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Jaysmom

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  1. Help please! My ds 19 ( Pans ,Bartonella,Lyme)make the adrennals cortex panel from Genova .That shows that the cortisol levels in the morning are in normal rage ,after noon increase the levels ( upper of normal levels) until 4 in the afternoon and after go down of normal levels at 22.00. . My son about 15:00 in the afternoon has always increase of anxiety with panic attacks. And OCD This is maybe related to adrenals ups and downs ?What can I do? I have several adrenals support as adrenal from Neutramedix and Adrenal Glandular from Nitricology. All the doctors now is on vacation and I don't know what to do! Can I give these products and what time must I give that ? Thanks in advance
  2. Help please! My ds 19 ( Pans ,Bartonella,Lyme)make the adrennals cortex panel from Genova .That shows that the cortisol levels in the morning are in normal rage ,after noon increase the levels ( upper of normal levels) until 4 in the afternoon and after go down of normal levels at 22.00. . My son about 15:00 in the afternoon has always increase of anxiety with panic attacks. And OCD This is maybe related to adrenals ups and downs ?What can I do? I have several adrenals support as adrenal from Neutramedix and Adrenal Glandular from Nitricology. All the doctors now is on vacation and I don't know what to do! Can I give these products and what time must I give that ? Thanks in advance
  3. Thank you s_f mom Do you have experience or do you know someone with experience from there?
  4. Hello friends My ds 18 has Pandas and Bartonella Just diagnosed but must have Bartonella from the age of 4 I can't proceed unfortunately with the abx treatment because even if I treat very slowly with minimum die off the detox of Bartonella is too much to my son to handle Even two drops of Burbur detox and my son has herx.I would like some advice about PEX and IV abx to reduce the Bartonella and maybe after that to proceed easier with treatment Does anyone knows a clinic in U.S. or in Europe who can do this? Maybe to you know about Dr Dietricht Klinghart Dr Armin ( Arminlabs Germany) Dr Jemsec DC Thanks for any help
  5. Very sad for you and your son dear michellb What is the PANS trigger of your son? Did you check for Lyme and co infection through a safe lab? ( like Igenex) Seems to have some bacteria from tick bite PEX take out an amount of that but that returns Before Rituxin check for Lyme and co infection I don't know what the Pandas dr say that Lyme and co infection can be initial trigger for PANDAS and or they don't check for that or when they check they sent you in Lab with false negatives response
  6. Hello Eloine,my son has only Bartonella no Lyme.the abx that dr suggest is Azithromycin,doxycycline and Bactrim Unfortunately I can't proceed with the treatment because the die off is more than I can detox.So know I try to detox first to make more clean the body and after I ll go with abx.Something more for detox is burbur and Pinella .is only 3 days that we use that but it seems that are good enough.
  7. Thank you for your replays.nicklemama the way that I give the abx is as you say and very slow .But after 3 days of low dose of 1 abx he start herx,and herx for us is severe sound intolerance that make him with rage and of course increase of OCD Until now I detox with charcoal,Epsom salts. Baking soda ,and lot of lemon water.also I give ibuprofen .Today I received Enhansa and I wait burbur detox and Pinella What dose of Burbur detox do you give?something else for detox and support the use of abx?
  8. Hello from Greece! My ds18 is diagnosed at 12 with PANDAS and 3 weeks ago diagnosed through Igenex with Bartonella! My son sudden onset was at 3 years old! Unfortunately the doctors here didn't know something then ( not even now) and my son was without correct treatment until the age of 12.Then dr. K diagnosed him with PANDAS and started Augmentin and some IVIG .In the begging of the treatment was better but after one year that stopped working .The major issues for my son always was OCD ,regression age ,dysgraphia,difficulties in social skills,sound sensitivity ,toe waking ,ADHD. 2 years ago the health of my son was much worsening with extreme sound sentivity with ear pain that caused to him psychotic issues like agression,rages ,panick attacks . we went to US and checked him twice for Bartonella and others with dr T but where negatives . All these years we made many lab test that except high strep they didn't shows something else. Was like he was a healthy child but he didn't was! Last winter was in .... He take steroids long term he gain many kilos but the phsych issues remain! So I decided that he made PEX to find some relief ( I heard about that in the last seminar in Italy from dr L) I forgot to tell you that last winter my son was full of stretch marks in his body but I thought that was from the weight.But after the PEX the stretch marks disapeard and also the psych issues with the sound sensitivity ( but OCD and others still remain) Then we come to US and see dr B that says when he show my son " this is from tick bite! this is the initial trigger for PANDAS and the autism like symptoms!!" 3 weeks ago we took the Igenex results and he is positive for Bartonella ! Dr B.suggest combo of 3 abx ( Azithromycin,doxycycline ,Bactrim) but sooooo difficult to take. From the smaller dose make him with old symptoms ( die- off)and I m afraid to proceed ( because of rages ) I try very hard to detox ( Epsom baths,Curcumin, baking soda ,charcoal,ibuprofen....) I need your help please. I ordered already the neutramedix stuff he is also in GFCF diet. Maybe I must have another dr also to help me with detox or another problems ? My son is with problems all his life I want so much to help him now that I found something Thanks in advance for your help and sorry for my English!! PS. I would like also the opinion of rowingmom.She is a guru as many others moms.
  9. I'm a mother of DS 14 y.o and he has PANDAS from 4 y.o but has been diagnosed 1 year ago. We are 1 year in Antibiotics Augmentin 500 mg daily and we have make 9 IVIG. The improvement it was very good except a month ago that we had a new autoimmune inflammation and our doctor suggest for 2 weeks abx 2000 mg daily. My question is this, i don't give him anti-fungal and i think the YEAST has been overgrowth. My doctor doesn't want to give anti-fungal because of die-off, what are you doing in same cases? Thanks for your support Maria
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