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sacklesb

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  1. You've been more than helpful!! Plus, I heard back from Dr. Margo Theinemann as well!! It's looking brighter and will persue all! Stay tuned, Barb
  2. Forgot to mention, we live in San Jose, Ca., Barb
  3. Hi Everyone, Originally joined Latitudes in Fall 10 when my son's odd symptoms started to blow up-but was concentrating on the tic end of things as thats where the Drs led us. Well here we are 3 full years later, neurologists, psychiatrists ENT, allergists, Gastros, CBT and we're worse off than ever. Been to UCSF where Dr Lowe didn't think that Nick's most disruptive symptom of randomly gagging and retching (no nausea or vomiting, though when it gets intense and frequent-like now- hard to eat. It comes and goes for no reason)) was a tic, even though Ped and one neurologist at Packard did???
  4. Nola, I was just returning to the Latitudes site to see if there have been any new responses to my inquiry when I saw yours. Not sure if you have solved your Dr. problem but we have been looking for an "expert" in the bay area as well. We are schedulled to see Dr. Thomas Lowe at UCSF. He runs a Tourettes and Tic Disorder Clinic there. Not sure what the outcome will be but thought I'd relay the info to you anyway, Barb S.
  5. Has anyone's child had the tic displayed as retching or gagging? Son has been able to contro l these with mints or water until 2 weeks ago when they manifested into dry heaves- he's not at school as he has these all day, any help would be sooo appreciated, thanks
  6. Thanks GAT, As I sit with Nick doing homework he's had to have 3 mints to keep from gagging. Its the weirdest thing. I just gave him a dose of Motrin as someone said to try that to see if things quiet it. So looking forward to Saturdays nuerolgy appt. for more insight. Love this network because,now that I've found it,I'm on it lots and looking elsewhere over the net for more info, Sincerly, thanks,Barb
  7. Like everyone, I'm so sorry you, your child and your family are going through this. Like Emmalily, my son whose 16 is tripped up often with a gag reaction. Also like your son, he spits when the gag reaction is at its worst and it will often be the catalyst to a full blown panic attack. While he's better now, there was a day when he was highly sensitive to tags/seams/rough clothes/heavy blankets or coats. Just writing to tell you that bad as it is, you aren't alone and there are people here who will understand to the point of giving you understanding of his condition.
  8. Hello- I am new to this forum as of last week and was browsing when I came across your post. I am from San Jose and have just found out from our Ped that my son has a probable case of PANDAS/PITANDS, I am wondering if you found help, as I see your post is older, and how things are. I am still wary as we meet with PANDA friendly nuerologist Sat. Has your daughter recovered? Barb Sackles
  9. Hello Everyone of you who have kindly sent your support! Good news, we went back to the Ped today and she strongly suspects a PANDAS or PITANDS- she even got the PANDA-friendly Neurologist appt moved up to Sat.! I have not felt this relieved in 12 days! Emalily, I was SOOOO glad to hear your concurrence of symptoms-cuz they are weird- but the Ped. says its a nueromuscular reaction- no nausea, just spasming-GROSS feeling for sure- and Nick can't wait to kiss them goodbye as they're what's keeping him from school for the most part. We did the 2 blood tests that are recommended as well. She ment
  10. Thank you so much- I stumbled on to this forum after spending the last week pouring myself in the web for answers to my son's unstoppable gag refelex- roadblock after roadblock. I hope to find a faster route to testing for PANDAS and get the ball rolling in that direction as all others seem like dead ends and I just can't wait a month more. Its taking all I have to get through, much thanks,Barb
  11. My son is 11 yrs old and for the last few years he has been dealing with a gag reflex that comes and goes throughtout the day not connected to anything we can notice, he managed with sips of water and mints but things got worse last week. He seemed to have lost control of managing them and had to leave school a cold overlapped and the gag feeling manifested into dry heaves. The cold has subsided amd dry heaving has stopped but his gag reflex has made our lives upside dowm. I'm bawling as I write. He's such a strong guy,I'm worse off than him. The ped thought PANDAS and I never heard of it
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