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sarafurr10's Achievements

  1. Hi my name is Sara.... I am the mother of a 7 yr old boy named Gage who was diagnosed with PANDAS last Feb 17th, 2010. That had to be one of the worst days I have ever had. I am not looking for the magic pill, for I know it doesn't exsist. I am just here looking for some other helpful advice or suggestions from fellow PANDAS parents who I know have gone and are going through the same things as we speak. We are all in the same situations... maybe we can help each other make it through together. I myself have been dealing with a PANDAS eepisode now since the start of school in AUGUST of this year. Gage has been on Keflex for three months now and he is not getting any better. He is allergic to Penicillin so that knocks out a lot of antibiotics they like to use. He gets SEVERE onsets that include the not so typical visual and sensory HALLUCINATIONS along with it. He has seen everything from snakes to feeling things crawling in his clothes. He has severe ANXIETY(including seperation), OCD, ODD, rage and anger flares, bouts of confusion, ADHD, crying spells, night terrors, diminished handwriting and comprehension during episodes, and the list goes on and on and on.... he won't sleep by homself, he can't be in a room by himself, he won't go to the bathroom by himself, he has to carry his blanket to school everyday just to go to school when he is not sick and can go... he has missed his allowed days of school for the WHOLE YR ALREADY and he has only been in school for 3 months?!?! I go to the Dr atleast every week or every other with him. We are definately there every other week though. I go days without sleep staying up with him... because everytime I hear him I wake up and then I can't sleep... is anyone else having this same problem? I just want to know what other ppl are doing. My prayers to you all! Gage's mom!
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