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Everything posted by mommyfor4

  1. Hi and welcome, A great first step is usually to remove all artificial sweeteners, colours, flavours and preservatives if possible as they seem to be a big trigger for most kids either as tics or ADHD type behaviour etc. We have noticed the keeping the room well lit and using a LCD, LED or Plasma TV has helped some but video games especially ones where they are just sitting and staring at the screen is definately a trigger for both tics and mood swings. The simple act of turning on a light to match the brightness of the TV seems to diminish this some, but we really limit screen time regardl
  2. Hi Everyone, it's been some time since I've posted. Things continue to go really well. We have even been able to get ds to do acupuncture (my child with huge needle anxiety!!!!) So far it seems to be really positive for him, he feels more focused and even looks more relaxed. He even enjoys going now and will ask when his next appt. is. We had a rise over the last full moon, seems to be par for the course for him, but nothing to send us into the old panic. We are continuing with the Progressive Multi and Natural Calm and of course his diet, we are using freshly ground flax in the mornings...whe
  3. Hi Guy I think we may be misunderstanding each other. I think it is his discomfort or lack of trust that causes him to suppress his tics. I have seen him time and time again ticcing like crazy before an appt. but upon entering the office he seems to contain them until we leave, the same is true if we have company over that he is not really close to. As far as our family dr. goes though: I was just pointing out that because he really trusts and likes this particular dr. we don't see the same disappearing tics as when he is seeing another less known dr. Megan
  4. Hi Guy, I'm not quite sure why this is but I do have to say that if my son is comfortable with the dr. he is seeing, he allows himself to tic or can at least "show" the dr. what we mean. I think for him it is a defensive thing, if he doesn't trust, know or like the dr. he will fight the tics or be so distracted by the other things that are going on that he "forgets" about them until we are safely back in the vehicle. That's all I've got unless you just want to call it Murphy's law... Megan
  5. I have seen too many negative reactions in my children to chance it, I think I'd rather risk the flu at least that is temporary...
  6. Hey Lynn, You're not alone, it seems quite a few of us have been seeing seeminly unexplainable rise in tics over the last several weeks. Check out my thread regarding that, it may help. A friend of mine also pointed out the high allergens and it's apple spraying season! I didn't even consider that!!! Just this past few days we are seeing a decline, although he does have a cold so come throat clearing ones are more obvious. Keep up with what has been working, maybe up the epsom baths and loads of water? Don't panic, this too shall...there's no other way to put it, it really sucks when there i
  7. It does appear to be a tic and we also find the TV is a big trigger and try to keep it limited. She also has the same look in her eyes as when my son watches TV, it's like they are totally absorbed with it, wide eyed and unaware of other things around them. I wish you the best, hang in there... Megan
  8. Our kids started last week as well. It is a possibility but I'm not fully convinced, can't explain it...it just doesn't feel like that's his cause. Seasonal inhalants are definately a possibility here as well but again the tics don't sound like his usual allergy tics, although his sister is suffering from some allergy type symptoms and even I find I am clearing my throat more over the last weeks or so, who knows???? Please keep me posted, it would be very curious if they also decline around the same time, sigh-just when I think I've almost got it all figured out, how arrogant of me Best
  9. Hi all, just a curiousity. After some amazing progress over the last year or more we are seeing an increase over the last two to three weeks in tics. They seem unexplained as foods etc haven't really changed. I was curious after reading other posts as to how many others are seeing a similar increase. I wonder if it may be lunar or even a reaction to weather patterns ie. Irene. Would love to hear if anyone has thoughts etc. Megan
  10. Well done Chris! This is such a nice clear and concise summary of your evolving to manage his tics and with it your stress...good to hear things are still in a good place. At some point maybe I will add our journey's summary too For others reading though I completely agree with your main positive changes...they are the same for us 1)great multi 2)Natural Calm (original) and the others are used more as needed, but the clean diet etc. can not be denied for us no matter what traditional dr's say I found with everything the more simple and natural, the better...easier to keep your sanity t
  11. Hi! Our son who's 10 also has Chronic Vocal Tic Disorder and I too have felt the crushing emotional rollercoaster and the fear as school approaches etc. We have had some really good results with a good multi and eliminating wheat, dairy, ALL artificials, soy and some other foods we have found as triggers along the way...but he still tics, much less and the waxing and waning is less severe but I don't think the fear really ever goes away, it can become dormant in good phases and come roaring back at the first rise of a new tic or waxing period. The only thing that really helps me is remembering
  12. Yes, my son(10) does find some relief with Yoga type breathing exercises, as it is particularly hard to have his body relax we try to get him to do these while having his epsom baths or just after the bath and before bed. I have to say we are not super diligent but I should be as his body holds sooo much tension it would be beneficial regardless. His tics are vocal and this seems to sometimes be a good substitute.. even if only temporary. Megan
  13. Hey everyone...haven't really posted in a while. continue to go well here. He is not tic free but they are so minimal that it would be hard to notice unless you were looking for them. He has had the odd rise but it is generally a matter of hours now instead of days. It seems that as long as we keep to his diet he is maintaining really well. For him his food triggers are: Wheat, Dairy, Soy, all artificials and refined sugars (he is fine with Raw honey, maple syrup and raw golden cane sugar), pesticides on foods, tomatoes, grapes, apples (but fine with apple juice), bananas, raisins, or
  14. We definately have noticed there is a distinct moodiness and restlessness with our ds when tics are waxing. He is far more emotional and says he feels sad and frustrated and easily angered. Megan
  15. Hi, We could only use the original Natural Calm, our ds tics increased with the flavoured versions. Megan
  16. If you look into dyslexia for example you will see there are three categories, one of them being due to exactly what you described...head and body trauma. The cause would not necessarily effect a LD diagnosis. If the school is aware of writing difficulties that is most helpful, also dealing with a Pediatrician and or psychiatrist could help determine a diagnosis. Often you can get guidance through a local social services/family services office as well. I wish you the best, Megan Wow! I just realized how old this post is....
