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JessL

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  1. Like
    JessL got a reaction from LMama in I’m angry   
    Ugh. Big hugs. I'm so sorry, I really feel you.   I was where you are just last month, emailing and calling our doctor in tears asking if this is how our lives will be forever now. I still wake at all hours of the night with a hundred questions and thoughts etc, waiting for the night time wake ups of screaming etc.  It feels neverending. PTSD for parents with PANS/PANDAS is SO real.  The caregivers need help too.  This is a lonely wild ride.  If you're able to find a support group I know a lot of parents find just venting to people who understand therapeutic. Xxo
  2. Like
    JessL got a reaction from Pennmom in Books that really help.....   
    Thank you!  Gosh I'm waiting for a miracle for our sleep, my 5 year old pans kid has never slept more than a few hours at a time and never in her own bed,  going to hunt down that dawn huebner.
  3. Like
    JessL got a reaction from MaryAngela in I’m angry   
    Ugh. Big hugs. I'm so sorry, I really feel you.   I was where you are just last month, emailing and calling our doctor in tears asking if this is how our lives will be forever now. I still wake at all hours of the night with a hundred questions and thoughts etc, waiting for the night time wake ups of screaming etc.  It feels neverending. PTSD for parents with PANS/PANDAS is SO real.  The caregivers need help too.  This is a lonely wild ride.  If you're able to find a support group I know a lot of parents find just venting to people who understand therapeutic. Xxo
  4. Like
    JessL got a reaction from TeamTyrion in I’m angry   
    Ugh. Big hugs. I'm so sorry, I really feel you.   I was where you are just last month, emailing and calling our doctor in tears asking if this is how our lives will be forever now. I still wake at all hours of the night with a hundred questions and thoughts etc, waiting for the night time wake ups of screaming etc.  It feels neverending. PTSD for parents with PANS/PANDAS is SO real.  The caregivers need help too.  This is a lonely wild ride.  If you're able to find a support group I know a lot of parents find just venting to people who understand therapeutic. Xxo
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