mommyfor4
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Hi Kat,
Welcome to the group. There is certainly a LOT of information here and a bunch of very helpful people. It's really a great support group for parents trying to figure this all out.
One thing I can tell you, and I have a feeling many would agree, is that if I knew then what I know now, I would NEVER EVER have taken him to a neurologist. I'm totally not convinced that the Tenex that my son is on is actually helping him just like I'm not convinced that the Nexium that I'm on is actually helping me. Coming off it at this point would be more complicated than staying on (for both of is) until we get the dietary changes worked out so I'm going to keep on it for a little longer. I AM, however, looking forward to our appointment with his neuro in March and telling him to suck it. Of course, if there isn't any marked improvement by then, I won't be quite that harsh but we're learning so much even in the just the past few weeks.
It just kills me that the route to healing that we're taking is virtually never considered by doctors. I know this is working. It's just incredible challenging and daunting a task and everyone has to be bought off on it for it to be successful. It takes a very strong willed kid to do this. I got lucky. Very lucky.
Brandons diet is extreme. I don't think it's necessary to go full-out like this. It would just take a lot longer any other way.
Good luck to your and your daughter. I hope you get it worked out.
This post made me crack up
How many times haven't many of us wanted to tell a neurologist, or other dr. to shove it??!! Thanks for the laugh...good to hear things are still going well and the grades to top it off....Megan
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Hi...apples are high in salicylates which some people have sensitivities to, the other trigger could be pesticides if not organic apples. Our ds definately needs to eat organic as he is quite sensitive to pesticides and other treatments ie waxes etc.
Megan
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Hi! Early on in cleaning up our ds diet, I remember offending foods taking somewhere between 3-5 days to clear his body, now it is much shorter, sometimes within a day! I think the artificial colours were the worst, maybe their reaction in the body is longer than other triggers...who knows? Are you seeing any change since your post?
Epsom salt baths, lots of clean drinking water....
Megan
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just wanting thoughts on sierra mist natural...i am still trying to figure out all of the artificial stuff...my daughter loves soft drinks. however, i hardly ever buy them. but on the weekends, pizza nights, movie nights, etc. we have always let our children have a soda with their snacks...so now i am looking into alternative "sodas". saw sierra mist natural in the store the other day, and it looked better than most. no artificial dyes, no high fructose corn syrup, no caffeine...so, what do you all think??
Definately better than what's in other sodas. Once in a while (and I mean really infrequently) we allow something like this for our son, but in his case too much of any sugar, even raw cane sugars etc. will effect him. Not necessarily tics but then behaviourally, hyper and unfocused, impulsive. In this case it may be a try and watch for reactions. Remember though that pizza has many possible triggers (dairy, wheat, possibly nitrates and artificials)so it may be hard to tell if it's pizza or soda!
Good luck!
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Hi Julie,
I'm so sorry you are in such a lonely, frustrated, confused place! Definately have been there myself! I will just ramble too and see if anything helps. The first thought that came to my head was maybe your husband will be more receptive to just a good, clean multi vitamin/mineral for kids. It might normalize it a bit for him. As far as allergy testing the conventional allergy testing might be useful but will not show intolerances/sensitivities. Some of the main offenders could be dairy, wheat, soy and as you said artificials. For us elimination diet also helped our family as a whole to eat more healthy....might help if you spin it that way to your husband....
Because you have had tics yourself it could be hereditary, not to deter looking into PANDAS just a thought. We currently have our son on a kids multi by Progressive, Vitamin D, and Natural Calm as well as regular epsom salt baths. Others use Omega 3's and probiotics but as of now our son is not on any due to reactive tics but if your child doesn't tic from them a great addition as well...plus again can be seen as just a usful health tool for all your kids!
