Status Replies posted by Iowadawn
The doctors. Period. We were dx'd in Iowa, but the trx is way behind. We have a young psychiatrist who has been very excepting of IVIG, but probably feels ordering it is outside his expertise. The infectious disease doc dx'd it, but nothing but Pen-VK. Period. This guy is well respected at the leading children's Hospital here and I am sure this carries weight. We find more & more docs aware of it, though. Finding a doc who understands or is at least willing to try to lear...