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Wilma Jenks

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Posts posted by Wilma Jenks

  1. my little girl had a friend for the whole summer. i was so excited cause she never had one. well this one is gone too, since my daughter could not stop obsessing about the little girl copying her. the girl dumped her and i am broken hearted once again. i think i feel the pain more. when will things ever get better for her. ugh

  2. i believe i read that dr. jones said babies that have congenital lyme are limp at birth etc. my child was not limp but was super agitated on day one. my child was diagnosed with bartonella. she never had earaches and is never sick. she looks so normal, except she always had dilated pupil, pale face, red bags under eyes. very distorted thinking, confusion, hallucinates. i tested positive for lyme. i have some of the same symptoms but she is 100 times worse. non functioning. sometimes i wonder if this is all bartonella.

  3. on mood stabilizers, my child can look like the golden child in school. she is soooo stiff and sits in her seat and does not mood for fear of having her world fall apart, so they all think she is perfect. meanwhile she is obsessing about "one" thing all day long and can't learn a thing. and then comes home and is so out of control and psychotic it isn't funny. i have a support system here, but not sure if their tough enough. i will keep you posted.

  4. "stuck." She spends the whole day just staring at one show over and over. Or obsessing about someone she hates, over and over. Never stops. She is stuck in house and the school is pressuring me to get her there. They don't understand how scrambled her brain is. I hate them sometimes. There telling me that their worried she will fall too far behind, and I am worried that she is so damn confused that she can't get from the house to the car without banging into a tree. THEY JUST DON'T GET IT!!!!

  5. the bactrim is making my child way too aggressive. I see her getting worse. I know others have had this happen with Bactrim. Please tell me what you tried next???? Have some of you given up on the bartonella diagnosis after lots of failures with abx. Need some support. Thanks so much. I am so disappointed. She has been on this stuff for almost 4 months. On the dose I need to get her to sleep she gets toooo aggressive. You can't live with her. Adding probiotic does not work. All meds and abx. thus far have made her more aggressive. Ugh. I hate that this happened to this lovely girl. I am so mad at the world right now. Thanks for listening!!!

  6. the bactrim is making my child way too aggressive. I see her getting worse. I know others have had this happen with Bactrim. Please tell me what you tried next???? Have some of you given up on the bartonella diagnosis after lots of failures with abx. Need some support. Thanks so much. I am so disappointed. She has been on this stuff for almost 4 months. On the dose I need to get her to sleep she gets toooo aggressive. You can't live with her. Adding probiotic does not work. All meds and abx. thus far have made her more aggressive. Ugh. I hate that this happened to this lovely girl. I am so mad at the world right now. Thanks for listening!!!

  7. when i added the bacterium, it made her mean,

    then i added in the minocycline and it made her less mean, but she is constantly agitated and obsessing about people that are copying her or giving her dirty looks. with these antibiotics, i saw her begin to shower and she seemed to sleep a bit better. my question is...if these antibiotics seem to help some things, but are making her too aggressive, are there other abx. that they can try that perhaps will not make her so mean and uninhibited? it is about 4 months on this stuff. when is it time to move on???

  8. My sister can not afford to use Igenix. I really thing she suffers from Lyme or bartonella. Is there a less expensive test called CD57, and is it reliable. Also, what if she tests negative on the tests, and we really feel she has all of the symptoms of Lyme. I am sure her doctor will not treat he if the results don't come negative.

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