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Everything posted by KevinInMA

  1. Hi Nate. I'll send you a PM with her contact info. Probably wouldn't be best to put it on here. publicly.
  2. It started off mild like most do and then progressed but then it waxed and waned for a couple years. We did just the opposite of what you should do. We made a big issue of it and frequently told him to stop. We really had NO idea what we were doing in the beginning. We're taking the opposite approach with my daughter and so far so good. Just keeping it chill. Like yeah, sorry honey. No ketchup for a few days. Here's something else. We don't really talk about it much so as to limit her concern about it. Keeping it light is very important, in my opinion. You don't want to stress out your ki
  3. I don't know if I ever wrote about this, but we started off following the same route as everyone else. Start off with the PCP who tries a few things then sends you over to a neurologist who tries a few things. That took several months. It was during the neurology step where things went really bad. We had the world's worst pediatric neurologist. She started him on Clonidine which turned him into a zombie for half the day. The other half of the day he was manic. She switched him from the pill to the patch so he was more even keeled and gave us no instructions on how to make the transition.
  4. It's very scary the first time around. I feel your struggle. After 5 years tic-free, it was also kind of scary to recognize that my daughter had started experiencing tics. But then we realized that we know what to do. So far it's been manageable. Hopefully it stays that way. Doctors may tell you that these things are only treatable with medications. For us, that was just not true. The neuro even rolled his eyes when I told him I was seeing a nutritionist rather than treating it medically. They have their schools of thought and not all of them are based in reality. You're taking the right
  5. Hi everybody, I received an email today asking for an update. I haven't really revisited this site since... well, apparently 2014. Seems like an update is overdue so here goes! My son is now 16 and, although we've seen one head-nod tic come and go, he's mostly got it under control. I don't really have any control over what he eats at this age anymore so I try not to worry about it. He tells me not to worry about it so I don't. He's old enough to take responsibility for himself now. On the other hand, my daughter (10) developed the same symptom as he did at that age, but so far
  6. Hi! Currently he's eating normally. He doesn't eat a LOT (but really should eat a WHOLE lot more given his level of activity) but what he does eat is a mixture of healthy food, normal food, and complete junk food. Over the past couple months we've really become laced on his supplements. We really should get back into it but I'm so sick of reminding him twice a day to take his pills. 12 years old and still needs to be reminded twice a day to take pills. Come on.... It's hard to tell which ones made a difference with his tics. I'm pretty sure Natural Calm was a big help. Other than that I'm
  7. I really wish I could remember how much NC we used. I THINK it was a heaping tsp twice a day but the real way to know is to slowly up the dose until your daughter experiences the stomach/stool issues, then back off. Everyone reacts a little differently to is so there's really no one dose for all. I hope you find it helpful! We haven't used it in a year or so.
  8. Wow... It's been over two years since I last posted! How did I ever let that happen??? Well, for anyone that remembers me, I put my son through quite the dietary ordeal to try to manage his tics. If this blog is any indication, it was pretty darn successful. Since my last post, we continued working the diet and his tics continued to be absolutely minimal. We realized, though, that at some point we'd have to test the waters. In April 2012 we took a vacation to Disney and decided that this was going to be the point where we start to let him live again. We turned everything back on. H
  9. Actually no, Cheri. In fact I hadn't considered strep as ever being the cause of this. What do I need to do to find out if this is related? It would make sense that he eventually healed the strep last year and thats why he was fine for so long until he got sick again......
  10. Really thought we had something with getting rid of the Cliff bars. Everything went away within about 3 or 4 days. Not it's coming back. So much so that when he was with my mom at the Lego store over the weekend the guy woking there picked right up on it because he was a tourettes kid too. According to my mom, my son and the guy there had a very lengthy conversation about it. I'm worried.... I feel like we need to go ALL the way back to square one. I friggen' hate this. So much...
  11. That's very comforting,Chris. Hopefully we've found the culprit and it'll go away quickly. Thanks for letting me know.
