Leighann

Thanks for replying. I am so happy for your family and your child that homeopathy has been beneficial! It takes a lot of dedication of parents to make this work and it is amazing that it is paying off for you! I truly wish you the best. From all of my research, supplements, diet, etc. do not really work for CVID because if the body can't produce the immunoglobulins, then adding more of any type of supplement, adding or deleting things from the diet, etc. won't make a difference. I think this is why all psychotropic medications have been ineffectual as well as dietary changes and supplem

Can anyone speak to their experience with having a child who carries both a diagnosis of CVID and PANS? I am wondering (hoping?) that my 12 y/o son's PANS symptoms will improve and stay better now that we have discovered that his hypogam is actually part of CVID, but I can't find any information out there on how monthly IVIg for CVID manages PANS symptoms. I am freaked out that my needle phobic kid will have to receive monthly IVIg for the rest of his life, but if it means that he can actually get better, have some quality of life, and have periods of remission, then we have to do it. I just