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usernamecat last won the day on December 9 2020

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  1. Hi there. I apologize the the extended amount of time it took me to reply and post again. I was in a sort of denial and was trying to avoid dealing with the emotions that came with my daughter’s tics. Here is a run down of our story and what we’ve tried. Chiropractor: helped with her posture and overall wellness but did nothing for her tics Grapefruit seed extract: 1 drop in water once a day when I noticed her tics were extreme. It appeared to have helped but I’m not 100% sure if it’s the grapefruit or the foods we have eliminated. Neurologist: recommended she be put on a medication patch. We did not feel comfortable putting her on meds since the tics themselves do not hurt her physically, emotionally, or socially. Sheila’s book, which was very encouraging and full of helpful information. Got her a Fitbit sleep tracker to monitor her sleep and see if it correlated with increased tics when she got less sleep. Kept a Food Diary Food Elimination: this one I feel was the biggest one. We as a family already are gluten free, egg free, cashew free due to my little one’s food allergies. Other foods we eliminated are: Dairy Corn Tomatoes (nightshade) Garlic Cinnamon: we saw a huge spike in tics after thanksgiving when she had pumpkin pie which had cinnamon in it. For a few weeks she was doing well, only a few mild arms tics throughout the day but post thanksgiving it spiked back up. I feel like her main triggers are Cinnamon, Corn, and possibly Garlic and Tomatoes! I’m unsure about dairy but we’re going to wait until she gets to baseline before reintroducing it. Currently she’s still ticking moderately possibly because she had some pumpkin pie last week (cinnamon trigger). Plan: Reintroduce grapefruit seed extract 1 drop once a day. Continue sleep tracking and food diary No dairy, no corn, no tomatoes, no cinnamon, no gluten in her foods. The bright side: These tics bother me as a mom more than they seem to bother her, the child. So over all I’m very grateful she’s still a happy and healthy kid. Also virtual school from home has helped with the social and emotional aspect. Our hope: We find her trigger and avoid it so she can be tic free or as close to tic free as possible OR she just grows out of it. It was really hard at the beginning and I can’t say that it gets better but it does get a bit easier with time.
  2. Thank you so much Sheila! Your words are very comforting. I have asked her pediatrician for bloodwork to test for common food and environmental allergens. My question though is if it is indeed an environmental allergen and we cannot avoid it, what should we do? Will her immune system eventually grow out of that allergen and hence the tics will be gone? I've read through the forums and we are trying epsom salt baths every other day, adding an extra probiotic to her milk, limiting her sugar + processed food intake, and adding some magnesium supplements. We try to limit screen time but it is hard to do that with school being virtual I'm also taking her to see a pediatric chiropractor today as well. Thanks again.
  3. Hi there, I'm new here. My daughter is 7 (almost 8) she started developing some weird arm flapping movements along with jumps, this is happening all day and it worries me so much. I realized it could be a tic since the year previous when she was 6, she had an eye blinking tic. Her pediatrician is referring us to a neurologist who stated she may have complex motor tics during their consult. We are currently waiting for the neuro to schedule an appointment. It is so worrisome, I've had constant bouts of crying everyday. I am hoping that she will just grow out of of it or it decreases to only a few a day but will not affect her if she is at school. Currently she is doing virtual school from home due to covid (we are in California) but if these tics remain .... I'm afraid of her emotional and social development if kids tease her. During her zoom meetings she says she suppresses them but after the meetings are done she does a bunch. I tell her that it's ok if she needs to release them during her meeting or anytime she feels the need to and does not have to hold them in. Diet wise we have always been gluten free (her younger sister is allergic to wheat, egg, and cashew) and she's always had probiotics in addition to her multi-vitamins. I am going to add magnesium supplements for her. If anyone has experience please share! Does complex motor tics usually go away? Currently she does her arm flap and jump with the occasional eye blinking/roll tic. Is this a sign that she has TS? Its all so overwhelming. :( Thanks for reading, any advice, feedback, or stories would be really appreciated.
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