Using the word "tic" for the first time and admitting that that is what your child is doing is extremely difficult to come to terms with. I myself cringe still when I hear any of my other kids do anything that even sounds like a tic! It feels like after 3 years I am almost okay with my son having Chronic Vocal Tics but the thought of starting again with another child scares me! Even with a supportive husband I find myself needing this forum for strength and advice (I am the researcher, worker, worrier etc. he doesn't fight me, but I am in the driver's seat...sometimes it's nice to let someone else drive!!!), You are definately in a place with people who understand and I hope that you soon will get that support from your husband as well. No matter what, remember that the tics don't change who your child is. They don't speak of you as a mother...or lessen your child's chances of becoming something amazing...they are a lesson in patience, perserverance and unconditional love and support
Your attitude about them will be as important as what supplements you use or what triggers you eliminate. Cry when you need to cry, and then hug your child and look hard for the blessings... I made a list of blessings related to my son and weighed them against the tics and work involved and I felt humbled by who he is...and I get to be his mom!!!!!!I pray you find support, guidance and comfort along the way.
Megan
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Hi everyone,
I just wanted to update again. Things are still going really well, he had a slight rise as a virus riddled our house but HE out of all 6 of us, did not get sick! This is huge seeing as he was always the first to pick up any cough and it would quickly go bronchial. As I said in my last post, he is just all around more balanced. We are still on the same basics, the first being his Progressive multi, Natural Calm, Vitamin D and epsom baths. It seems for him the simpler the better....will keep you all updated but so far so good. Fingers crossed.
Megan
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Yes Chris is absolutely right...I didn't mention vitamin D but it is a regular part of his supplements as well. We use the D drops, easy for everyone just drop in juice or on food.
Be aware with probiotics that some of us have found the powder supplement has increased our kids tics, I was shocked by the increase with our son!
Soy can be a trigger for some people so a probiotic is great, but watch for soy as a possible trigger.
Other than that again, such a good place to start after as Chris said cleaning up the diet. It means read, read, read and avoid anything artificially coloured, flavoured and preservatives (nitrates, BHT, MSG etc.)
You're on the right track but like Chris said expect some swerves in the road along the way
Keep us updated and for sure PM me anytime!
Megan
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Kevin, forgive me if you have already been over this, but I was wondering if you notice an increase in the cough tic after gym. I couldn't help thinking that even if he isn't chalking up others are (at least in my day), and I know my son reacts to even sidewalk chalk etc, with a cough like tic. Just a thought.
Have you seen any wane since no more apples? Maybe to soon...I am unsure of them myself so I am curious as to your son's reaction...I know they are all different but it helps to share notes
Megan
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Hi Chemar: I just booked a 15 minute consult for this Friday with a local naturopathic doctor. I was able to find this doctor through a referral/a compounding pharmacy just down from my work. This doctor was just recently featured on TV talking about how parents over medicate their children and should consider a more holistic approach, check blood panels, hormonal levels and also consider an alternative to prescription drugs. Link if interested: http://www.kcra.com/health/25763102/detail.html
I feel like I'm on a more organized track now and can work towards helping my son eliminate and subside these minimal symptoms (I know compared to some of the other mom stories/blogs) with a doctor on my side. I am not a doctor and do not feel I can diagnose this on my own and just give my son various levels or amounts of supplements. I feel through this forum I have been informed and appreciate the responses and help. I will keep you guys posted on my progress and send any info I find out as well if anyone is interested.
I meant to ask you: have you have heard of in your studies/forums this constant 'heavy sighing, deep breaths' as a symptom from someone else? Or does it just sound like, based on my comments something that would fall in line with what would be considered a 'tic'??
Hi cws,
Our son has breathing tics and they sound similar to what you describe, I think you also mentioned a coughing tic? or ds had this as well. Those tics for him seemed to be related to his wheat and dairy intolerance. We rarely hear the coughing tic anymore since removing wheat. The breathing tic for us seems to be an environmental trigger for example scented candle, perfume, hairspray, laundry detergents etc.
I also noted you said your son loves sugar...we found the things our son was craving, sugars, breads etc. were his worst intolerances. Keeping a list of his cravings for us helped to try eliminating those things first.
