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Ginger

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Everything posted by Ginger

  1. Oops...I forgot IGE. Anyone know how to change a poll??
  2. Hello Everyone, Just curious to see how many of our children have immune issues. Sorry if this has been done before! Thanks! Ginger
  3. Ugh!!! My son did not like that shot!!!! Not sure we are going to be able to do this every month. He is a pro at giving blood, but this shot thing...not so much. Poor little guy!
  4. Hello Colleen, My son seems to have elevated MPV, High Neutrophils and low Lyphoctes. C reactive Protein is always high. However the WBC is usually in the normal range. Sorry I don't know if this helps or not.. Ginger
  5. Good Morning! My son has a doctors appointment this morning, and I have a question. He has been on Antibiotics now since Feb. 15th for strep. The latest being Keflex, this one seems to help the most. Anyway the doctor wants to give him a shot of Amox. this morning. He gives this to his Reaumatic Fever patients. It is suppose to protect him for 28 days?? Has anyone had this? What are your thoughts? Thanks so much! Ginger
  6. Just thought I would post my son has had numerous confirmed strep infections, and with negative ASO tests. We have tested 3 times during an infection, at 3-4 weeks after and the other one I really couldn't pin point, because all of the infections seem to run together. They just never seem to rise. Ginger
  7. Wow. That is great that you have so much proof of this. I can always tell when my son has strep, by the fact that he starts to spell his name backwards...he is only 3 so that is really the only thing he writes, but his coloring and pictures are awful as well.
  8. Is he trying to be funny? Silliness is a common PANDAS behavior. I watch kids at my gym's daycare twice a week and there is a 3 year old that also blurts out random words that he thinks are funny. It's totally him trying to funny because to him and several of the other younger kids, IT IS funny. Thanks for the laugh ladies! As I sit here and read my post I think this really sounds so insignificant, why can't I stop analyzing everything and just enjoy my sweet boy!? I guess when you factor in everything else it just gets so overwhelming, and you what more then anything to
  9. Hello everyone, Just curious if anyone else has experienced this? My son is 3 1/2 and every time he gets strep he starts to make up words. Not really baby talk but words that just don't mean anything and lately we will be talking and he will just blurt out crazy words like eyeballs. It is very frustrating, so I am curious if he is just being 3 or if this could be a tic??? It usually gets better when he is on antibiotics, but this time not so much. Thank so much! Ginger
  10. Just wanted to say good luck tomorrow! Wish I had info on IVIG, but we haven't went down that road yet. Please keep us posted.
  11. Thanks for the info Ladies! My son has been on Augmentin, Keflex, tried Biaxin but he won't take it, zithro. Oh gosh, So many I really don't know where to begin! The doctor decided to go with Bactrim based on information he received from the Mayo Clinic. I think, becasue this is the only antibiotic we haven't tried??? My son's IgG levels are really low, in all sub classes but more so in 3. Please see below. I think many of you are experiencing the same thing. Total IgG 355 Ref Range 295-1156 IGG-1 268 range 158-721 IGG-2 70 range 39-176 IGG-3 19.6 range
  12. This article gives me hope! Not sure how to post a link, but I am going to try. Vickie thanks for posting the above article, of course I was then curious and found some more info that explains how the doctor found this connection. Good stuff http://journals.lww.com/neurotodayonline/p...p;type=fulltext
  13. OMGoodness...I have never thought of this. We just put 3 Spiderman tattoos on this morning. Sould we worry about dying easter eggs as well?
  14. This is so scary, but also so fascinating. "A doctor in Pennsylvania developed a way to test for the antibodies that trigger the disorder" we need a test like this for PANDAS!
  15. Hello Everyone, Well I am 99.9% sure my son has strep again. I hate strep!!!!!!!! I took him in yesterday to be tested, we did not do a rapid since he is on Antibiotics, so the doc took a culture. He has had all of his normal symptoms...aggresive behavior, problems sleeping, melt downs. This all started a week ago, but I guess I was in denial. Then I noticed the strep breath on Tuesday and Wed. morning he said his mouth hurt. Then our last stage started last night..bed wetting. Guess I should mention there were 2 confirmed cases of strep at his daycare this week also. Hoping you
  16. Thanks for the input. I am doing the exact same thing (Checking Temp)...and yes you are right you can't really see it. I have noticed this on my son before, but never this bad. The doctor seemed pretty sure it was a strep rash. I have to say the yeast thing makes since, because he has been on so many antibiotics. However, his daycare is full of Strep right now. Who knows!! Sometimes I think I am going to lose my mind with all of this. He has been complaining of his tummy hurting as well the last few days. Today was a scheduled appoitment to draw blood and run more tests. We have alrea
  17. Hello! My son has that sandpaper rash back again, and a red ear. He is on Keflix twice a day right now and his rapid came back neg. His behavior is actually only ramping a little. Any experience with this rash? Could it be Yeast??? My son is 3 1/2. Thanks in advance!
  18. Hello Everyone, Just curious if anyone has suggestions on what type of Vitamins and Probiotics? How much..Ugh, way too many to choose from. Thanks! Ginger
  19. Hello Again, Just thought I would update everyone on the test's my son had done, and need some advice. First I want to take a moment and let everyone know my thoughts and prayers are with all of you. Everyday I read post's that just break my heart. Thank you for helping me through this, it means more then you could know!!! I have also attached my previous post, so you know what we are dealing with. I do have good news to report, my sweet boy is coming back to us. The only sympton we are dealing with now is bed wetting. Poor little thing this makes him so mad! He is still on Auge
  20. My son has complained of his fingers and knees hurting during and shortly after a strep infection, this was one of those times that he had strep back to back for 2 months.
  21. Oh my goodness! Hope you had a c-section! Wish I would of...
  22. No steroids with my son. I had to be induced at 41 weeks. He was very large 9.8. He was Jaundice due to the trauma. Poor little guy, seems like it is always something!
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