MaineMaMa
-
Posts
4 -
Joined
-
Last visited
Content Type
Profiles
Forums
Blogs
Store
Events
Posts posted by MaineMaMa
-
-
Hi TPotter- We were working with Dr.T in NJ, but I do think we'll check with Dr. B he sounds really good. Dr. T knew about my condition, and I told him I was flaring back in March when my dd 3 was way ramped up with pandas symptoms. He readily admitted not knowing much about it... but he did put my whole family on abx due to the sibling elevated titers, and several family members testing + for mycoplasma. No surprise my skin cleared up after the abx.
Waiting to see my dermatologist, who can't see me until December. I see my regular doc this week and hope she can push me into the derm with a referral, or that she'll investigate this herself.
Thank you for the reply!
-
sww817- Has your husband cleared from the guttate psoriasis? From what I've been reading it is usally triggered by strep, and is uncommon after age 30... keep it in mind, especially if your husband flares when your kiddo has pandas symptoms.
Thank you for your reply
-
My dd (age 3) was diagnosed with PANDAS last fall; it's been a long haul trying to clear her of symptoms. She has four older siblings and we find time and time again that the siblings have elevated ASO titers with no strep symptoms. I have bouts with guttate psoriasis, which is normally triggered by strep. I'm wondering if anyone out there has this condition and if you think it is a signal of strep carriage...? I'm trying to convince my own doc to test my ASO because my symptoms seem to fluctuate with dd pandas symptoms and sibs elevated ASOs. I have this feeling that if my doc put me on abx it would help my dd. We worked with Dr. T last spring but have lost touch with him. He was not too concerned about my condition and I'm having trouble convincing anyone there might be a connection. Anyone else have guttate psoriasis?
Thanks.
Dr. Trileffiti
in PANS / PANDAS (Lyme included)
Posted
I've also had communication issues with Dr. T but he responds quickly if my pediatrician calls him directly. I'm one of the lucky ones with an excellent ped on board! I agree, also call him at 8 because he answers the phone himself. The first time I called that was the case and I nearly fainted not expecting an actual doctor to answer his own phone!