A clean diet, a good multi, magnesium and epsom baths are a really good base and then if need be you can add as needed. You may not want to try too many things at once as it makes it difficult to see what is working and what is a trigger. I hope your Naturopath gives you a sense of clear direction...it is amazing to have someone to guide you... it can feel very overwhelming at times. I wish you the best.
Megan
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Okay, well, the last two days have gotten a bit worse. Coughing more. Still not SCARY. Just more....
Wondering if it's the apple and apple sauce he had late last week and over the weekend.
Yesterday (after it STARTED to get worse) I let him have some corn muffins that I made with maple syrup as the sweetener. I don't THINK it's related to that but who knows. I'm going to give him a few more days to finish the muffins and stay off the apple. I want to see if it calms down being off the apple. I don't know..... He's also going a bit more of that labored breathing thing he does and they both happen more when he's concentrating on stuff like homework but not while watching TV..
ANy thoughts?
Hi Kevin, our son also has a breathing, or throat clearing tic sometimes a "k-k-k" sound during homework. It seems to follow a busier day for him or when he is doing something he really needs to focus on. Sometimes music helps but most times it just seems to be something he needs to do.
I also read on one website Red Delicious being on the low scale for salicylates as well, so we have been also giving them...will try switching to Golden's ASAP and see if it makes a difference.
Megan
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Isn't it astonishing that a noise, movement or word can stop us dead in our tracks and cause such fear and anxiety. I too have many times asked why my son? why us? I've been angry and then fearful and then looked for all the why's, what could I have done different's, and what if's. But at the end of it all it doesn't change a thing.
At the beginning I fought "labelling" my child and was fearful of what others would think and how they would react. I wanted him fixed and I wanted it now....then I realized I was losing sight of my son and only seeing his tics. I was doing what I was afraid everyone else would do! Funny enough, accepting this disorder and naming it was a release for myself and my son. He now was armed with information and a name for the noises he was making, and better yet home became a very safe and comfortable place for him to tic if he needed to tic (which he definately did).
I find this goes in stages almost like mourning the loss of what we perceive as "our perfect children" and then when the dread dies away you build yourself back up with each little step forward. These kids are amazing and far more resilient than us!
In the words of Max Lucado:
'Know answered pray when you see it, and don't give up when you dont.'
'As much as you can, give thanks. He has already given us more than we deserve.'
A cure may not be the answer we're given but there are answers...have faith... and when you can't fight anymore let God do it for you.
You are not alone, we are an army of parents battling alongside eachother.
Megan
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Thanks Megan,
Right now my son mainly just has tics, his therapist keeps telling me to stop worrying about something that might never happen (i.e. comorbidies). Some days I swear if one more person tells me to stop worrying I'm going to punch them
.Anyway, there was nothing unusual about my son as a baby or toddler (until the tics that is). Other then he had a slight speech delay.
I'm just always so curious about other peoples "stories". How things progressed or didn't progress.
The night terrors with your DS must have been very scary, then hallucinating on top of it. I'm sure as a mom I cab somewhat imagine how you felt, but how did he handle all of that?
How old is he now?
~Lynn
He is 9 now and has not had night terrors or hallucinating fevers in a few years but yes they were pretty scary! He handled them fine because he generally didn't remember having them, but my husband and I at times were pretty freaked out. He was our first baby! It is a horrible helpless experience to see your child in so much fear and not be able to calm them, because they're asleep! It took many sleepless night of soothing talk and nightlights. The fevers were even more scary, very high and him scrambling away from me because he's seeing something else... They were common with most colds he picked up. Thank God that stage is gone!!!!!!
