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Thinkandreceive

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  1. In a major flare right now. Aside from antibiotics, what helps the most with anger and aggression, and irritability!? I need something quick! Its getting out of hand here! TIA Bailey
  2. 3 year old/reactive band 23

    Thank you for sharing! This stuff is very scary, but very reassuring that there is an answer. And answer to my sons ups and down, and to his chronic infections. How is your treatment going? Have you both seen positive outcomes? My husband will come around! We have made many strides so far, and many times it took lots of convincing and educating! Time for some more! Bailey
  3. 3 year old/reactive band 23

    Thank you for sharing! This stuff is very scary, but very reassuring that there is an answer. And answer to my sons ups and down, and to his chronic infections. How is your treatment going? Have you both seen positive outcomes? My husband will come around! We have made many strides so far, and many times it took lots of convincing and educating! Time for some more! Bailey
  4. 3 year old/reactive band 23

    Wow. How similar all these stories are. Thanks for sharing this video! I had actually seen it a few months back and felt sick while watching it. I had actually watched it during our ABX course Dr.K in Chicago ordered. I had a feeling there was more going on, which led me to Dr. Trifiletti who ordered the bloodwork including the WB. Although Dr T said the lyme was negative I reviewed it and of course Reactive. My son also lost speech after the MMR. He didn't have much before it, but completely stopped vocalizing. He also Memorizes EVERYTHING! He can remember a song after hearing it one time. He went from being non verbal last year and this year says anything, sings anything. Super smart, super bright, just very sick. He has been very sick for a long time. And the sad thing is, he can't tell me if his joints are hurting, if he is nauseous, ect. Who really knows the extent of his illness other then him. He never showed signs of SPD, or ADHD, Aggression ect. until the summer of 2010 after vaccines, and after chronic infections. I just kept getting "oh its a virus" from pediatricians, infectious disease Dr.s and so on. That is so reassuring to hear about your DD. I can't wait to share a similar story in the very near future!
  5. 3 year old/reactive band 23

    Wow Susan, I can't believe how similar these stories are. I have had this gut feeling for some time, that Lyme could be an issue, even though I knew it wasn't from an actual tick, and no signs present, it was just a mother gut thing. We haven't used Igenex yet. I got these results from blood work that Dr.Trifletti took for my sons pandas symptoms. Of course, I have strep currently and my son even though he had strep titers 7 months ago has NO strep titers now. Everything else came back normal, and according to Dr.T so did his Lyme. However when I read over the lab work, I found the reactive band 23 IgM and the Reactive band 41 IgG. I know the Band 41 is common and not specific to Lyme but the band 23, and the fact that this was NOT igenex labs, Makes me even MORE worry some on what else its NOT picking up on. We are also testing for heavy metals in a few weeks through Chelation, and that is our next route...however I feel like I need to address this Lyme first. I know it is an issue, and without a doubt, and issue for all of us. Thanks for weighing in. Anymore insight would be greatly appreciated. Bailey Hello, your younger children sound very much like mine were. My children got lyme from me during childbirth or through breastmilk. I did not know I (we) had it until 2 years ago. They had issues from around 12 months old and we have had sensory processing dx, pandas, spectrum disorder, gluten intolerance. A LLMD will take the positive bands to heart and can give a clinical diagnosis if needed. My dd10 had negative tests at first and after 3 months of lyme treatment got a positive test. She had pain like your dd and sounds like her in all other ways you mention. My other dd had many conditions found with autism and sounds similar to your son. I believe there is a strong connection between autism and lyme. Both my children are doing very well now after almost 2 years of lyme treatment. My youngest dd9 especially is doing great after addressing her lyme and also methylation pathway issues. DD10 is currently struggling because she just had strep and the flu but hoping she will continue to improve back to how she was doing. I hope you do make an appt with an LLMD and that your dh will open to the possibility so you won't have any road blocks to finding out exactly what is going on. Searching for what was going on with my children helped diagnose myself. Was your WB through Igenex Lab? Susan
  6. Hi all, We have had a long journey with my son since he was about 16 months old. At that time is when we started with chronic (i mean CHRONIC sinus infection) We have been through Autism Dx, Pandas DX, seen immunologist, neurologist, Dan dr.s, Ophthalmologist, ect. And Now a "negative" WB result. Well, more like Positive result. band 23 IGm and band 41 Igg. My son is now 3.5 years old. His longest and strongest dose of ABX was a few months ago a one month dose of Augmentin from Dr. K in Chicago. We saw huge improvements with his anxiety, and OCD behaviors, but we still have many road blocks. A few questions....Can Lyme disease in a young child mimic autism. Although my son doesn't have the Classic autism (he is very connected, social, ect.) He has a lot of rage,anxiety, sensory issues, especially sound and touch, irritability, aggression, and most of all chronic infections. How does a child so young get Lyme? Should my whole household be tested? My oldest DD (5.5 now) always cried/cries about leg pain, Even when she was a toddler I just never believed it was growing pains. She has many sensory issues, really bumpy skin, grinds teeth, super sensitive to noise, never slept well. Is this something they can get from me??? My middle DD (4.5) is quite neurotypical. I just started to question if maybe she was lucky that I had strep B when I was pregnant and the IV abx I got during labor helped her out in some way!? With one band Reactive and specific to Lyme, will a LLMD take one band seriously? I want to make an appt. but also don't want to go for nothing. Are there alternative Antibiotics other then Oral? The one month dose of Augmentin literally tore my sons insides apart, even while on strong probiotics for a long time prior to abx use. Anyone have alternatives? Or injectable abx? My husband is convinced Lyme is DEFINITELY NOT a factor, the CDC says NEGATIVE. I don't know what I can do , say, or show him to make him really trust what i'm saying. Any tips to make one believe or think outside the box would be great also. TIA
  7. What does yeasty diapers look like?

