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  1. Thank you, I have PM'd her a couple times and she is the one who sparked my interest in homeopathy. I guess I was just grasping at straws thinking his lab results meant something was off that was 'very simple' to correct. But I guess such complex symptoms as our children have is going to require a lot more than a simple fix. Thank you for your reply! PM Stephanie2 about homeopathy. She really knows a lot about it, and has had good luck with it.
  2. It must have been a typo. I don't have the lab work in front of me now but I do remember it was about 15 numbers higher than the upper end of the range. It probably doesn't mean anything out of the ordinary for a child going through so much growth and change but I was curious since it as well as creatinine/bun ratio was off 2 years ago as well. We have all sorts of auto immune disorders in my family history including diabetes, thyroid and rheumetoid arthritis. Thank you for your reply!
  3. Hi, my son was diagnosed with probable Pandas/Pans a couple years ago. He was part of a study at the Rothman Center along with many other children. Although his blood test wasn't conclusive as to PANDAs/PANS, his sudden onset of OCD, fears, and tics qualified him for the study. Anyway, I recently had more blood work done on him to compare it to the old blood work. A couple things remained the same and I am not sure what it means. His MCHC on his CBC test was flagged as high at 34.5 (range 38-30). It was high last time as well. Also, both times his Bun/Creatinine ratio was high and his
  4. Hi, I read your post regarding your son and his intrusive thoughts/fears. I am not an expert by any means, but am a mental health counselor as well as having experience in dealing with OCD/ and severe intrusive thoughts as a child myself and now with my own son, 9. I remember having the scariest thoughts and the worst part about them was wondering if I was actually going to act on them because I 'thought' them. My psychologist at the time told me that I WOULD NOT act on them if I did not want to. The intrusive thoughts are usually about doing the things we most often DO NOT want to do. The
  5. What dosage do or did you use of GABA? My son is 9 and 80 pounds. I'm thinking about introducing GABA to calm his tics and intermittent fears/anxiety. I have thought about 5HTP but he shows no signs of depression....just restlessness, a little OCD, tics and at the moment, fear of being outside alone. Thanks Trish
  6. I am sooooo happy to hear of a success story using a homeopathy treatment. I hate the thought of treating my son with antibiotic after antibiotic and possibly IVIGs. We are about to start the whole process of treating him again due to his most severe symtoms returning after a year of tolerable symptoms....never totally in remission but during that time I thought it was not possible. I also live in Florida, I believe we spoke on the phone once when my son first began this nightmare. You helped me a great deal and I can never thank you enough. We were able to be part of a study Dr. Murphy w
  7. Hi, I guess I should have PM'd you but unsure how to do that at this point....I'm not totally familiar with this forum yet. But anyway, your post was the first post I have read that mentioned your child's PANDAs set off by the flu mist. I have always thought that about my son as well. He was given the flu mist and a regular flu shot at the same visit. A couple weeks later, the tics started and then the OCD. Oddly enough, my daughter who received the same vacs on the same day, was diagnosed with a 'freckle' behind her retina soon afterwards as well. This is very unusual in a child.....and
  8. Good for you for role modeling to your son that 1.) Hygiene is a good thing 2.) Manners are a good thing! and 3.) It's okay to be persistant and refuse something that you know is not good for you despite pressure from others. Not to mention how you went to bat for him against an over controlling, spoon-licking, phlegm flying, mother-in-law! Ooooh, that made me made just reading it. I think I would have developed a 'sudden onset' of a severe migraine which would have made it impossible for my son and I to stay and visit. Yeah Mom!
  9. Hi, You seem like you are off to a great start with the concern about a good clean diet, interest in supplements and getting your son in to see a good Psychologist. The Psychologist will give him tools for life regardless of what is causing his tics/OCD like symptoms. My son also started his tics/OCD at the age of 7. It was sometime in February I believe. I wondered for awhile if it wasn't brought on by the flu vaccine he had a few weeks earlier for awhile. Still a bit curious but moving forward. We tried eliminating dairy which is a big trigger for many kids but it didn't make a
  10. Hi, we have had lab work done but not to the extent that my son is going to require to find out where the problem lies. Our insurance, according to my husband who works at the hospital, has no agreement with the labs that are on our insurance plans as far as what they can charge us. After we have met our deductible, however, then the insurance company has an agreement with the lab as to what THEY will pay them. But it is what it is and I just need to look at the numbers and see which is least expensive in the long run.....because it has to be done and I don't want to put it off. Thanks for
  11. How would I go about finding out if my insurance company has the same sort of agreement with a lab? Just call them? In addition, when I go to a Pandas Doctor and they take blood for lab work, do I make the request that the Dr. send the blood work to the specific lab my insurance (hopefully!) has a contract with? Ughhhhhhh! My brain hurts Thanks in advance!!!!!!! Trish
  12. Thank you for the additional information on Dr. Rossignol. I believe they are on our insurance plan wnd will contact them today. I appreciate your kindness! We are just doing Nature's calm at nighttime as well as inositol. He helps with anxiety and sleep. I had thought about taurine but was afraid it would make things worse....I've heard good and bad about it. I'm not sure if it would be okay to add to his current regimin but I will look it up. But first, time to contact Dr. Rossignol! Sincerely, Trish
  13. I don't know enough about the effects of various vaccinations, but I can tell you that my son's PANS/PANDAS symptoms first began after he received both the swine flu vaccination and the regular flu vaccination at the same Dr's. visit. It actually was about 3 weeks after the actual vaccination that I began to notice facial tics, obessesiveness, etc. And possibly completely unrelated, but my daughter had the same vaccinations that day. With in a couple of months, she began complaining of vision problems. We took her to an eye Dr. and yes she was near sighted, but he also found a 'freckle' on
  14. Hi all, I was reading some information on the PANDAS NETWORK site and made a list of some of the commonly requested lab test to determine possible PANDAS/PANS. I know that many test will prove inconclusive and not reflect what is really going on, but some of the tests I would definately like to have done. The question I have is which is least expensive yet reliable; 1.) going through the regular route of having the Dr. order the bloodwork/test and having it sent to the lab that is on your insurance plan; or, 2.) purchasing them yourself through a website such as 'Ineedlabs.com' and having yo
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