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melanie

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Status Updates posted by melanie

  1. melanie

    Hi. I have to say I would like to up the dosage but his immunologist won't. I can tell you that Danny has come a very,very long way from when this took over his life. He is doing well not cured no not cured. He is 18 and acts as if he's 14. Minor like he stopped maturing when pandas hit. I will continue the ivs until ?.. So the answer is yes. It has helped a lot !

  2. melanie

    Congratulations on the grand baby. Hope she's ok. I'll tell you more when I speak to the md today

  3. melanie

    Call me later after work and I will look at the insurance paper and see what the codes are ..I had to fight but Dr T was the one who got me approved 732-489-6375 I dont use him I use UMDNJ but he was the initial DR

  4. melanie

    Im sure Ive asked this before .What dosage monthly are you using??

    Thanks Melanie

  5. melanie

    Mary can you tell me the dosage our script is 250mg 3x a day

  6. melanie

    spect

    1. melanie

      melanie

      Continuing IVIG every 21 days at home 2 years at (60 grams )Completed Plasma Exchange (5) November 2011.Dans getting better but not cured .DX with PANDAS by 5 different MDs and autoimmune dx for IVIG.Has made progress and slowly improving.

    2. moccosisco12

      moccosisco12

      hi, melanie.

       

      I really would love to talk about your son. My DS is 14 and really stuggling with movement disorder due to PANDAS and now Coprolalia. my email is ksisco1210@aol.com

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