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kamkoop01

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Everything posted by kamkoop01

  1. no it was my grandfather that was on the haldol. he had parkinson's,cancer and alzhemiers (sorry spelling) this made his tongue numb and hung out to one side. i told the dr this and she said not to try it on him if a family member had a reaction. i am very interested in the ts-plus just what all do you give with this. is it just the ts-plus ?
  2. i have seen the bonnies thing but not really much on the empower. i read on a thread on here that the empower can make tics worse. i just am scared to try anything new. my main thing is just tell us he has touretts. we have been to special dr's in highly respected childrens hospitals and they say he isn't adhd or have touretts he just has a tic disorder. well after yesterday it was like watching a kid with tourettes. he was in his room blurting out things like BLAH, BLAH, DA ,DA, and i would ask him what he was doing and he said watching tv . then it sounded like he was saying FA FA FA and i w
  3. yes tried the epsom salt baths but he knew i was putting something in there and would not stay in long. he is a shower taker and hates baths.
  4. i have seen the bonnies thing but not really much on the empower. i read on a thread on here that the empower can make tics worse. i just am scared to try anything new. my main thing is just tell us he has touretts. we have been to special dr's in highly respected childrens hospitals and they say he isn't adhd or have touretts he just has a tic disorder. well after yesterday it was like watching a kid with tourettes. he was in his room blurting out things like BLAH, BLAH, DA ,DA, and i would ask him what he was doing and he said watching tv . then it sounded like he was saying FA FA FA and i w
  5. see the thing is i am nervous about giving him anything. i have seen the ts-plus but haven't really checked into it. i will do some research on it. i just want him off the clonidine so last night i gave him 1/2 the dose and he slept all night without waking with a nightmare. so basically he was on .1 and i 1/2 that. i sent his teacher a note today to see how he is doing in class or if this is only going on at home. surely she would have called me on this if he was doing this in class. geeeez being a parent sometimes can be soooo hard but staying strong and knowing there are others out there go
  6. hello, i haven't posted in a while but since last post had my 9yr allergies tested and he is not allergic to anything. he has a tic disorder that has been really bad since middle of july. we ended up taking him to a dr in our town and she prescribed him clonidine. so we started with 1mg for 1 wk and also paxil. the paxil was for the possible anxiety issues she felt he was having that may be casuing the tics. well we noticed with the clonidine he did go to sleep earlier but at midnight would wake and then go back to sleep to only waken again with horrible dreams. we then added the paxil as
  7. this is correct. non PANDAS brother has severe allergies. our pedi said that if anyone in the house had strep then the child with PANDAS could have a reaction. well this after noon my husband come in the door saying his throat is hurting along with mine hurting as well. we did have his allergies tested and he didn't show to be allergic to anything at all. i told them that if he eats alot of ketchup his ears have turned red before. he didn't show any reaction. also we had a pool put in last summer and he didn't do this bad then. we have been in the pool since may and just last month tics have
  8. hi again, ok i took my son that is ticcing like crazy to have his allergies test yesterday along with his brother. my oldest that is ticcing now for 4wks following his brothers strep throat issue is as of july 25 stated another tic (head popping and shaking )woke up that sunday morning doing this. he this morning 8/5/10 woke up with yet another tic. he will be sitting here and just blurt out DA BAB DA BLAH BLAH. just like that. i just went to another room and started crying. I yesterday after having allergies test we found out he is allergic to NOTHING AT ALL. they testes food and environm
  9. i just went and purchased two air purifiers to see if that helps. like i said we are getting allergy tested tomorrow and i will bring this up to the dr. i hope these purifiers help a little. it is wierd because today i took both my boys to there pedi because the oldest woke up this am and was saying his throat hurt. so i was like wow ticcing like crazy and now throat hurts so i called the dr. and took both boys. well got there and noticed he did not tic one time. he said it was because he was trying to be good so he could have me buy him a game after we left dr office but we were there for ove
  10. hello, just was wondering if anyone had this happen before to them or to their child. i have recently posted that we don't know if he as pandas or just a tic disorder (was diagnosed by tx childrens hospital with mild tic disorder 2yrs ago) being it comes and goes and it isn't the same tics when it does come back. anyways we recently on july 22-23 had new carpet put in 4 rooms in our house. his room is upstairs and we had all upstairs completely recarpeted 3 rooms and hallway and then masterbed room downstairs. well he woke up on the july 24 and now looking back he seemed real moody,and irr
