Just curious how many of our PANDAS kids are affected by swimming in chlorinated pools.
Last year when my son was at his worst (we didn’t yet know what was going on) we noticed a dramatic worsening of his tics as soon as he started swimming. We then didn’t try having him swim again until this weekend, 7 months after that last time (he has since been treated for his PANDAS with antibiotics). We were terrified his tics would start again, but this time, thankfully, there was no negative effect.
With camp around the corner, I do worry about him swimming every day, though. I asked the camp to have him shower both before and after he swims, just in case.
So I’m curious how many of us have PANDAS kids affected by chlorine. Please also include information about where your child is in their recovery.