I empathize with your fight not to punch friends and others...I remember thinking if one more person told me they understood or to stop worrying I was going to lose it...that's when I started posting here! My friends and family owe you all a HUGE thankyou
Each step forward helps and everytime someone posts sometihing and I know that they DO REALLY GET IT because they also LIVE WITH IT lifts me up. So don't pop someone, come vent to us
Megan
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Megan,
could we get an update on how your child is doing on the Progressive multi? just wondering. are you stil giving it? how are the vocals? and how are the mood/crying spells? can't think of why that
Also, just looking the ingredients, I was noting that even tho there is not a high amount of magnesium, those other 'green food supplements' are probably a source of magnesium as green vegetables are usually high in magnesium....so that may be a reason why this multi is working out well for your child. just a thought
I was looking at this as I've started playing around with magesium more lately, actualy trying out different forms and higher amounts. not having any great results, but trying to be patient, not expecting any immediate results. So being that I don't give any other vits at this time, I wonder if I should start (wondering if the reason the mag doesn't seem to help him so much is because I'mnot balancing with other vits, as this multi may be doing).....I don't usually like high dose vits for my son, I always think he doesn't do well on them, so I just keep them out. but wondering if it is a good idea to just give mag alone, I know that the Bonnie Grimaldi vits were formulated as even tho she thought magnesium was key, it needed to be balanced with other vits.
Hi Faith,
We are still using the Progressive Multi and are very happy with the results. He has Chronic Vocal Tic Disorder and we have seen dramatic decrease in the vocal tics, even to the point of lapses through the day which we have not ever seen since onset. He just seems more balanced and better focused.
The moods are gone, I don't think they were related to the multi, maybe seasonal changes..
We do still keep up with the Natural Calm especially in the evening.
The multi is a breakfast and dinner dose and I do find that by dinner he is ready for the second chewable as his tics increase mildly around that time, but shortly after taking his multi he and we notice them decrease again. I don't know the whys but the results have been noticeable and consistent to date. If I had to estimate I would say it has cut his tics by at least half if not more. We struggled with multis too, as he didn't do great on them but so far nothing but rave reviews on this one. As of now, we only have him on the multi, Natural Calm and Vitamin D, would like to add back Omega's in the form of flax oil as he seemed to tic from the fish oil but even that doesn't seem so immediate as he is doing soooo well. Our whole family went through long, nasty cold and he was the only one who didn't get sick. In the past this cold would have surely seen him with bronchial coughing and fever. Something is working, and my money is on the multi....
Megan
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Hi Everyone!
I'm sure this has probably been discussed here before, but for those of you that have children with Tics/TS + comorbidies, when did the comorbidies start? At the same time as the tics, whithin weeks, months, years of the tic onset? Also, did you notice anything that wasn't "typical" about your child (baby/toddler/youngster) before the onset? Maybe not even at the time, but in retrospect?
As usual, I'm trying disect things, which is what us TS mom's seem to spend an awful lot of time doing and I'm just curious of other's experiences.
Thanks,
Lynn
Hey Lynn,
Our son was a very quick learner, sitting, crawling, walking very early. His speech was very advanced as well but he was very reactive to learning new skills and would practice them to the point of frustration until mastering them and then moving on quickly to the next skill. He also was not a good sleeper and was easily overstimulated, although in all other areas a very easygoing baby. Even in toddler years he was very tactile, sensitive to tags etc. and needing to rub skin, especially mine or my mother's. He ALWAYS reacted to immunizations with fever or strange things like Roseola, Hand Foot and Mouth, or night time issues. Later he started into night terrors and if sick would have superhigh fevers sometimes hallucinating and sweating. He was always prone to extreme bronchial coughing often to the point of vomiting. We suspected milk intolerance early on due to constipation. We didn't see tics until around Kindergarten age and they peaked at grade 1 after we had moved and his third sister was born, he had also started having strange anxieties for example swimming and needles. By that time we saw his grades dropping and realized he was reversing letters and numbers and a child who had been an easy learner was struggling with reading. This was when we realized we had something BIG going on here. And that began our search for food sensitivities etc and realizing that his dad also has a Tic Disorder. He had never known what it was until our son started showing similar tics. Can't think of much more right now but great question, I too am curious.