    I meant for it to go to Autism/Aspergers (Did i put it there?!) He has been diagnosed with both. We have pretty much gotten the pandas out of the way...for now. But ASD issues are still very much there. Until we fight yeast, toxins, allergies, ect. I figured more people in the autism community deal with more bowel issues, then the straight up pandas mommies.
  8. So, I know my son has yeast issues. Many years, and months on Antibiotics from pandas, craves sweets, juice is his #1 addiction. We eliminated most of his juice (which before was literally more then half a gallon a day. To about 16 oz. a day) We are on a week of this. Today he had the most AWFUL bowels i've ever seen. And trust me, i've seen it all. This was pure liquid, yellow gold, and smelled like sulfer. Does this fit the description of yeast die off at all? If not, any ideas? And what would yeast die off look like? We are hoping to start Grapefruit seed extract soon, now that he is off a med that is elevated by antifungals.
  9. Operations triggering autism symptoms?

    We are seeing a Pandas specialist. We have gone to see Dr.K in Chicago and a phone consult with Dr.T. We are still waiting for the lab results from Dr.Ts order. When he got his T&A removal in Decemeber he was covered for a week pre and a week post op with abx but it didn't help any. Or maybe it helped from the infections stand point but not so much for the oxide because he still had a major flare post op. But I think i mentioned his sisters had pos. Cultures a few days post op. I have wondered about the mthfr mutation. He gets mb12 injections. B12 has always been in my suspicions. Once lab work is back from Dr.T we will also be going to a new bio Dr. With lab work in hand.
  10. Operations triggering autism symptoms?

    I know it didn't start the process. He was showing signs well before this. But this set him back months. From losing speech, to anxiety, to rages.
  11. HI all, Did anyone have an experience where a operation or surgery trigger symptoms or increased symptoms? When my son was 16 months (after vaccines) he started showing a few signs of autism. He became more anxious and toe walked. Then it was chronic sinus and ear infections. 5 months after that we got ear tubes put in. The following day he was EXTREMELY anxious....not just for a few days, weeks, but now onto a year later. He also lost speech following that. Became more aggressive, and more ocd. After strep way more ocd, anxious, ect. He has been diagnosed with both autism and pandas although probably losing the autism diagnosis soon because his speech has sky rocketed in the last year. Also doesn't have classic signs of autism, but during a flare you'd never know. He also go this T&A removed, and even though on Antibiotics still had a severe pandas flare post op. Of course his sisters had strep that week. I'm interested to hear if any others have experience anything similar to this. Also if any conclusions have been made about the procedure. What causes this? the nitric oxide? immune response? Thank in advance for any help.
  12. HI all, Did anyone have an experience where a operation or surgery trigger symptoms or increased symptoms? When my son was 16 months he started showing a few signs of autism. He became more anxious and toe walked. Then it was chronic sinus and ear infections. 5 months after that we got ear tubes put in. The following day he was EXTREMELY anxious....not just for a few days, weeks, but now onto a year later. He also lost speech following that. Became more aggressive, and more ocd. HE has also been diagnosed with PANDAS. I am trying ot figure out if operations triggered autism and/or pandas symptoms. And what it may lead us to, with whats going on with his immune system, genetics. He also go this T&A removed, and even though on Antibiotics still had a severe pandas flare post op. Of course his sisters had strep that week. I'm interested to hear if any others have experience anything similar to this.
  13. Flesh colored bump/ virus?

    My 3 year old son has had a flesh colored little bump on his lip since he was about 15 months old. It is not very noticeable, but noticeable to me. To me it looks like a wart. I showed his pediatrician a year or so ago and they were less then worried. I wonder if it was caused by a vaccine that contained a virus. Particularly the Chicken Pox or MMR. I was just talking to a friend whos son is about a year younger then my son, and he has the exact same thing. I am more concerned about the idea of it harboring a virus since my son has PANS (PANDAS), but many viral symptoms. Anyone else have this come up, especially at this age, or after vaccines? Any insight on what it is, or how it can be treated would be greatly appreciated. Bailey
  14. High dose Vitamin A

    I have heard a few people today on other forums talking about high dose Vitamin A to help with Viral issues. Mostly from MMR vaccine. The MMR is what put my son over the edge. He has recovered a lto but now dealing with PANDAS, and still toe walking, and eyes crossing. He shows many signs of Viral issues, especially according to Danasview. Someone said today that while their kids were on the High Vitamin A protocol for 2 days, they saw no toe walking in their child. I am so curious on this. Anyone here try this or hear from others who have?
  15. Ive read a lot lately about histamine brain levels. I would find a Dr. who runs IGG sub classes. they can tell about histamine levels form that but they need to know what to look for...This is a good article on the roles histamine levels can do... http://www.joanmathewslarson.com/HRC_2006/Depression_06/D_roller_coaster.htm
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