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SSS

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  1. Like
    SSS reacted to Chemar in Lemon Balm   
    We grow our own lemon balm and one can also make a soothing tea with fresh leaves or even just chew a leaf when feeling stressed!
  2. Like
    SSS reacted to tpotter in Prom   
    Just dropped DS off at the prom. He's going with several friends. Never would have dreamed this several years ago.
  3. Like
    SSS reacted to filinha1 in Glass Children   
    This is a great reminder that all kids benefit so much from regular interaction with caring adults other than their parents. One of my aunts told me a story about being at her eldest son's college graduation party. She said she had numerous conversations with friends of his who kept telling her what a great sense of humor her son had and that he was easily the funniest guy in the class. She reported being stunned that her 'shy and quiet' son was the same guy his friends described; 'I just couldn't believe it', she said. It's so easy for kids to get typecast in a role determined by their immediate family - the 'good' one, the 'smart' one, the 'athletic' one, the 'ill' one.
     
    Sometimes the kindest thing we can do is to release them into the custody of people who allow them to express the fullness of their minds and spirits and to break loose from our loving chains.
     
    Heather
  4. Like
    SSS got a reaction from JuliaFaith in Glass Children   
    It's an interesting topic- I did not watch the video, as I am next to PANS child,
     
    who has a younger sister who by all means is not looked through- I find the opposite- the neurotypical girl is more outgoing, engaging, and often commands the attention in the room with this charming nature,
     
    while the anxious pans child floats in the background - relative adults a bit unsure how to approach her, or if she wants to be-
     
    I have 3 kids, and it is a dance. Ironically, it is my oldest, straight A accomplished son I have had to concentrate on lately with 'growing up' pains. Just this year he joined an activity I insisted on driving him to and from every day, just so I can get alone time in the car with him- which had become almost rare. It means a lot to me, to just be alone with him.
    I do think we expected more from him, simply because he gave us higher standards- and the age difference played a role, too.
     
    It goes by very fast- hug each one, and let them each know how much they are loved.
  5. Like
    SSS reacted to LNN in Am I being dumb but where did the Lyme forum go?   
    JPdad - I have to disagree and PANS and lyme being two different things. Pandas was renamed PANS due to a number of parents reporting back to Swedo et all that Lyme and mycoplasma and other things were triggers. The Lyme spirochette and the strep bacteria both share very similar M proteins on their outer surface which show up in research as potential agents in molecular mimicry, as the basal ganglia, heart and other human organs have similar-looking M proteins. So biologically, there's a lot of similarity between the two bacteria and how they may cause neuropsych symptoms. Yes, they are two different bacteria, but cousins in many ways. So Lyme is part of the PANS umbrella.
     
    That said, as Rowingmom points out, the treatment paths can be different and I can see where those conversations would be frustrating for a non-lyme parent. But not much different than my needing to skip threads about IVIG - I don't share the majority view on that particular treatment and so I avoid those threads as I usually have little to contribute to the discussion.
     
    I like the idea of having one place to share conversations about methylation, diet, detox et al. But if having one combined forum causes people to stay away, that would be unacceptable. But it is interesting that for the past few weeks, conversations on both forums had died down. Since the upgrade and combined forum, the conversation seems re-invigorated. Maybe it's a short-term effect. I didn't see the FB thread but I too cringe when I hear sweeping comments about Lyme - and I'm a lymie. It makes me shy away from posting anything on FB - the whole tone is snarky and catty and I hate having conversations in sound bites. Which is why keeping this forum a "safe haven" is so important. The more forums I visit, the more I appreciate how unique this forum is in terms of civility and educated parents. Regardless of whether this stays one forum or goes back to two, I certainly appreciate having this place to call home. If it weren't for all the zany, geeky, passionate ideas that have been thrown at me over the years, my kids would not be (almost) well now.
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