SparksMom

TeamTyrion thank you so much for sharing. What a journey you’ve had. How lucky your son is that you were so committed to helping him. And your story inspires hope! Thank you.

Thank you TeamTyrion, that is a consolation. I really appreciate hearing others stories on here...it gives me hope. I worry so much about my little guy. Thanks for sharing your story. What sort of treatment did he do if you don’t mind me asking? Our doc is recommending tonsils/adnoids out first.

Our DS is 4.5 yrs old. He had a severe speech delay at 2. He is now in the normal range for expressive and reception speech but is moderately delayed in his social use of the language. Dr K is 90% certain that he is a PANDAS patient. He has many of the symptoms but I feel some of them cross over with ASD. His Cunningham Panels (done twice) were extremely elevated in the Anti Tublin, borderline in Cam Kinase and borderline Dopamine. We did some Armin Labs testing and his CD57 numbers were so low that the lab made a note that he must be suffering from a chronic long term infection. He got sick s