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Minnesota Mom

Members
  • Posts

    20
  • Joined

  • Last visited

Profile Information

  • Gender
    Female
  • Location
    Twin Cities Minnesota
  • Interests
    PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections

Minnesota Mom's Achievements

  1. To be honest she really isn't up on the latest research. I have had to do my own research and then relay the info to her. On the up side she is willling to learn and she does have an understanding of the whole concept. I am looking for a doctor locally to follow my son now that we are finished with the NIH research study.

  2. To be honest she really isn't up on the latest research. I have had to do my own research and then relay the info to her. On the up side she is willling to learn and she does have an understanding of the whole concept. I am looking for a doctor locally to follow my son now that we are finished with the NIH research study.

  3. Hi again. How is treat ment working with Dr. Bernstein?

  4. Hi Jeremy, I'm glad you found me, it is good to connect w/ other families in the area. We saw Dr.Bernstein at the U of M for the official diagnosis and initial treatment.

  5. Hi, I'm a western wi dad, 1 hr from the twin cities. I'm looking for a PANDAS doctor. Wondering where you got the pandas dx?

  6. MinnesotaMom-

    I'm a Minnesota Mom also and my son was also initially diagnosed with probable PANDAS (he had high strep levels in his blood, his tics came on suddenly, he sort-of regressed with behavior and his speech became garbled). He was put on antibiotics. Seemed to help initially (esp w/speech, behavior), but then leveled off. We decided to DC 8 mo. later. I'm unsure wheth...

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