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braveheart

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  1. I'm SO confused, and would appreciate your help very much! My 12 year old son has been treated for PITANDS and PANDAS since 11/09 (for tics originally, then Pandas tx, but ocd/anxiety/new stimming still an issue). His bloodwork stats: IgE: 11/09: 580 5/10: 1030 (post bad PANDAS outbreak, Dr. later said if he tested 10K kids, less than 10 would have such high levels?) 3/11: 738 In a nutshell, Dr. thinks if IGe were to go down, son would be a much happier, relaxed boy. But how to do this??? During those same dates, his PANDAS titers were: 11/09: ASO 413, DNASE B 273 5/1
  2. I'm SO confused, and would appreciate your help very much! My 12 year old son has been treated for PITANDS and PANDAS since 11/09 (for tics originally, then Pandas tx, but ocd/anxiety/new stimming still an issue). His bloodwork stats: IgE: 11/09: 580 5/10: 1030 (post bad PANDAS outbreak, Dr. later said if he tested 10K kids, less than 10 would have such high levels?) 3/11: 738 In a nutshell, Dr. thinks if IGe were to go down, son would be a much happier, relaxed boy. But how to do this??? During those same dates, his PANDAS titers were: 11/09: ASO 413, DNASE B 273 5/1
  3. I can't thank you all enough for your advice and sharing of your experiences; I'm printing out this entire thread to research and plan. I'm so impressed with the support, knowledge, wisdom, compassion and advocacy of the parents in this group - pretty humbled by it. Thank you.
  4. Thank you for responding and all the insight you've offered. CJ: Yes! We've "talked" on the practice's forum! EAMom and Nancy, thank you for your very kind and helpful replies. I have some questions that may seem elementary but I really don't understand some things: How is yeast overgrowth controlled at such high doses of antibiotics? This, along with the risk of AB resistance seem to be of big concern of my docs. Son weight 80lbs. Do the PANDAS concerns trump the concern of long term, high dose AB? What are the real risks of AB resistance? I may be wrong, but my limi
  5. I've been reading here for months, and thank you all for the incredible information you are sharing. We're a bit lost right now, and I'm worried we haven't been treating our son as aggressively/correctly as your children, but I'm not sure. I know this is long, but thought the whole history was important to understand our situation. ANY advice you could share would be appreciated more than I can convey. Thank you! Son 11, starting Middle School few weeks, dealing with tic/OCD problems for 2 years. He’s an otherwise healthy, smart, outgoing kid. Summer 2008 moved from VA to TX,
  6. We live in Austin, TX and I've gone through the list of doctors on the aaem.com site. I'm overwhelmed with trying to figure out who to call for an evaluation appt. I've read Sheila Rogers book, that is why I thought to pursue an evaluation through an aaem doctor vs a children's neurologist, but how do I choose one that is 1) focused on children, 2) any good, 3) not a quack. None are local to me, so requires 2-3 hours of travel. 10 year old son has had tics since Jan. and they've gone from neck jerking to coughing to eye rolling, and back and forth. Pediatrician told us to wait it out.
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