Look forward to seeing others responses.
Megan
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Hi Everyone
Thanks for your posts on my page regarding "Both Kids have Tics".
I took your advice and got my son tested (blood, urine and stool). THAT took forever!
Can someone please fill me in a little about Pyroluria? He apparently has this, along with some other things (gluten allergy, cane sugar...). I know that it has to do with lack of B6 and Zinc but how much should I give and has anyone seen a difference? My integrated med doctor wanted me to buy his vitamins but I am sure that they will be very expensive (as you know, integrated docs are NOT cheap). Any recommendations?
As always, any help is greatly appreciated!
Hi, I can't give you any great advice regarding pyroluria but I do recall in my own searching that gluten and casein intolerances are very common in individuals with pyroluria...so what came first the chicken or the egg??? I believe pyroluria is thought to be genetic as well(could be wrong on that one). As far as dosage, I'll leave that to the more knowledgable members but I wish you the best.
Megan
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At some point, I think testing the waters will be a great idea. We need to see more consistency with the current routine before we can do that, though. Probably not until sometime in 2011. I hope he lasts...
I agree, we were a good year or so in before we allowed any testing on his part and trust me it didn't last long....he hates his tics and how his body feels when out of sync. We too found that as his body became more balanced his waxing shortened in duration. I believe these are all good signs that something is healing within the body. Do I think we will be tic free? maybe not...but seeing the decrease gives a feeling beyond words.
He'll last....he seems like a strong boy with supportive parents!
Megan
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Okay, time for an update-
Sometimes no news is good news and this is the case today. Had a very good, quiet weekend. We're noticing that any "episode" that he has no longer lasts days but merely minutes or at worst a couple hours. STILL- looking at the big picture, if he was the way he is now one year ago, we would have never even thought to pursue this is any way including the neurologist.
The apple and applesauce don't seem to have had any affect at all on him.
Yesterday he had his first gym meet of the season. He was anxious, nervous. I woke him up and even laying in bed his eyes were rolling. That went away within a half hour or so. He had a fantastic meet. Took 1st in 5 of the 5 events an all-around.
While we were there one of his teammates mom (they're all very good friends now, not JUST teammates) told me that her son was commenting to her that Brandon has changed so much and that he's really become like a best friend. Of course, you never really know how much to chalk up to this but he said it's a recent change so either way it really is encouraging...
On another note, we went to Outback for a birthday dinner for his friend. He was able to have a plain steak and some plain grilled shrimp but before that was served people got apps and bread. That was hurting him a little,
Then, on the way home, was his first real breakdown. This has not happened before. In the car he was crying and saying he wanted to quit. We lent some words of encouragement. Told him he could cry all he wanted but that we're this far into it and he really doesn't want to quit. We were surprised. It seemed like a very random moment to break down. There was no candy involved. There wasn't dessert. I think this was actually all about the bread at the restaurant (and I find the bread at Outback gross). Still, before we even got home he was pulled together and ready to keep going.
I have a very strong kid.
Hey Kevin....congrats on all the good news, grades, social, gymnastics. Amazing! Just wanted to give you a boost. I remember when we first started our ds finding it sooo hard especially around parties and dinners out. It felt like he had to mourn the loss of those things but as time went on we were able to find rewards and substitues for the food losses. Cake at a party...homemade brownies or gluten free donut at home etc. He now chooses to forgo any suspect food because he has seen the negative result. There was a time that we allowed him the choice to cheat once in a while just so he could see the effect and decide if it was worth it....he soon decided for himself that it wasn't. These kids are amazing and I too am always amazed at how strong they can be...I applaud all his and your hard work!
Take care,
Megan
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No. He wasn't on a multivitamin before all of this started. So you think that the prebiotics, epsom salt and the fact that the cereal has many vitamins are helping? Does it matter whether or not b6 is in the mix?