  17. Rick, we just give the recommended two a day, morning and dinner and it has been sufficient. I still supp the Nat. Calm at night 1 tsp. I have found that with our son we can actually see when we have pushed the time between the pills. We have found that morning 7-8 a.m and then 4-5 p.m is "optimal" for him. You may need to go by how you feel and the results. Our son said he could "feel" when he was close to needing his afternoon chewable. I really hope that you get some benefits! Megan
  18. Hey Rick, Most of these are in our son's multi already so for us we don't supplement as addition. For him he does best getting it from the foods he eats, wild salmon, avocadoes, lots of spinach and kale etc. I guess what I'm trying to say is that for us it took starting from scratch with the supps, we removed everything and started the multi and began to see good results, added back the original Natural Calm (no flavoured ones-they increased his tics), for us adding fish oil and D3 did not work, his tics again increased. Although for some they are really beneficial! I think if you can star
  19. Hi Rick, we have had great results with Progressive Multi vit/mineral for our son. They do have an adult version although I can only speak for the children's first hand. Chris and Lisa both use Kirkman Spectrum Complete for their kids and have also had good reports as far as I've seen. Good move on the soap to rule out scents etc for triggers. Our son and to a lesser degree my husband definately do better when ALL things are as natural as possible. Dishwasher det., laundry soap, cleaners, even toothpast for our son! It doesn't hurt to go that route regardless so at least your possible trigge
  20. Hi Trinnie, The best place to start in my opinion is a good, clean multi. No artificial colours, flavours, or sweeteners. Not always easy to find. We use one called Progressive children's multi/mineral chewable, others have had good results with Kirkman Spectrum complete, someone will correct me on the name if I'm wrong Natural Calm Magnesium has also been beneficial for many on this forum. The most overwhelming step is probably looking for food triggers. You could try an elimination diet looking at the more probable offenders like wheat/gluten, dairy, soy etc. first. Removing all artific
  21. Hi Bonnie, we use an all natural cough/allergy syrup called NIN JIOM. It has amazing beneficial plants, a bit strong flavour but the base is raw honey. Works really well for our family especially our ds when his sniffing, throat clearing tic increases around cold and allergies. My kids ask for it now anytime they have a cold or sore throat etc.-even my three and five year olds! Megan
  22. Hi Rick, I too am sorry to hear you are feeling so much frustration, so much work and no reward!!!! Just curious...have you tried anything other than the BonTech? I have seen that some have great results and others not so much or even increases. If I'm not mistaken they have soy in them, could soy be a trigger for you? Maybe trying just a good clean multi and continuing diet may be helpful as a last ditch attempt. I don't know if it's harder the longer you have had this but stands to reason that getting at our kids young allows more healing and quicker results?! Did you see any results at all
  23. So far so good here as well! We even just came off waxing from a prior weekend away and some bad foods and late nights....interesting...was concerned since it seems to be part of his cycle but this moon is nothing but beautiful Megan
  24. Hi Kevin, I've been mulling this over since I've also been in similar situation. But there are so many variables. The biggest being are the parents even open to the term tic? So many people recoil from this term and it sends fear rushing at them. My husband's mother for one still argues that he did not have tics and if he did they were not anything like our son's. My husband strongly disagrees! A very close friend has a son with tics and a toddler recently diagnosed with autism and SPD issues with all her kids to some extent yet is uncomfortable with labelling tics... There is so much fear in
  25. Hi Char, Yep, this was me about two weeks ago! Tics were at an all time low for quite a while and then sudden big increase=tailspin for mom. His ended up being viral and possibly due to full moon, but regardless, I had that fear come creeping back. What if it doesn't wane? What did he have? etc. I guess what's getting me through is that his waning is more obvious and longer lasting and triggers are generally getting easier to find...even after 4 yrs. I find we are still finding the odd one we were unaware of. I would like to think that next time he waxes I will be able to remind myself that h
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