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kthomas

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    kthomas got a reaction from SSS in Are your PANS/PANDAS kids ever symptom-free?   
    DS10 has had PANS for 5 or more years. In the 5 years, this is the first time that I have seen him 98% tic free, urinary frequency free, OCD free and anxiety free. It has been a long, long time since I have seen him so relaxed. That being said, he normally backslides when school starts in the fall. So Fingers are crossed. To me the big change has been finding the source of the infection. He had been on a daily dose of azithromycin, and it was making his PANS manageable, but he still had urinary frequency and tics indicating an underlying infection. So thanks to this forum and the kind parents who answered my call for help, I got contact information for an integrative doctor that suggested that my son had Lyme. IGENEX testing confirmed the suspicion and answered the riddle as to why he kept getting viruses. DS10 is 8 months into Lyme treatment, off abx and progressing. Treatment now consists of herbal abx and supplements.
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    kthomas got a reaction from rowingmom in Are your PANS/PANDAS kids ever symptom-free?   
    DS10 has had PANS for 5 or more years. In the 5 years, this is the first time that I have seen him 98% tic free, urinary frequency free, OCD free and anxiety free. It has been a long, long time since I have seen him so relaxed. That being said, he normally backslides when school starts in the fall. So Fingers are crossed. To me the big change has been finding the source of the infection. He had been on a daily dose of azithromycin, and it was making his PANS manageable, but he still had urinary frequency and tics indicating an underlying infection. So thanks to this forum and the kind parents who answered my call for help, I got contact information for an integrative doctor that suggested that my son had Lyme. IGENEX testing confirmed the suspicion and answered the riddle as to why he kept getting viruses. DS10 is 8 months into Lyme treatment, off abx and progressing. Treatment now consists of herbal abx and supplements.
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