thereishope

An okay day is better than a horrible, "I can't take it anymore" kinda day. Let's hope in a week you can report a "better than okay" day:)

I think we knew this would come some day. I found this about it too http://www.ahc.umn.edu/research/corridors/infectiousdisease/strep-vaccine/index.htm

Oh, I also had to teach myself to stop asking him to eat something every 5 minutes. I actually had to time myself. I allowed myself to only ask once every hour. But, I always got a no.

I wonder why Bactrim. Yes, the doctor could have been more complete and should have know if she was on an antibiotic.How far into the steroid burst is she? As for the not eating, hopefully the antibiotics will help with that. I love it when docs say the kid needs to eat. um....yes....I know that, but that's why I need you...I need a doc to help get my kid better so they will eat something....

It has Vitamin C in it. It's the first one listed in the square. Not as much as someone can take, but it's in there.

The biggest thing my 10 year old will swallow is a Pearl probiotic so he takes the chewables too. His allergies aren't bad this year and he gets away with one tablet in the morning only, none at night.Last year they were worse and I gave one in the morning, one at night, but he probably needed 2 in the morning. Allergies are usually worse in the morning. I,admit, they're more expensive than Claritin and I try to give the minimum to make them go farther. My 10 year old is tall and skinny. He probably only weighs 80 something pounds. I was able to find them at an independent pharnacy by me that is a compounding pharmacy too so it's worth calling around to try to save on shipping and maybe even get a discount.

yes. At the signs of seasonal allergies, I give him once in the morning, once at night. The ingredients are at different levels in the jr one.On the Jr bottle, it says to give 1-2 chewables twice a day or as directed by your doctor.I can get away with only one in the morning, one at night. http://www.orthomolecularproducts.com/ProductDetails.aspx?id=7fe03e2f-d0c6-4cb5-aa5e-a5e8a2f8a0c5

I don't know the dosages of quercetin. What I can provide you is a link to the ingredients on Natural D-Hist. Go to the supplement fact box. http://www.orthomolecularproducts.com/ProductDetails.aspx?id=e3dd50ed-7f02-4d19-9e2a-907d09d57923 Here are the directions so you can multiply and figure out the what the entire daily dose comes out to be... Suggested Use: As a dietary supplement: Initial dose of 2 capsules 3 times daily for 7-10 days. Acute symptoms take 2-3 capsules as needed. For maintenance, take 1 or more capsules per day or as recommended by your health care professional.

I think this is the thread EAMom was referring to http://www.latitudes.org/forums/index.php?showtopic=6654&st=0&p=52554&hl=mediterranean&fromsearch=1entry52554

Here's another Buster thread that's good adhesion, colonization, invasion and infection http://www.latitudes.org/forums/index.php?showtopic=5520&hl=

Buster mentioned strep on the skin before. This is a good thread to read. A little bit about ASO Titers http://www.latitudes.org/forums/index.php?showtopic=3756&st=0#entry29305 I can't remember who or when, but someone posted on the forum that impetigo is one of the strep infections that don't show a titer rise -- I think because of the cholesterol in the skin neutralizes the strep toxins...I'm going by memory, though.

yes, I agree. One can find explanations/studies on this in Buster's Fact Sheet as well http://www.latitudes.org/forums/index.php?showtopic=6265

A side note in regards to a rise in titers, some kids even with a strep infection will not have a rise in titers. They are not always reliable. Also, sometimes it is not strep induced and some parents have cited a worsening of symptoms when their child is around another sick person (strep or other illness). Also, with some PANDAS kids, other non-strep triggers within themself (allergies, viruses, other infections) will trigger a response. Yes, you cannot assume that just because a child ramps up it is always strep related. Well, with some kids their strep triggered exacerbations are pretty tell tale that it's strep as they may vary from non-strep triggers and the parent "knows" it's strep even before a test is ever performed. For many,strep is the original trigger and then the pandora's box opens and they begin to react to other things as well. Yes, you drive yourself batty with this.

Some compare the PANDAS reaction to a peanut allergy. Some kids have such severe peanut allergies that they will react to peanut particles just being air borne.

Singulair is one the allergy med I have heard warnings about on this forum. Even if the singulair was having negative reactions to him, it still was probably helping his allergies and in turn (because his allergies were calming down)helping some of his PANDAS symptoms. Allergies themself can worsen PANDAS symptoms. What allergy meds did you switch too? For us, Claritin worked at first but on day 10 got hyper and increase in OCD. For my child, Benadryl or D-Hist jr worked. Each child acts different to allergy meds, but it is important to find one that works in all ways since we need to keep allergies under control.

Is this if you can find tetanus by itself or is the combo okay as well in his opinion?

I thinking any form of "checking" when it's pretty constant and anxiety at the unability to do it would fall under OCD. There is reassurance OCD in you explanation too. Are you familiar with BDD (Body Dysmorphic Disorder)? This is an OCD spectrum disorder. A simple blemish or mark is seen is majorly worse than what it is. Say, you have a scratch, that person may see it as being so sever that it appears disfiguring to them. Granted, there are different levels and severity of the disorder, but it may be something ot look up. I have a BDD article sitting here waiting for me to read. I'll try to move taht to a priority to see if it's worth passing along.

I didn't hear anything about that. If you find out more info, please post. I've heard that strep and the flu often piggy back each other and that people may be more susceptible to strep after get a flu vaccination, but not that any strep was actually included in one.

My son first tolerated Claritin well, but on day 10 his OCD ramped up and he got hyper. For him, Benadryl worked or D-Hist Jr. Every kid is different with how they react to allergy meds. It is important to learn what is best for them and keep allergies under control as allergies can worsen symptoms as well.

Amoxicillin can erradicate strep in some asymptomatic people (it did in my asymptomatic kids the first time they had strep), but knowing the failure rate and everything you've gone through, I'd ask for something else.I ask for a different antibiotic now even though I know they have cleared on amox in the past. As for the Cipro, I thought that wasn't that great for strep so that may not have helped anyway.

Welcome to the group. So, she finished the Azith on April 17, do you know when she was retested? If it was 1 1/2 weeks ago, that might have been too soon. You can get false negative strep test while on antibiotics and soon after.You could take her once again to get tested when she is at the point of being off antibiotics for 3 weeks. At point in relation to taking the Azith did you see improvement? If you see a steady improvement (even with a bump here and there) it could be that she is healing. However, you have to realize a bump is different than behaviors indicating possible infection. I can't really tell you what the difference is, but your gut would know.I wish the healing happened as fast as the downward spiral, but it does take awhile. Also, you should test the whole family for strep, even if they do not have symptoms. Here are some helpful things to read that you may find helpful PANDAS Fact Sheet http://www.latitudes.org/forums/index.php?showtopic=6265 PANDAS FAQ http://www.latitudes.org/forums/index.php?showtopic=6266

Update: I took my daughter for a follow up strep test and rapid was negative! Still waiting on culture which my gut cautiously tells me negative. My PANDAS son remained well and my 4 year old non-PANDAS daughter never showed any signs of impending PANDAS. I feel like we dodged a bullet laced with strep. I am very thankful.

OMG....you made me laugh and smile! Go for it!

I created the video but it is a "product" of PANDAS Network, which I volunteer for. I don't see it as one person doing this, it's all of us trying to explain to others what we live with and what to look for.

I'm working on it