I also notice that when he eats something like an ice cream, I see a little something coming out. Also, when he has a fever, it seems to start. Fortunately, I have been able to get him on azithromycin right away, when he gets a fever. He had a really bad episode last year, after repeated strep infections. Azithromycin helped reduce the tics and the behavioural fears, but it took a while...around one month. I notice that the following are bad news:
1) fever or some kind of sickness
2) ice cream (sugar or the milk?)
3) lack of sleep
4) decongestants
5) pizza from pizza pizza (is it the cheese they use? )
6) YOP yogurt (probably the dairy and sugar)
7) stress (makes his eye blink, but he doesn't do all of the other things...like one day a neighbour's dad yelled at my son's friend, and my son's eye started blinking like crazy)
8) fish oil
I am afraid to give him any multivitamins. I gave him some multivitamins and some other stuff that this alternative health practitioner had prescribed a few years back, and he started having tremors, like seizures. I had kept my child away from msg and all that crap, and surprisingly, in all of those wacky formulas that the alternative health practioner had given him, there was an excessive amount of msg. She prescribed the famous brand that natural doctors prescribe - multivitamins, colloidal multiminerals, and a neuropowder probiotic. The multiminerals and the neuropowder have glutamic acid. My son's system went haywire right after that. I had gone to her for a sinus issue with my son, and he ended up having tremors. So, I am really reluctant to go there with any multi vit.
Hi Cristo,
I am also in Canada and have found that a good multi clean multi is hard to come by, we have recently started our ds9 on Progressive MultiVitamins for Kids Chewables and are really excited about the results.
As far as icecream and pizza, it could definately be the dairy, but also the artificial colours, flavours and sweeteners. Even the sauce or pepperoni could be an issue for additives and nitrates.
Many of us see a rise in tics in response to viruses and fever.
Stress...yes....another big factor in tic increases...epsom baths help ALOT and Natural Calm
YOP is on our no go list as it is artificially flavoured and coloured and for our ds the dairy.
You could try a flax oil instead of fish oil, our ds also had a rise when using fish oil.
Most decongestants have loads of artificials, there is a natural product you can get from Shopper's DrugMart called NIN JIOM, it is a bit strong flavoured but pure and honey based and works amazing...we use it for our whole family now even our 3 yr old.
Have you begun removing artificial colours, flavours and preservatives yet? Could be the common denominator in many of the things you see as triggers. Just a thought.
Do you suspect PANDAS, as you have mentioned antibiotics several times or is there a family history of tic disorders?
Best wishes and welcome,
Megan
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well getting him to give blood is going to be tough.
we had him at the GP office today and we wanted blood drawn to check for some other things and he ran out of the building!
We experience similar reactions with our son. He has EXTREME anxiety over needles yet can wipe out on his dirtbike scrapes and gashes and get up without a whine...this is partially why we went the elimination diet route. I sometimes wish we could do the blood tests but for now I have agreed for his sake to try all other routes first. If you find something that works though...bribery, money, anything!
let me know. So far ours could care less for the reward, his anxiety is just too big.I hope it goes well, it would definitely help avoid alot of the guesswork.
Megan
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has anyone done any allergy testing?
My husband is not on board with the thought that our son may have PANDAS. we both don't understand it well enough but from his thinking PANDAS is a sudden onset of symptoms?
Our son has had gradual symptons from the time he was about 4 years old, almost right after he had his tonsils and adnoids removed.
long story short, instead of arguing with my hsuband about our son I have agreed to let the PANDAS issue go for now and focus on it being TS, with a possible strep titer test done at some point.
I was wondering if it was a good idea to get allergy testing done(skin pricks) to see if he has any food sensativites, or is this something that isn't usualy related to TS?
