cab40

thank you!

Any supps helpful?

so sad. I feel my son is one of those that got hit before his brain was fully developed. He is every bit ASD. But I have to have hope somehow we can find someone someway to disprove that; that he can heal. he was hit very young. And we did not know until now about an immune deficiency. So sad. Did NOT have to be. Kids should be screened for these things; certianly not ignored when parents try to find answers from their "docs." I feel culpable too. But al lthis research is killing me and cutting into my time with them...its a very fine line for me. I have to fidn answers for him. I remember who he was. I can see it in his pictures 4 years ago......

Some kids with high-functioning autism do, in fact, "turn out okay." Aspberger's especially. I agree with you and Peg that the timing is crucial . . . and probably the duration that the child "lives" with whatever onslaught is happening to their brain without infectious disease or auto-immune interventions greatly impacts what happens developmentally. To be frank, I have a heartfelt concern that the same may be said of some cases of PANDAS. I think my son was suffering from his outsized auto-immune response to strep for the better part of 8 years before we knew it and began to treat it. So he was diagnosed with OCD 3 years into that timeframe, and I suspect his brain has, as you and Peg have noted, built certain pathways to contend with that anxiety condition. So now, even though we appear to have gotten the auto-immune issue in much better hand, he still struggles with some OCD behaviors that may literally be "ingrained" and therefore very difficult to dispel. I see him continue to make gains, but he is, effectively, years behind where he should be in that regard. It stinks. Role of Autoimmunity in Autism

I KNOW this is what happned to my son. But it CAN'T (I am just saying this b/vc Ihave to be hopeful)mean he can't be helped can it? Esp if he has immune deficiency? He was sticken before age 5, I blieve his neuropathways were disrupted. He has an ABN EEG right post temp lobe slowness asleep and awake.. I am just tryign to figure out what to so, wherre to put the eggs in a basket.......C

Autism develops early on....if u develop autistic like symptoms later you don't have autism.... Autism doesn't necessarily develop early on. Autism is really just a set of symptoms: language, sensory and social skill deficits, and a person can have any amount of any of those combined (there needs to be all 3 to make the dx.) That being said, some kids appear to be "born" with it, and some kids don't get it until "later". (The kids who are born with it, probably just have responded in-utero to something that got passed down.) It has been commonly accepted that some kids regress at about 18 months, and then it's called Autism, as well, but honestly, I've never heard of a child developing it at 5 years old. And now that I've been part of this whole thing (with one of my children diagnosed with Asperger's Syndrome to turned out to have PANDAS, ANNNND...social skills jumped 6 - 7 years overnight with IVIG treatment....I seriously have to question the whole issue of Autism. Personally, I think it is an immune disorder that causes inflammation in the brain, and that there can be all kinds of causes...including infection.

hmmm interesteing topic...

Hi, thank you...

Hi, C Mom, Was your son just found to have mycoplasma?

That IS interesting. We've talked here on the forum about a class of abx being anti-inflammatory before. I think it's the cephalasporins? Anybody else remember the thread? I think I have a paper on that as well in my "library." I'll try to find an active, working link. Good luck with the doxy, C! Let us know how it goes!

Hi, Methylation is hard to understand!

Just wanted to say thanks!

OMG you are NOT a newbie, I don't even know what a carboxyl group is. How did u find out? So good to have you here. C

Thanks, Nancy!

Hi good links!

Interesting...

Histadelia is a tough topic!

Hi Such as hard topic!

Can a lab test for histamine? What is the relationship bet histamine and histadine? Thank you....

What is the relationship bet histamine and histadine? Thank you.

Thank you all for your input!