TiredMom

Quick question: my daughter just finished HDIVIG on Wednesday night. Seemed to do very well side effects wise, mostly general aches and pains. Then last night she started to get stomach pain. We knew nausea was possible. I'm giving her Zofran every 6 hours, it helps some, but not 100%. She's miserable. Seems the nausea subsides, but there is residual abdominal pain. I have calls in to our doctors, but I'm wondering if anyone had a similar reaction/advice. Thank you.

Wisdom_seeker - is there anything noteworthy you can share on IVIG Protocols? This is super timely for us, too. Dr is trying to set up HDIVIG, but spread over 4 days instead of 2. I'm a little worried, since I don't know what the precedent is for this, and I'm also worried the body might see it as a low dose IVIG, which I understand can cause problems. I'd be grateful for anything you can share. Thank you!

Here is a bit more about akinetopsia. http://psychology.wikia.com/wiki/Akinetopsia

I'm not sure if this article describes what he's experiencing. It briefly mentions strokes and epilepsy: http://brainblogger.com/2014/10/09/brain-trickery-seeing-in-slow-motion/

Two things that have helped us when in this same situation is Motrin, given at full dose for several days, and also restricting electronic screen time (computers, cell phones, tablets). The blue light that is emitted can really disturb your sleep patterns. I hope she (and you) gets some relief soon.