  11. if i could find a specialist for PANDAS here where i live i would get him there fast. our pedi did feel he may have it but did a culture and that was it and it was negative so she just didn't go any further. my son goes this up coming tuesday for allergy testing that was referred by our pedi so i am curious to see what the out come will be he is also having the immunology test done but i did look on the work up order yesterday and it is not testing titers like i have seen posted on here before. my next step after doing allergy testing and if no answers there back to pedi to be referred again t
  12. Hello! Welcome to the forum. I am sorry that you had to find us, but I hope you have been finding good information here. We all learn from each other every day. It sounds like you've been battling recurring strep infections with tics that increae with infections. I am wondering what the blood test is that the doctor ordered - do you have the name of the test? Also, have you ever kept track of your son's tics (like kept a journal with how bad the tics were each day)? Many families find that keeping a journal helps them to see if the tics are strongly correlated with infections. Is your
  13. hello again, today i took my son who is 9 who was diagnosed 2 yrs ago with mild tic disorder to an allergiest/immunologist. my question is the blood work for immunology test what all does it test for. i explained to the dr that my son had strep 6 times in one yr and had tonsils/adnoids removed 2 summers ago and still from time to time gets strep but his tics seem to be way worse when he has it. she said this test will show if he is a carrier of strep but didn't really go into any details. i was curios if anyone knew what all it would show. does it test strep titers or is that a whole diff
  14. my son was put on klonipin at the end of his 1st grade yr and it was fine for about 2 months then the tics got way worse. he still has trouble going to sleep and what i have noticed is that he is trying his best to not do the eye rolling but can't be still to go to bed. he squirms and makes the humming noises at bed time. i tried melatonin which tx childrens hospital told us to try and it worked for a while as well but recently this past yr (2nd grade) started giving him nite mares.
  15. thank you so much mkur i did have a friend tell me about the ibuprofen but haven't tried it yet. i will do that tonight being he is popping his head like crazy. he is scheduled to see an allergies/immunologist on wednesday and i hope we can get some kind of answers. alot that i talk to dont see a relation with food allergies and tics but i have noticed that if i give him ice cream his verbal tics (humming sounds) come on very quick and don't just go away. as far as food dye's i have noticed he gets very hyper and he doesn't even realize he is ticcing. he does i know for sure have some kind of
  16. thank you so much for you help. my question is how do you tell the difference in tourrettes and just a mild tic disorder then if he does have pandas could it have been giving him these symptoms for the past 4yrs. i get so confused on the tourrettes information because i am like well he has had a vocal tic for 4yrs now off and on and if he has no tics for a while when they start back up it is soemthing different. i just have so many questions but never get any good certain answers. i am going to click on you link and check it out. thanks again!!!
  17. Your son experiencing increased symptoms in response to exposure from his brother (when he is negative for strep) is actually a sign in favor of a PANDAS dx. Because the immune system makes antibodies when it is exposed to pathogens to prevent infection, it indicates his reaction is caused by antibodies, not infection, which is the case w/ PANDAS. We call that "canary" effect. i just am sooo frusterated right now because his dr. just assumed his throat culture was going to be positive and give him some meds and move on. i know in the post above i was asked how he reacted on antibio
  18. this is exactly were we went and saw a nurse practicioner (dr engle) when we went for a follow up 6months later we saw the head of neuology and he told us that if the child can control it that is was considered a mild tic disorder. nothing else they could do. they were releasing him and if he started having tics again they could refer us to baylor medical to a dr that speacializes in tic disorders. i did ask the dr at tx childrens if allergies could be involved and cause some of the tics and he laughed and just shook his head and said no. i also brought up PANDAS to him and he again said no .w
  19. hello, i am new to latitudes and soooo glad i was told about this site from a friend. my son is now 9 and has had tics since he was 5. it started when he was in kindergarten and his teacher was unable to control him in class. he was sick alot that yr with sore throat,strep infections and ear infections. around christmas his teacher called me while i was at work and told me he was acting up in class and pretty much told me he needed to be checked for ADHD. soooo being the worried parents we were we took him to his pediatrition and they just gave us adderall and sent us on his way. yes it h
  20. hello, i am new to latitudes and soooo glad i was told about this site from a friend. my son is now 9 and has had tics since he was 5. it started when he was in kindergarten and his teacher was unable to control him in class. he was sick alot that yr with sore throat,strep infections and ear infections. around christmas his teacher called me while i was at work and told me he was acting up in class and pretty much told me he needed to be checked for ADHD. soooo being the worried parents we were we took him to his pediatrition and they just gave us adderall and sent us on his way. yes it h
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