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DandV

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Posts posted by DandV

  3. ASO Titre results - questions

    in PANS / PANDAS (Lyme included)

    Posted

    Thanks Colleen,

     

    No my daughter has not been on any meds for a long while. Is there something that I could print out and bring to the doctors to strengthen my case??

     

    Thanks

    Veronica

     

     

    Has your daughter had a throat culture, grown out for 72 hours? If not, I would get one asap.

    Low titers do not ever rule out PANDAS. A lot of children with PANDAS just do not get elevated titers. Many drs think if a titer is normal, that means the child cannot have strep, and this is very incorrect.

     

    Has your daughter been on any antibiotics since her behavior changed in January?

    Colleen

  4. ASO Titre results - questions

    in PANS / PANDAS (Lyme included)

    Posted

    Hi...I got the results back from my dd ASO titre. it said 60 <116 I'm assuming that 60 is her number and <116 is the norm range. What does this mean and where should I go from here?

     

    Long story short...January 1st she woke up a different kid. All the symptoms of PANDAS (of course I did not know about PANDAS until recently)

     

    Any comments.

     

    Veronica

  5. Diclectin while pregnant

    in Tourette Syndrome and Tics

    Posted

    I read something somewhere a while ago and I can't remember where or what I read but it mentioned something about Diclectin. So I was just wondering.

     

    Hey I was just wondering....I was on Diclectin while pregnant with my son who has a tic disorder. I am wondering if

    anyone else was on it and their child has the same issue.

     

    My daughter has also been diagnosed with OCD and Anxiety. I was on Diclectin while pregnant with her as well.

     

    Thanks for sharing.

    Veronica

     

    Hi Veronica,

    Yes I also was on Diclectin with 3 of my 4 pregnancies due to extreme morning sickness...each preganancy lasted longer. My son, being my first, is the only one I was NOT on Diclectin with, at least I have no record of it and am quite sure I was unaware of it at the time. I cannot say with 100% certainty but am pretty sure... and he is the one with Vocal Tic Disorder. I delayed immunizations with all my kids, nursed for well over a year, seemingly did all the right things...sometimes I think there is just the wrong cocktail of "things" that trigger a response we have no control over, whether genetically disposed or other. Two of my girl have also shown signs of transient tics and sensitivites and I continue to watch and hold my breath. Can I ask what had you asking about Diclectin? To be honest it wasn't something I really questioned even after his tics emerged (he was around 5) funny because I questioned everything else !!(which again makes me believe I didn't use it with his pregnancy) but I too would love to hear if others used it or something similar.

     

    Megan

  6. Diclectin while pregnant

    in Tourette Syndrome and Tics

    Posted

    Hey I was just wondering....I was on Diclectin while pregnant with my son who has a tic disorder. I am wondering if

    anyone else was on it and their child has the same issue.

     

    My daughter has also been diagnosed with OCD and Anxiety. I was on Diclectin while pregnant with her as well.

     

    Thanks for sharing.

    Veronica

  7. New Member needing help

    in PANS / PANDAS (Lyme included)

    Posted

    Hi all,

     

    I'm new to latitudes so bear with me if I am not in the right place.

     

    Our resume:

    13 year old boy - tics - they are terrible right now and starting to affect his school. DX when he was 10. They seem to really bother him at the moment. Lots of vocal tics. I can hear him while I am on the main floor and he is in basement.

     

    10 year old girl - Sudden onset of OCD and Anxiety at New Years. We are looking into PANDAS. Just waiting for bloodwork to come back next week.

     

    10 year old girl - Anxiety, ADHD and Learning DIsability.

     

    1 very stressed out Mom and 1 very stressed out Dad lol

     

    Suggestions on Natural treatments? I have read about LCD tv's are better for the tics. What about florescent lights? Do they have an affect on the tics? Thinking of going Organic/ or semi organic anyway. (it's expensive)

     

    We live in Hamilton, Ontario. Would a Naturopath be helpful. My son wants to go on medication for the tics. I am not really keen on that. Any suggestions for types of testing I should be looking at as far as blood tests, allergy tests etc?

