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petie_tk

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  1. My son was doing great about 2 months post Strep from Antibiotics, Steroid Burst and low doses of an SSRI and an Anti-psychotic. The PANDAS OCD was gone for about 1 week and then he got a fever and virus that caused the PANDAS symptoms to get exacerbated again. Does anyone know about this syndrome? Do the symptoms recur with every virus post PANDAS even if it's not a strep throat infection. How do you permanently get rid of PANDAS? How do you differentiate between the mental/emotional triggers and the PANDAS triggers?
  2. My son went on 500 mg. of Zithromax every day for a few weeks and the Prednisone Burst plus SSRI Prozac(10 mg.) and .25 Risperdone. He was doing great but backpedalled yesterday from a new virus and fever:(

  3. My son had a positive Streptozyme, and negative ASO and anti-Dnase. We did a mix of Antibiotics and a Prednisone Steroid Burst as well as a low dose of an SSRI(Prozac) and a low dose of an anti-psychotic(Risperdone). It worked for my son. One hundred percent he had PANDAS. The ASO test being negative doesn't mean he doesn't have it. My son had a fear of contamination which is now gone f...

  4. Hello, After reading your post to the new PANDAS parent, do you have any experience with Streptozyme? My son has a neg ASO and anti-Dnase but pos Streptozyme...Any ideas or treatment suggestions?

    Thanks,

    Nancy

  5. My son has made a great recover with ABX(500 mg. per day for several weeks of Zithromax), a Prednisone Steroid Burst, Prozac(10 mg.) and Risperdone(.25 mg.) - it does go away so hange in there - make sure to check for Co-viruses and Co-Infections:) Streptozyme, Anti-DNAase Test and ASO Titers test as well as check for Herpes Virus and Epstein Barr Virus as well as Lymes Disease.
  6. The UK did a good PANDAS Article today in the UK and you can view it online - though it has some spelling errors, it is very medically informative re: PANDAS and it's validity! http://www.dailymail.co.uk/health/article-2070278/My-son-strep-throat-infection--week-later-developed-OCD.html?ITO=1490
  7. Brody was in a scary place - thoughts of hurting himself, handwashing and sanitizing over and over and constant showers, not touching things, not hugging, etc. but now with antibiotics, steroids, psychiatric medicine, supplements, he is now doing 80% better! Boogie Su was a big help.
  8. Thank you!!! How adorable is Brody??? And Boogie???? (of course, you are lovely too!)
  9. I am very excited by the article - this is my me and my son Brody in the photo! We have been thru a terrible episode of PANDAS following his recent Strep infection. I was happy to participate in the article which is trying to help get the word out on PANDAS and increase Awareness!
  10. Does anyone know of a good PANDAS/OCD Psychiatrist who is in Los Angeles County or who does Telepsychiatry appointments(via phone or Skype)? My son is on 10 mg. of Prozac which has done wonders on his mood. To address the excess of Dopamine, he was taking 2.5 mg. of Zyprexa but gained too much weight(8 lbs. in 2 weeks) so the doctor switched him to Abilify but it's not really helping. It makes him hot all the time and he is now having difficulty urinating. We were thinking of trying Risperdone...does anyone have any input with Zyprexa vs. Risperdone vs. Abilify for the OCD / PANDAS?
  11. Does anyone know of a good PANDAS Psychiatrist who is in Los Angeles County or who does Telepsychiatry appointments(via phone or Skype)? My son is on 10 mg. of Prozac which has done wonders on his mood. To address the excess of Dopamine, he was taking 2.5 mg. of Zyprexa but gained too much weight(8 lbs. in 2 weeks) so the doctor switched him to Abilify but it's not really helping. It makes him hot all the time and he is now having difficulty urinating. We were thinking of trying Risperdone...does anyone have any input with Zyprexa vs. Risperdone vs. Abilify for the OCD / PANDAS?
  12. My son had Strep Throat Oct. 11, 2011 and quickly exhibited OCD symptoms within a week which worsened as the weeks have passed. He was diagnosed with a severe case of PANDAS thru Dr. Thomas Lin in Irvine and went on high doses of Antibiotics and a Prednisone Steroid Burst but I didn't see much improvement. Prozac did wonders for the Depression and Anxiety (10 mg.) and has improved his mood greatly. The OCD was not getting better though as he has a major fear of contamination so we added Zyprexa to the mix(2.5 mg) which after 1-1/2 weeks got rid of a great deal of the OCD. Unfortunately, he gained 8 lbs. in two weeks so the doctor is now switching him to Abilify(2 mg.). He's only taken it for 1 night at that dose and his OCD returned once he weaned off Zyprexa. Hopefully the Abilify will work the same and kick in within 1 week or so. If not, we might try Risperidone and hope it doesn't cause as much weight gain as the Zyprexa. If the Abilify or Risperidone don't work, we'll have to put him back on Zyprexa temporarily. My son does have elevated EBV Titers so we are trying to figure out a natural remedy to address that. The Strep is completely erradicated but the antibodies did the damage and created this madness. We live in Santa Clarita in So. Calif and there aren't many doctors in the area that are PANDAS experts...please feel free to recommend, especially psychiatrists. I have heard Dr. Goldberg is a great immunologist but he has a huge waitlist. Dr. Roger Katz is excellent to test and address allergies. Please advise of any input on doctors in Los Angeles County near the San Fernando Valley or Santa Clarita Valley as well as input on medicines. Which medicine or anti-viral addresses elevated EBV test results?. Are there any natural remedies for PANDAS?
  13. My son had Strep Throat Oct. 11, 2011 and quickly exhibited OCD symptoms within a week which worsened as the weeks have passed. He was diagnosed with a severe case of PANDAS thru Dr. Thomas Lin in Irvine and went on high doses of Antibiotics and a Prednisone Steroid Burst but I didn't see much improvement. Prozac did wonders for the Depression and Anxiety (10 mg.) and has improved his mood greatly. The OCD was not getting better though as he has a major fear of contamination so we added Zyprexa to the mix(2.5 mg) which after 1-1/2 weeks got rid of a great deal of the OCD. Unfortunately, he gained 8 lbs. in two weeks so the doctor is now switching him to Abilify(2 mg.). He's only taken it for 1 night at that dose and his OCD returned once he weaned off Zyprexa. Hopefully the Abilify will work the same and kick in within 1 week or so. If not, we might try Risperidone and hope it doesn't cause as much weight gain as the Zyprexa. If the Abilify or Risperidone don't work, we'll have to put him back on Zyprexa temporarily. My son does have elevated EBV Titers so we are trying to figure out a natural remedy to address that. The Strep is completely erradicated but the antibodies did the damage and created this madness. We live in Santa Clarita in So. Calif and there aren't many doctors in the area that are PANDAS experts.
  14. Check Dr. Michael Goldberg's website under the NIDS tab for recommended tests to check for co-viruses and infections.
  15. Is there a phone support group for PANDAS for moms to chat with each other?
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