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LLYNCH

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  1. This is all so hard. I have four children 19-11 and I have never experienced anything more difficult than what I am going thru with my sons tics, he is 11. And we have had some whoppers and auto immune issues. For my son, he broke his wrist playing baseball and I began to notice slight movements in his hand and I thought it was the cast. Cast came off and I still noticed. Then it was facial grimacing when he would get off the bus. Took to any local neuro and he said those are tics.. ignore and they will go away. Well lockdown happened and It was mind blowing. We have tried three neurologist. We tried three meds, all a complete disaster. We did CBIT therapy. Wasn't terrible helpful, I did functional testing, only thing we gained from that was take magnesium, we did MRI and his brain is fine, I have tried weighted blankets, CBD, essential oils, chiropractor, weekly therapeutic massages. Magnesium cream for his feet at bedtime. I am currently looking for an integrative doctor but my son has Ulcerative Colitis so I need to find someone who is careful about what I give him. I am at a total loss and just spinning my wheels. I want to know why/how they started, I am unable to accept "your son has tourettes and there is no cure". We have full body complex tics with some vocal tics (silly noises not cursing). The tics come and go (are present more than they are not) and come back in all different ways. Right now he has this terrible arm slamming tic, its horrible. Vocal Tic at bay at the moment (watch, I probably just jinxed myself). Kids at school notice. Im am sad for him, big time. and when I have had days where he is home (we recently had a snow storm) and I see the tics 24/7, I end up having a good old meltdown when he goes to bed. I think to myself.. there has to be a way to help him... There just has to be!!
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