Report Daughter positive for Lyme, now what? in PANS / PANDAS (Lyme included) Posted June 20, 2013 · Edited June 20, 2013 by jtp Thank you all for your thoughts,comments and support. I am going to get the book Cure Unknown, read it myself and leave it lying around the house and maybe she'll pick it up and read it too. I can not suggest it at this time because she'll just snicker at me. Last night she asked me "When am I supposed to take this probiotic?" That's a start, I guess. I may be new to lyme in our family, but I have been reading this forum for years, I am not surprised that it has hit our family. I do think there is a possiblity of lyme for my DS as well, but according to our PANS doc and Integrative doc they think lyme is unlikely because he has done so well with Azith. He has been off abx for 5 weeks now (currently being treated homeopathically) but our next appt with Dr B is end of July and at that time the rest of us are getting Igenex tested. I too have been treated for Mycoplasma, but both my husband and daughter have had myco in the past but not a current infection (or so the labs have suggested that). The fact that my daughter tested positive and we live in the woods, my husband deer hunts it's time we dish out the cash and test with IGENEX( I will ask about Advanced Labs). We all tested negative last year (I believe it was from Quest). As far as detox I am new to that as well. The Integrative Doc only suggested activated charcoal. I can hear my daughter now, "I'm not going to eat charcoal are you crazy?" but I'll try and see what happens. Does anyone have suggestions on an LLMD in Mass? I don't think I'll bother trying to get in with Dr J. there's a long wait time and my daughter will soon be 18 anyway. Thanks again everyone!