Bridy
Hi Bridy,
I am sure so many others will agree that food sensitivities can most definately be related to TS or Chronic Tic Disorders. Our ds has Chronic Vocal Tic Disorder and food sensitivities are major tic triggers for him. The classic skin prick testing will show "true allergies" but not necessarily food intolerances/sensitivities. there are other tests (I'm sure others will add to this) but we personally found food elimination diet the most effective, although alot of work. As time continues you grow more adept at seeing possible triggers and reactions. The trick is to read, read, read all the labels and stay as close to home grown as possible.
Best of luck,
Megan
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When we went wheat free with our ds his tics went haywire for a week or two and then mellowed, I am convinced it was due to his body not getting what it was "craving". We have not seen it with any other eliminations only wheat...which was the first elimination and seems to be the biggest intolerance for him.
Megan
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HI
Yes, did post on the PANDAs forum, we don't have any conceret diagnosis and I want to make sure we investigate everything. We are still waiting to see a specialist about his tics.
We have no family history of TS.
I am giving him the Peter Gillham's Kids Calm. I have just been told that the kids calm has been discontinued and I must have just found it because the sore still had some on the shelf. I give him 1/2 tsp right now mixed in some juice but I will try to increase it to 1tsp to see if I notice any change.
Megan what brand of multi do you use?
He eats a very good diet right now but we have considered taking out gluten to see if we notice any change. We are not big dairy eaters as it is and only have about 1 serving per day at the most. But that might also be something to consider.
we are seeing his GP tomorrow in hopes to get some testing doen to rule out PANDAS, I am just hoping his GP wont give us a hard time and we don't have to get the tests done some place else.
Hi again, we use Progressive Multivitamins for Kids, it is a multi vitamin/mineral. If you suspect corn as an issue I think Cheri found it did have corn derivatives but our ds is doing amazing with it. I also try to avoid too much juice and if necessary only 100% fruit juices and water them down. Our ds takes his Natural Calm with water and a small bit of pure Maple Syrup, seeing as we are yet unsure of some fruits as possible triggers. For us wheat and dairy are main triggers, an elimination at some point would probably be beneficial even if only to rule them out...
Megan
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Well, head colds have been running through this house for over a week now. My wife started us off. She was miserable all last week. I got it two days ago. I use a neti 3x a day when I feel a cold coming on. Mine is not anywhere near as bad as she was. Hopefully the neti is fighting it off or cleaning it away.
Today Brandon started to tic more. Mostly the eye roll and cough. Tonight he showed a low-grade fever. Did someone mention that an increase in tic activity is generally a precursor to sickness?
I tried getting him to use the neti. There was NO way he was going for that as soon as the water started running into his nose. I tried!
Hoping the tics are just from the cold....
Hey Kevin, Yes I had mentioned that our ds generally has increased tics prior to symptom onset and during illness. Our ds is also increasing as cold is ravaging our house as well. Same situation. Tic increase, now mild fever...definately nightly epsom baths for him and extra Vitamin D, C etc.
Can't believe your son even got that far with the neti...noooooooo way our ds would let us put water in his nose...will do saline mist though....as a last resort
Hope it all mellows post viral. Take care.Megan
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Hi, I too am wondering if you are using a different magnesium. The one we use (and most others as well...I believe) is Peter Gillham's Natural Calm, a Magnesium Citrate Powder. Personally, I only use the original flavour as it is unflavoured and our ds seemed to increase with the flavoured versions. You should be able to get it in your local health food store or request it if need be. We do notice some decrease with it, but by far for us the epsom salt baths and a good clean multi....no artificial sweeteners etc.(not always easy to find, you may need to search) have been the most beneficial besides diet changes. For us it takes a few days and at waxing we may need to increase his amt. of magnesium. Generally we use at night 1/2 to 1 tsp. but when waxing he asks for it in the a.m. I give him 1/2 tsp. then as well. You may need time to figure the optimal amt. and best time given. Good luck.
Megan
How many times haven't many of us wanted to tell a neurologist, or other dr. to shove it??!! Thanks for the laugh...good to hear things are still going well and the grades to top it off....
.
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