of PANDAS following his recent Strep infection.

    I was happy to participate in the article which is trying to help get the word out on PANDAS and increase Awareness!

     

    Thank you!!! How adorable is Brody??? And Boogie????

     

    (of course, you are lovely too!)

  4. Does anyone know of a good PANDAS/OCD Psychiatrist who is in Los Angeles County or who does Telepsychiatry appointments(via phone or Skype)?

    My son is on 10 mg. of Prozac which has done wonders on his mood. To address the excess of Dopamine, he was taking 2.5 mg. of Zyprexa but gained too much

    weight(8 lbs. in 2 weeks) so the doctor switched him to Abilify but it's not really helping. It makes him hot all the time and he is now having difficulty

    urinating. We were thinking of trying Risperdone...does anyone have any input with Zyprexa vs. Risperdone vs. Abilify for the OCD / PANDAS?

  5. Does anyone know of a good PANDAS Psychiatrist who is in Los Angeles County or who does Telepsychiatry appointments(via phone or Skype)?

    My son is on 10 mg. of Prozac which has done wonders on his mood. To address the excess of Dopamine, he was taking 2.5 mg. of Zyprexa but gained too much

    weight(8 lbs. in 2 weeks) so the doctor switched him to Abilify but it's not really helping. It makes him hot all the time and he is now having difficulty

    urinating. We were thinking of trying Risperdone...does anyone have any input with Zyprexa vs. Risperdone vs. Abilify for the OCD / PANDAS?

  6. My son had Strep Throat Oct. 11, 2011 and quickly exhibited OCD symptoms within a week which worsened as the weeks have passed. He was diagnosed with a severe case of PANDAS thru Dr. Thomas Lin in Irvine and went on high doses of Antibiotics and a Prednisone Steroid Burst but I didn't see much improvement. Prozac did wonders for the Depression and Anxiety (10 mg.) and has improved his mood greatly. The OCD was not getting better though as he has a major fear of contamination so we added Zyprexa to the mix(2.5 mg) which after 1-1/2 weeks got rid of a great deal of the OCD. Unfortunately, he gained 8 lbs. in two weeks so the doctor is now switching him to Abilify(2 mg.). He's only taken it for 1 night at that dose and his OCD returned once he weaned off Zyprexa. Hopefully the Abilify will work the same and kick in within 1 week or so. If not, we might try Risperidone and hope it doesn't cause as much weight gain as the Zyprexa. If the Abilify or Risperidone don't work, we'll have to put him back on Zyprexa temporarily. My son does have elevated EBV Titers so we are trying to figure out a natural remedy to address that. The Strep is completely erradicated but the antibodies did the damage and created this madness. We live in Santa Clarita in So. Calif and there aren't many doctors in the area that are PANDAS experts...please feel free to recommend, especially psychiatrists.

    I have heard Dr. Goldberg is a great immunologist but he has a huge waitlist. Dr. Roger Katz is excellent to test and address allergies. Please advise of any input on doctors in Los Angeles County near the San Fernando Valley or Santa Clarita Valley as well as input on medicines. Which medicine or anti-viral addresses elevated EBV test results?. Are there any natural remedies for PANDAS?

  7. My son had Strep Throat Oct. 11, 2011 and quickly exhibited OCD symptoms within a week which worsened as the weeks have passed. He was diagnosed with a severe case of PANDAS thru Dr. Thomas Lin in Irvine and went on high doses of Antibiotics and a Prednisone Steroid Burst but I didn't see much improvement. Prozac did wonders for the Depression and Anxiety (10 mg.) and has improved his mood greatly. The OCD was not getting better though as he has a major fear of contamination so we added Zyprexa to the mix(2.5 mg) which after 1-1/2 weeks got rid of a great deal of the OCD. Unfortunately, he gained 8 lbs. in two weeks so the doctor is now switching him to Abilify(2 mg.). He's only taken it for 1 night at that dose and his OCD returned once he weaned off Zyprexa. Hopefully the Abilify will work the same and kick in within 1 week or so. If not, we might try Risperidone and hope it doesn't cause as much weight gain as the Zyprexa. If the Abilify or Risperidone don't work, we'll have to put him back on Zyprexa temporarily. My son does have elevated EBV Titers so we are trying to figure out a natural remedy to address that. The Strep is completely erradicated but the antibodies did the damage and created this madness. We live in Santa Clarita in So. Calif and there aren't many doctors in the area that are PANDAS experts.

  8. We've not done psych-meds. NAC seems to help a little, and a few days we added CEDAC as an anitbiotic. My son had mycoplasma at some point, and I wanted to move to an antibiotic that crosses the Blood Brain Barrier. Its only been a few days, but it seems it is working (knock on wood).

     

    He also had IVIG twice. Everything has helped - but the IVIG was a HUGE help. HIs symtoms are sooo much less than where he was 2 years ago.

     

    I think that Bat-S.. also had mycoplasma? Which is why I'm sharing above info. My son's IgG was 2450 (normal range is under 600 or so) no IgM. So, docs were split as to weather he had a chroinc infrection, or just a very strong response when he had a past infection (so LOTs of antibodies to it).

     

    After some research on it, and the BBB I really wanted something that could cross the BBB - to get at it (if its in the brain), or if he had Lyme (I'm just getting my head and heart around treating Lyme- its a commitment!)

  9. To reduce the anxiety and OCD in PANDAS patients - what medicines have other forum members' children been prescribed? My son is now on 10 mg. of Prozac for the depression/anxiety and it is helping to reduce depression but hasn't yet helped with the anxiety nor OCD. Has anyone's child been on meds for anxiety - we have given my son .25 mg. of Ativan for emergency panic attacks but it can be addictive and I prefer not to treat him with it. Has anyone's child been on Buspar for the PANDAS/OCD? What about Atypical Antipsychotic meds like Respiradone or Zyprexa? Also, what doses of the meds is your child on and what is working to alleviate the OCD and what is working to alleviate the anxiety?

  10. My son was diagnosed with PANDAS and had exacerbated OCD with sudden onset following a recent strep throat infection. He is now under the care of many specialists including Dr. Thomas Lin of Irvine, CA (UCLA Board Certified Pediatric MD). We are also now testing for Lymes Disease as well. For Exposure Therapy, we will be seeing Dr. Eric Li in Brentwood, CA. For psychiatric meds, Dr. Yacoub in Northridge. For children's therapy in Santa Clarita, CA...Sally Jo Liljedahl. I am now seeking a support group for OCD (perhaps a parent/child group) in Santa Clarita, CA - any suggestions? Regarding meds, my son is now on high doses of Zithromax(500 mg), Prednisone(dose varies each week), Prozac(10 mg) and Probiotics(50 billion). Any info. that is helpful is appreciated. Also, does anyone have a child on a psychiatric medicine to control the OCD thoughts or a med to help with the anxiety?

  11. My son was diagnosed with PANDAS and had exacerbated OCD with sudden onset following a recent strep throat infection. He is now under the care of many specialists including Dr. Thomas Lin of Irvine, CA (UCLA Board Certified Pediatric MD). We are also now testing for Lymes Disease as well. For Exposure Therapy, we will be seeing Dr. Eric Li in Brentwood, CA. For psychiatric meds, Dr. Yacoub in Northridge. For children's therapy in Santa Clarita, CA...Sally Jo Liljedahl. I am now seeking a support group for OCD (perhaps a parent/child group) in Santa Clarita, CA - any suggestions? Regarding meds, my son is now on high doses of Zithromax(500 mg), Prednisone(dose varies each week), Prozac(10 mg) and Probiotics(50 billion). Any info. that is helpful is apppreciated.

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