ksole
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Posts posted by ksole
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We lead a "normal life" I have 2 children with lyme induced autism and I have an amazing newborn that will never be vaccinated in the hopes that it will not trigger and immune respons to congenital lyme as the vaccines did with my other children. I keep the immune systems up with probiotics and not all the junkfood, epsom salt baths, my son follows gf/cf and he attends aba and will attend kindergarden in the fall with the diagnosis of adhd at the most.
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I agree ! I gave my son a parasite cleanse for many many months after seeing the parasites thru nutritional microscopy, we now do them in spring and fall as directed by our naturopath. I use kroger herbs -wormwood combination, and paragone kids.
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When my daughter was born she had to have a constant loud vacuum cleaner running our she would wake, and she was only content to zone out to baby einstein movies- after several years and vacuum cleaners...I learned from my son's occupational therapist that she had sensory processing disorder with a low sensory threshold. After treating my son for lyme induced autism, I began the antibiotic treatment on my daughter. They nolonger have the sensory diagnosis but it was not a diagnosis that my peditrician was able to make.
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I have a boy that just turned 4 with lyme induced autism, when I treated him with GSE he spoke the next day. We have been doing naturals and antibiotics and he is off all and attending a daily ABA program and is a miracle.He is doing well and speaking.
My 7 year old girl was also born with lyme and she is under antibiotic treatment and herbal she is extreemely emotional and that seems to be when the bacteria stirs. We have seen marvelous results thru treatment.
I have also found it helpful to do a parasite cleanse.
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Yes, Thanks- I did find them to be expensive but the Dr. said they are what helped her get off her antibiotics for lyme
This is the Beyond Balance Formulas, yes?
And you can do a salvia test?
I have personally used their Bartonella formula, thought it was really good.
I did call to get a kit for the saliva test for my dd (send it to you free, but send it back with a healthy check.)
I decided not to do it for her- but we are on detour of a sort.
'The Better Health Guy' (google)
worked with Susan M., did the saliva testing and used her Beyond Balance Formulas.
You can read more about it there--
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My 7 year old daughter has been treated for Lyme and bart with abx for some time and her dr. recommended the McCamish Protocol. It is formulated by a dr who treated her son for lyme and they are only sold to drs. We purchased the liquids and detox caps that are to aid her in weening off the meds.
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Has anyone here tried the Cowden protocol? Any successes/failures to report? I'm trying to figure out next steps because my GP is not on board anymore with aggressive antibiotic treatments. I'm trying to decide if we're going ahead without him, or trying another angle. I would love some feedback! Thanks!
I have a 3 year old son recovering from lyme induced autism and before I could get him to an LLMD I treated him with 1 dropper holistic cats claw daily and 1/2 tsp twice daily colloidal silver. I had tremendous success with increased eyecontact vocalization and massive herx reactions. The colloidal was very calming and reduced his constant movement and patterns. Once we started the antibiotic therapy I discontinued the cats claw and colloidal. He is currently off medication and progressing well.
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Thank you for sharing your experience, I thought it was a long time for my daughter to have such a painful herx but now I see it can continue for days. I know we are just starting so I am sure there is more to come but atleast I have hope ! Thanks !
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My daughter 7, was having what I believe as a herx on day 10 of bactrim/zithro. At night she was in pain that was in her shins that was nonstop until I gave her motrin, the next morning she was still hunched over and afraid to put pressure on her shins, once again I gave her the motrin and the doctor said it was very common with the bacteria to cause shin pain. Has anyone experienced this? Just wondering if there was any suggestions, I also gave her an epsom salt bath and she drinks lemon water and probiotics. Thanks
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I would like to ask if there are any thoughts on my 7 year old daughters IGENEX results -
igm
30 +
31 ind
41 ind
igg
31 ind
39 ind
41 +++
41 ind
I took my daughter to the ilads trained doctor and got a clinical diagnosis of lyme and bartonella, we are starting treatment with azith and bactrim. She has suffered vision issues with tracking and vision loss, shin pain, and lack of balance along with being very emotional and at times nervous and very sensitive overall.
My 3 year old son is recovering Lyme Induced Autism. My son is now off antibiotics after 1 year of treatment and doing well!
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I was coming to post this same article, I loved it since it is what we are going thru. My son has lyme induced autism and is recovering !
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Great to see the progress ! I know what you are going thru, we have been treating for lyme induced autism and my son will be 3 1/2 and we are month 9 of antibiotics and prior to that I did naturals for 3 months with great success. Last week my son let me trim his nails ! I do still cut his hair when he is asleep
Good luck !
