Report Am I crazy and he's normal? :-) in PANS / PANDAS (Lyme included) Posted December 11, 2009 Now, I or my DH have to write the words in the books for him because he is afraid to write them wrong. Then we have to re read them to him twice so he knows WE wrote the words correctly. If it's wrong, he'll rip it up in a fit of anger. His new thing is and I know this is PANDAS - he HAS to draw one picture of 8 small superheros before bed every night. I mean, I tell him it's bedtime and he will RUN away from me, grab a paper and crayon and go for it. It doesn't matter what they look like or if they are just scribbles, as long as it's done. He can't stop to do anything until those 8 superheros are drawn - last night DH was waiting for him to get in the shower and he ended up waiting quite a while because they had to be done properly. We've come to accept that because it doesn't take very long and at this point, anything I can do to keep peace at bedtime... Always worried about it expanding though This behavior might be caused by Pandas, but the behavior and thoughts behind it are OCD. Regardless of why it's there, giving in will only make it worse. It will expand and morph if it's allowed to. It nurtures the fears and rituals and by appeasing, you send the message that he's right to be afraid, that there is "truth" in whatever he's believing. Your actions say "Mom and Dad think you're right to listen to that voice" and the voice grows stronger. Believe me, I know how hard bedtime can be and how things can fall apart in a split second. I know the rage that comes from not letting them follow their scripts. I've been there many many times. But you might want to read a few children's books with him like Up and Down the Worry Hill, or What to Do When You Worry Too Much for anxiety. It describes worries as tomato plants - water and nurture the plants and they grow like weeds. Ignore them and they wither and die. It didn't get rid of our son's OCD rituals, but it did help him understand what was happening, gave him a vocabulary and let him know that we understood, so he didn't have to feel it was something he couldn't talk about (which only makes their anxieties worse and their imaginations run wild). In the same way you may have had to explain to your son that he's "allergic" to strep or some other medical explanation for what's going on, kids need to know what's happening to their thoughts and emotions. What To Do When Your Brain Gets Stuck is also an excellent book for OCD. You don't have to call it OCD if you don't want to. But the tools to make things less scary were a big help. It took a very scary time for all of us and made it seem like something we could manage.