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ShaesMom

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    ShaesMom got a reaction from Dedee in IVIG and Lyme   
    I had a very similar conversation with our Immunologist today although not necessarily in regards directly to Lyme but more so to the PANDAS side of things. He really emphasized that there isn't any perfect model out there for PANDAS, PIDDs, or any other illnesses because everyone truly is an individual and you have to take into consideration genetics and environmental factors among other things. What works for one person is not necessarily going to work for the next and there may be no real explanation as to why.
     
    It is my understanding that IVig is not a preferred nor recommended treatment for those who are only IgA deficient.
     
    I think my Immunologist would have a rather heated discussion with the LLMD who feels that IVig is "immune suppressing". I would like to be a fly on that wall! My dd had seven years to train her body to fight the LD on it's own and the LD has obviously been winning the war.
     
    I realize that our positive experience with IVig is not necessarily the norm for everyone but it has been our experience.
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