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When I took my toddler son to the natropath last year for his AUTISM she saw a greying on his cells that she thought was lyme -the natropath had me give him about 1/2 TBS of earthborn products (100ppm) twice a day and when I told her he was getting better and his autism was getting better I then rotated in a dropperfull of catsclaw once a day and he had a massive herx.....I took him to an LLMD. He is now on antibiotic thereapy and a gluten free/ casean free diet and doing amazing !
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We used NUTRITIONAL MICROSCOPY from our natropath and she detected LYME under the microscope on my toddler son. It was amazing and got us on the path to treat his lyme induced autism, she also detected my niece's gastro lyme. However our natropath has lyme but did not know she had 2 co-infections, she said she cannot detect them under the microscope. This test is immediate in that you can see parasites, yeast, EMF damage,free radical damage and she was able to see how my daughter was digesting her food and not absorbing her vitamins. There is live and dried blood collection. The cost was $50.00 but gave me answers I would have never had.
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I just returned from my son's lyme dr and after 8 months of lyme treatment he is speaking NONSTOP- we are continuing to treat- so I asked the dr. about my 7 year old daughter. She is completing her 6th month of vision rehabilitation therapy with a DAN doctor and she needed glasses with a hefty script. When she was a toddler she had a mystery illness that she had so much pain she could not walk for a few days but it was before she could speak. Since birth she had numerous sensory issues and would not sleep and when she did it was only with a loud vacuum and when it stopped she awoke. So I asked the dr. for an Igenex test kit for my daughter. The dr. felt Lyme is highly possible especially with my son having lyme induced autism. Has anyone's child had vision and tracking issue due to lyme or have any insight? Thanks !
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Thank you ! I am happy to know that you daughter is better, I do not know of anyone else in our situation and just wanted to put some hope out there !
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We have been treating my 3 year old son for lyme induced autism and we are beginning month 8 of treatment but most recently I removed his multivitamin from his a.m. lineup and the cefdinir was able to do it's job! When I switched pharmacies, the bottle clearly listed wait 2 hours for minerals and I think this was the key. He had receptive language and signs but rarely used his words. He attends daily ABA therapy and when I moved the multi vitamin the language exploded ! We see his dr. on the 11 and I can't wait until she hears his words !
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Glad to hear your success ! I placed my then 2 1/2 year old son on the GF/CF diet and on day 5 of the diet he did over 20 sign language signs. Prior to the diet he lost words and would just stare at the sign language dvds. He was diagnosed with pdd/nos and we are told that that label may not apply at his reevaluation. However, the dr. that we waited on a 1 year wait list for was not into the diet and found it a coincidence. I have done biomedical theripies for my son and he is doing well in aba thereapy. We have been on the diet for 10 months and find it to be very beneficial along with the addition of probiotics.
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I don't think so , I checked back thru my email. I am going to Albany with my son on Thursday 26 of this month, and we are new to this as of January and was wondering (I know each child is different) but...aprox how long is the recovery ?
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Thank you for the article, my son is treated for his lyme induced autism in Albany and I found you article hopeful !!!
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We use coconut oil but had not tried the water.
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did you test for coinfections? My son's igenex test showed him positive for a coinfection that had I not tested would have gone unaddressed.
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My son is not just like yours however I lost his connection after his vaccines at 18 months prior to that he lost words/babble after the rounds of vaccines. He became diagnosed with SPD and PDD NOS .
I knew that something was wrong on the inside and I looked to a natropath for answers one day after I gave my then nonverbal son a few drops of Grapefruit seed extract on a whim.
He spoke that day at age 2 1/2 and said "I'm stuck".
The natropath did nutritional microscopy and we placed him on a gf/cf diet and I give him daily epsom salt baths. Later visits revealed spirochetes and led me to IGENEX testing for lyme disease and coinfections. We are on a course of treatment with an ILADS trained doctor that has left him more settled and more verbal with fantastic eye contact and on his way to recovery from lyme induced autism.
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So Glad you had a great visit !!!
Children - treatment and outcome
in PANS / PANDAS (Lyme included)
Posted
no, I just took sodium selenite and probiotics, my daughter was born with sensory processing and had to have the vac on and was awake the moment it was off, no doctor believed me that she had an issue, and as I vaccinated the issues became worse. My new baby son seems to have some colic due to being a preemie (born 1 month early due to my blood pressure)but hopefully with the lessons I have learned and the information I have aquired I can help him in the event of an issue