     

    Thanks

     

     

    Posting in Tics/Pandas/ADHD/LD

  8. New Member needing help

    in Obsessive Compulsive Disorder

    Posted

    Hi all,

     

    I'm new to latitudes so bear with me if I am not in the right place.

     

    Our resume:

    13 year old boy - tics - they are terrible right now and starting to affect his school. DX when he was 10. They seem to really bother him at the moment. Lots of vocal tics. I can hear him while I am on the main floor and he is in basement.

     

    10 year old girl - Sudden onset of OCD and Anxiety at New Years. We are looking into PANDAS. Just waiting for bloodwork to come back next week.

     

    10 year old girl - Anxiety, ADHD and Learning DIsability.

     

    1 very stressed out Mom and 1 very stressed out Dad lol

     

    Suggestions on Natural treatments? I have read about LCD tv's are better for the tics. What about florescent lights? Do they have an affect on the tics? Thinking of going Organic/ or semi organic anyway. (it's expensive)

     

    We live in Hamilton, Ontario. Would a Naturopath be helpful. My son wants to go on medication for the tics. I am not really keen on that. Any suggestions for types of testing I should be looking at as far as blood tests, allergy tests etc?

     

    Thanks

     

     

    Posting in Tics/Pandas/ADHD/LD

  9. New Member looking for help

    in Attention Deficit Disorders

    Posted

    Hi all,

     

    I'm new to latitudes so bear with me if I am not in the right place.

     

    Our resume:

    13 year old boy - tics - they are terrible right now and starting to affect his school. DX when he was 10. They seem to really bother him at the moment. Lots of vocal tics. I can hear him while I am on the main floor and he is in basement.

     

    10 year old girl - Sudden onset of OCD and Anxiety at New Years. We are looking into PANDAS. Just waiting for bloodwork to come back next week.

     

    10 year old girl - Anxiety, ADHD and Learning DIsability.

     

    1 very stressed out Mom and 1 very stressed out Dad lol

     

    Suggestions on Natural treatments? I have read about LCD tv's are better for the tics. What about florescent lights? Do they have an affect on the tics? Thinking of going Organic/ or semi organic anyway. (it's expensive)

     

    We live in Hamilton, Ontario. Would a Naturopath be helpful. My son wants to go on medication for the tics. I am not really keen on that. Any suggestions for types of testing I should be looking at as far as blood tests, allergy tests etc?

     

    Thanks

     

     

    Posting in Tics/Pandas/ADHD/LD

  10. NEW Member looking for help

    in Tourette Syndrome and Tics

    Posted

    Hi all,

     

    I'm new to latitudes so bear with me if I am not in the right place.

     

    Our resume:

    13 year old boy - tics - they are terrible right now and starting to affect his school. DX when he was 10. They seem to really bother him at the moment. Lots of vocal tics. I can hear him while I am on the main floor and he is in basement.

     

    10 year old girl - Sudden onset of OCD and Anxiety at New Years. We are looking into PANDAS. Just waiting for bloodwork to come back next week.

     

    10 year old girl - Anxiety, ADHD and Learning DIsability.

     

    1 very stressed out Mom and 1 very stressed out Dad lol

     

    Suggestions on Natural treatments? I have read about LCD tv's are better for the tics. What about florescent lights? Do they have an affect on the tics? Thinking of going Organic/ or semi organic anyway. (it's expensive)

     

    We live in Hamilton, Ontario. Would a Naturopath be helpful. My son wants to go on medication for the tics. I am not really keen on that. Any suggestions for types of testing I should be looking at as far as blood tests, allergy tests etc?

     

    Thanks

     

     

    Posting in Tics/Pandas/ADHD/LD

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