Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010


  • Content count

  • Joined

  • Last visited


  • Rank
    Advanced Member

Profile Information

  • Gender
  • Location
  1. Lamictal

    My dd12 started Lamictal for mood when she was 11. It has been her wonder drug. We tried many before finding this one. But remember every child will react diff to medications. Our side effect was she would become tired at noon, but with a 1.5 hr nap, she would be back up and going
  2. Home Schooling

    I took my dd12, 7th grade, out of private school this year and we are using K12. They send parent workbooks with answers to each subject. You also have real teachers whom you can K-mail, or call personally for any help. So far we are making passing grades, and I'm not smarter than a 2nd grader
  3. My dd8 also did not like her psychiatrist in the start, she would walk in and lay face down on the couch refusing to look or answer anything the Dr. ask'd. It was very frustrating, but really showed our Dr. that we had serious problems ! After 2 yrs of visits, our dd10 started to loosen up and actually sit on the couch for a few minutes to answer questions as long as she could go play right after. Now at 4 yrs, our dd12 will actually sit and talk to her Dr. Everything that deals with treatment or help with PANDAS is slow moving. It takes time. Hang in there And Celexa proved to be our best friend over all the rest. But remember that every child can respond diff to each medication.
  4. Thanks, I have a friend who has a granddaughter that exhibits PANDAS symptoms, but when she told me she had been diagnosed with R A, It shook me a lil, remembering I had read about PANDAS and R A somewhere. I'm sure it was prob about the fact they are both autoimmune disorders. Thanks again.
  5. Does RA have any connection to PANDAS or PANDAS symptoms ?
  6. Sleep issues

    Melatonin was our only help. We used the strawberry fast dissolve 3 mg, and usually had to give 2 tablets. (12yrs old) We went through the same problem with sleep cycle. It eventually went away and resolved, but I still keep this wonder sleep aid in our med cabinet all the time for those occasional insomnia nights.
  7. PANDAS in families

    Im one of the very fortunate ones and have 3 children, and only one with PANDAS, the youngest is 7.
  8. Something else we added for dd's extreme violent rage was anger therapy, with a great therapist once a week. DD actually enjoyed going, because we found a seriously great therapist that made it fun for her, and it did help 50/50. Costly, but it did help us.
  9. Puberty and Pandas

    I PM'd you a short story of improvement with my dd's puberty.
  10. article on 3 levels of PANDAS

    not it, but close. Tnks.
  11. Can you help me find an interesting article I recently read that I have seemed to misplace. It is about pandas being categorized into 3 levels. Mild, Moderate, and Severe. I really need to find this article ! I know it was on one of the most used networks we all read. I first thought pandasnetwork. Thanks
  12. buspar did absolutly nothing for us, Gabapentin aggravated ocd's and phobias for dd11.
  13. neuropsych testing and school plans

    I am forever grateful we did this testing on our dd 9 at the time. We found a top pediatric neuropsychiatric dr that our insurance paid for, ($2500) Not only have we used this "very, very" detailed report for her 504 plan at school, but with her therapist, psychiatrist, neurologist, and pediatrician. I have copies on me for when we have to go to the er, for the er dr's to get a quick understanding of who she is. I have copies of every lab, hospital records, test, etc. and this report is by far the most important piece of my file. It also helped me to understand her much better.
  14. My dd 11 is VERY odd with her father, sister, brother, and ofcoarse especially me. We r in a private school, she refuses to go. We fought through public school up till this new school year with a 504 and a very great group of faculty at that school. We are running out of options here. We could also send her to a middle jr high school, but she would run away from there for sure, like really run away, she does this all the time in times of confussion and fear, threat. She has not learned anything in the last 3 years, my other thought is special ed classes, this really upsets my husband when i bring it up, but with the "high enlopement" threat, I think it might be a safer way, and I can see her "helping" the kids in that class, which would boost confidence. I think if i try to homeschool her, i will lose money in that just like we are in the private school. she is impossible !