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MinnMom

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  1. I give her a multivitamin from Kirkman that has a bit more than the RDA of Vitamin C. We've found it to be a really good multivitamin and free of all the artificials and common allergens. In addition to that we give her calcium, since she was extremely intolerant to all forms of dairy when we had her tested. She didn't test positive on the scratch test, but the IgG came back high for the whole dairy group. Other than that, she has a daily probiotic since we most likely have some healing to do in the gut from years of eating/drinking dairy. We did a yeast test through Great Plains at one point and she didn't have a yeast issue, so I haven't supplemented with anything like grapefuit seed extract. We stay away from most of the salicylate foods listed in the Feingold diet, berries and grapes being the worst for us. However, I think sugar in general can be a problem as well if it's not mixed in with certain other food groups in the right amount. Too much sugar just doesn't work for us. Unfortunately the fruits my daughter likes the most are the ones we have to eat in moderation. An occasional apple or pear peeled thick works, but we can't do it every day. Others like bananas and melon are much better for her though. I find that the salicylates don't just add to the tics though, they also seem to make her a bit whiny. Early on my daughter used to get a bit of a coated tongue, so I assumed a yeast problem. However, I found out later that salicylates can cause this same reaction. When we removed the salicylates, the coated tongue went away. Initially it took several days of removing the salicylate foods and really limiting sugar to see improvement in the tics. It's the whole glass filling up affect that everyone talks about. In our case it took a while to get the cup emptied out a bit so that we weren't seeing so many tics.
  2. We also have a hop and jump tic. Some days it would be every couple steps and she would get tired and sore from all the jumping and kicking. I've found that the vast majority of our tics tend to be food related. For example, the hop and jump/kick tic tends to be triggered by certain fruits (berries, grapes, others high in sugar), as well as articial flavors and preservatives. We also see it if there's just too much sugar in the foods that we've eaten that day or the day before. My daughter is very sensitive to some salicylate foods, so we have to be careful. An interestig thing to note is that although we've found some of these salicylate foods to be a trigger (by doing an elimination diet), most of them didn't show up as a problem food throughout our food intolerance testing. So I guess what I'm saying is it's worth keeping a food diary even if you don't think your child has any particular food triggers. We've found a lot of great info on this site as well as the Feingold website throughout our research.
  3. I wanted to respond to your email because it reads so similar to what we've gone through over the past year and I wanted to share some of what we've found. My daughter's tics came on when she was about 6 1/2 and they started with a head tic, almost a nodding action that was repeated over and over again. Shortly after she developed a couple other tics, one of them was an arm flapping, much like a birdlike motion and sometimes an arm straightening motion. We would at times also see a bit of a hop in her gait as well, but this was mainly noticeable to us. On my side, we have a family history of some tics, but for the most part grow out of them. However, I do have a relative that didn't. My daughters tics were very concerning because they seemed to be so pronounced and came on so quickly. After reading this forum and searching endless hours on the Internet, I started looking at everything in our environment and the foods we were eating. I had thought my daughter for some time was not tolerating dairy (which is also inherited from my side), but her pediatrician assured me that the stomach aches were normal growing pains etc. I took her to an allergist and they did a scratch test and found her allergic to many seasonal allergies, but no food allergies. This still didn't make sense to me because the stomach aches were getting worse, so I decided to have her tested for food intolerances, an IgG test. Her pediatrician was very surprised when her results came back and she was extremely high on all dairy and obviously didn't tolerate it at all. She also came back high on a few other food items. We immediately removed dairy, which after 2 weeks got rid of the stomach aches. Then we kept a food diary and started on an elimination diet. Many of the foods that we found to be the biggest triggers were high in phenols; things like: berries, apples, some nuts, raisins etc. These foods did not show up on our IgG test, but were huge triggers. It's the cummulative affect for us, every time we give the foods that cause the problem the glass starts getting fuller and fuller until it starts flowing over the side. It is at this point that we see the tics. So for now, we avoid all the known food triggers, take a great multi-vitamin, a calcium supplment, a probiotic, do most of our cooking from scratch, and try to stay on top of it day to day.
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