Wilma Jenks
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Posts posted by Wilma Jenks
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what is CamKII?
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I know whatcha mean. Thank God he does not realize what their doing.
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My child has never been able to leave the TV. When she does... he just spins in circles trying to get dressed. She has finally been able to tell me that she has too many thoughts popping into her head. They come one after the other and she can't shower or get dressed. There is tons of confusion. None of the seizure, bipolar meds have helped. Could this be yeast and what can be done about it, other than wait for yeast to come after control?
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It has happened so many times here, that at times I think I am just numb. After ten long years of watching her make/lose friends has been so depressing.
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Kids keep pushing my child away, and have no interest in her, because she is slow, or too aggressive. It never seems to make her sad. She just keeps going back. Is anyones child like this?
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Can anyone tell me if they saw insomnia get worse when taking either of these medicaitons. I am really hoping things improve over her with sleep.
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What do you people use for sleep. I can never get my girl to sleep before midnight. Melatonin and seroquel do not knock her out.
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She has been on Azith (250mg.), for a month.
On Nystatin since Dec 21st
Probiotics for 3 days. Started at 50+ Klaire, then down to 25+
This is her schedule:
10:45am Nystatin and Probiotic (25+)
11:45am 1 -Charcoal
2:00pm Azith., Nystatin and Lamictal.
3:00pm 1-Charcoal
7:00pm Nystatin
8:00pm 1 Charcoal
9:00pm 3mg. Melatonin, 25mg. Seroquel
first day on azith. she slept that night. she was really hyper with the stuff though. added nystatin and she calmed for a few days and was really mean. added 6 charcoal per day and things looked good for awhile, then wild again when the charcoal was lowered. then addded probiotic and she is not as wild, but she is always ready to tease or do something kind of sneaky, and insomnia is out the roof. she never slept well at night but i was able to get her to sleep with the melatonin. now she is super wild and not sleeping until 1am. i believe the probiotic is a big part of this. doctor doesn't want her on so many charcoal, but what else do you do?
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There are two titles:
Curing the boy who caught OCD and...
A mothers fight to cure her son's OCD.
does it matter which one i get?
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Thanks. I agree with what you have told. Some foods for sure trigger the hyperness. I am working with a specialist who is probably going to take her off seroquel. He thinks the lamictal is good for the spikes on her EEG. His name is Scott Smith, and I feel really good about him being on board to help us. People have mentioned some other specialists, that I may look into at some point too. thanks so much. I think I see a little improvement with her. She seems to coming out of her little world a bit. Very hyper, but couldn't this be dye-off too?
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my child bounces off the wall with whatever we try. from psych. drugs to any supplements. can anyone relate to this?
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Sometimes probiotics can cause GI upset when you first begin. Do you think it is an upset stomach or intestinal problems that are keeping her awake? "NO" What probiotics are you using and how many units? "KLAIRE LABS DETOXIFICATION SUPPORT- 50+ IT SAYS ON FRONT) (they come in billions of units).
-Nystatin and azith should not cause stuffy nose, but reflux can if the probiotics, nystatin, and / or azith are not agreeing with her stomach.
-What antibiotic was she on prior to azith? "NONE"
-It is also possible that she contracted a virus at the same time that you started the new medications and supplements.
-Did you JUST start nystatin? "BEEN ON IT FOR A 8 DAYS" I may be confusing you with someone else, but I thought you were using this for a while. Please post the amount of each medication / supplement, how many times a day you give it, and when you started it. That will help others to help you.
Nystatin 500.000 units - 3x daily Been on for 2 weeks
Azith 250mg - 1x daily Been on for a month
1-Charcoal 3x daily
3-6mg. Melatonin bedtime
25mg. Seroquel bedtime
Klarir detox support 50+ CFU’s (one pill in the morning) Been on for 2 days.
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Started the probiotic yesterday and she was up until 2am. Is this normal. Also... since starting the azith, nystatin and probiotics, she has a REALLY stuffy nose. Could the meds. be causing this? Her MRI shows sinus infection but she usually never has any symptoms.
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Is it just PANDAS that he has? It is a horrible disease.
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CZL----What are you using for sleep? She DOES NOT get tired. At about midnight, she gets a bit tired, and that is with 25mg. Seroquel and about 6mg. of melatonin.
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thansk. where is doctor Bouboulis? in the last four or five months, we have tried: lamictal, inositol, luvox, celexa azith. seroquel. Before that: depakote, trileptal, gabapention.
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my girl can sit for a little while and then she starts getting really wild and agitated. She gets really annoying and never shuts up. Starts to drop thing or stick food in your face. Really impulsive. It gets so much for her to handle that she then just sits in front of computer to try to calm herself. Her pupils also look diatlated. We have tried many psch. drugs and non work. Does this behavour look like PANDAS to you? Could this be yeast doing all of this. Just need some reasurrance.
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yes she had those symptoms from the start. doctor wants her on lamictal because of the abnormal EEG. the seroquel does worry me. i don't think it helps with sleep, and it may be making her mean. the abx and nystatin are helping. she for sure needs someting, because without any meds. or supps. she is violent, and sits in front of a tv all day, because she is totally overwhelmed, agitated etc... she is house bound, when not on anything. it's bad over here.
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9:45am Nystatin
10:45am 1 Charcoal
12:45pm Azith., Nystatin and Lamictal
1:45pm 1 Charcoal
3:45pm Nystatin
4:45pm 1 Charcoal
6:00pm Probiotic
9:00pm 3mg. Melatonin 25mg.Seroquel
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I am so sorry for you and your friends family. Please don't go away for long. We need you!
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Below is what my girl is taking. During the day she is a bit better than she was, although you can tell that she is right on the brink of squirting you in the face with a hose, or whatever. Your on pins and needles waiting for something to happen. Come bedtime, after I give the seroquel she starts to get really uninhibited and starts putting on sexy clothes. She get really impulsive too. I am not sure what it is. Any suggestions are really welcome.
9:00am Nystatin
10:30am 2 Charcoal
12:00pm Azith. & Nystatin
12:30pm lamictal
1:30pm 2 Charcoal
3:00pm Nystatin
4:30pm 2 Charcoal
6:00pm Nystatin
8:30pm 1.5 mg. melatoin
9:00 pm 1.5mg melatonin
9:30pm 25mg. Seroquel
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OK. So giving her 6 per day. For a few weeks is ok?
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do yoiu guys give into the cravings and give sweats. i use to be able to calm her but she is so big and does not give in. ugh!!
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pharmacist said to give the azith. 3 hours apart from nystatin. i will try giving both together. i will also up the charcaol. thanks. her insomnia is getting worse and i am starting to wonder if its not the lamictal doing it.
How long does it take?
in PANS / PANDAS (Lyme included)
Posted
Right now she is on:
9:45am Azith (250mg.) and Nystatin 500,000
10:45am 1 -Charcoal
12:45pm Nystatin and Lamictal. (5mg.)
7:00pm Nystatin
8pmpm 1 Charcoal
9:00pm 3mg. Melatonin, 25mg. Seroquel Probiotics
I see some things improve, like she is not as stuck in her own little world. She is not ransacking the cabinets for sugar, she is not running into the street at midnight, but she is impulsive. She stuck her already chewed gum into my mouth. She has us on pins and needles. How long does it take to see some good improvement? I started the antibiotcs and treating of pandas on december 4th. Is it too early to see really good results? I guess I just need some reassurance. thanks