A quick history, Pandas diagnosis for my 9 year old two years ago. 8 IVIGS, numerous combos of antibiotics, tested for everything, no co-infections, Igenex Lyme tests, negative twice. we are currently trying yeast next. No improvement yet. So we have been treating the OCD with prozac and have seen some improvement. He is still on Augmentin twice a day, that seems to keep tics away. Other than that, his therapist, a child psychologist, did some evals and just diagnosed him with ADHD. He is so hyper and can not focus at all. So now he is on Prozac, augmentin, difflucan and they want us to try ADHD medication. I am at the end here. We see Dr. B again at the beginning of Dec. But there isn't anything much else to do. School is hard because he can not focus. We are trying some behavior plans at home, we will see how that goes. But yep, at the end of my rope. DH is against more medication, but what do I do? I am not sure it is PANDAS any more, since we have tried everything and gotten nowhere with that. Yet antibiotics keep the tics away. So something is going on, just no idea what and he gets no where near baseline. I didn't want to post here because I don't want to bring others down. I don't want to take away hope for anyone. I guess maybe we just don't know what we are dealing with yet.....My last resort seems to be a local Lyme doctor, but why? The tests results showed negative. So I am not sure what that will get me. Maybe homeopathy next. Now sure. Anwyay, I did want to update. I am at wits end.
Lisa