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Everything posted by whyPANDAS

  1. just started Rituximab for son, who has long history of tick borne illnesses. and PANDAS. He is 21. He has been severely agitated for a couple months since stopped antibiotics and IVIG. He is blown up by Prednisone. Mayo Clinic recommended this but seems not to acknowledge possibility that TBI may still be present. Son having breathing problems...wonder if it is Rituximab, Prednisone or may Babesia which has reared its head.when he is immune suppressed by Prednisone. Very upset and don't know where to turn. Dont know anyone whose child has had rituximab. Would appreciate any communication.
  2. Each child, I assume, might respond differently. As a note of caution (I had no idea this could happen....) our child developed Cushing's syndrome from the high dose 6 week steroid taper, also developed physiological addiction to Prednsione and six months later, we are still trying to wean him from hydrocortisone (prescribed by the endocrinologist instead of Prednisone to try to wean him from the stronger Prednisone.) Our child gained over 40 pounds and is still trying to lose this weight. He has finally lost his moon-shaped face characteristic of Cushing's syndrome. The Prednisone to
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