  12. Damnit...... I'm convinced what I'm seeing are the beginning of tics. We did some playing around with his diet but the whole time we insisted on keeping salicylate exposure to an absolute minimum. We incorporated those Kids Cliff bars along with a few other little things here and there. He also had halloween candy, although not much. I'm REALLY hoping ditching the Cliff bars will fix this cuz the eyes are starting to roll again and he's getting the breathing twitch again. It's pretty infrequent and really aren't at tic frequency yet but you know me, I hyper analyze every mo
  13. Welp.... All good things must come to an end.... and thankfully, so far, this one hasn't. Ha! Got ya there! (this better not jinx me!) Actually, there is one thing but it's no big deal at all. For the first time since starting this diet (nearly a year! WOW!) Brandon has taken ill. He got a sinus infection. Personally, I blame my wife for letting her illness go unchecked for nearly a month but whatever. Of course, along with a sinus infection you get crazy sniffles, hacking cough, and itchy eyes. All of these things are that "symptom becoming a tic" thing that I've been so worried a
  14. A lot of what she does is outlined in the early pages of this blog but ultimately she uses applied kinesiology (to most people, this is considered voodoo magic) to determine what he needed to eliminate. If I didn't think of this as a last resort I would have walked out but I sorta know what i was getting into when I walked in. His supplement list is also in here in one of the early pages. The only thing that has changed is the amount of each that he takes. She adjusts it now and then. This whole deal was a huge undertaking and is only slightly less of a huge undertaking even 11 months late
  15. Hey! I just realized that I've left you guys hanging here for months. Well, lets see... What happened this summer...? We decided that since everything was looking so much better, that we'd let him be MORE OF a "normal" kid this summer. If we were going someplace for ice cream we'd let him have the ice cream but try to avoid whole categories of his diet like he can have ice cream now and then but no crazy colors or stuff in it and no cones. We didn't go too much farther than that. We allowed him chocolate and even marshmallows now and then to make smores (which he loves) but I came up with
  16. It's spring and life has been going on. Things aren't bad. There's absolutely no evidence of a cough at all anymore. The eye rolling is very very infrequent. He does a LOT of nose itching but I'm not convinced that thats not just some kind of seasonal allergy. RIght now we're in wait & see mode with a little "trying new things" mixed in. It's summer... I need to let the kid live a little. He's had a bit of gelato, nothing crazy. We ordered him a big gluten free cake for his birthday party next week ($75- yeesh). Umm... We're trying to stick with it but also trying to let him be a kid
  17. Wow. I haven't updated in a month!! This is a no-news-is-good-gnu's type of deal. We continue to stay the course. Those symptoms came and went last month. The nose-itching still happens a lot but I'm not sure if we should be chalking that up to some kind of environmental allergy. We find that Gold Bond cream helps so we've put the responsibility on him to keep up with the application of it. If he can get that under control we'll start adding in stuff.... We keep putting it off, though, mostly because we're afraid of the return of the tics. I don't know.... Maybe we're just torturing
  18. Thanks Cheri. It helps to have others verify my suspicions. We'll be going back to see Thea within the next couple weeks to get him going on some seasonal supplements. She says she frequently uses that same thing you guys do.
  19. Ok. I'm trying to wrap my brain around what is going on here. Its becoming increasingly clear that he has a seasonal allergy that is causing stuffiness and runny nose and itchy eyes and stuff. This results in some throat clearing and coughing and eye movements that are similar to his tics. So I'm wondering if we are working with two separate issues. One being the seasonal allergies causing symptoms and the other being a food allergy causing the symptoms to turn into tics. This seems simple on the surface but just sounds kind of pie-in-the-sky to me for some reason. The cough and th
  20. Thanks Cheri. If thats the case, does it stand to reason that these aren't actually tics as much as they are symptoms of illness that can be treated in other ways such as allergy drops?
  21. Okay, somebody please reassure me that the reason I'm seeing his eyes roll now and then right now is because he's fighting off a cold. It's really really bothering me. I'm just hoping it's this cold and I need to hear that this is a possibility. Thanks!
  22. Thanks Megan. I guess it's one of those things you just need to gauge when it's happening and go with your gut. @mythree- Your post has me wondering if we're not as out-of-the-woods as we think we are with respect to the nose scratching. I'm going to have to put some more thought into this (in other words- worry about this) and maybe discuss it with Thea. There might be more to it than it seems.
  23. Does anybody want to buy a 16 oz bottle of Natural Calm w/ Calcium Raspberry/Lemon flavor for $25 shipped? Thats what I paid for it and thats half the price you pay pretty much anywhere. It's unopened. I wish I could have cancelled the shipment before they sent it.
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