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Everything posted by simmonstrout

  1. Hello, I've read through this thread and have tried to pursue Dr. Van Mater at Duke for my daughter, who has been suffering with PANs for the past 5 years. Her doctor and I have been searching for years, trying to treat for various things, and finally landed on this diagnosis (Cunningham Panel came back positive for all but one marker). The problem is that Duke said we have to submit an application for approval. My dr submitted the materials, and they denied us admittance into their program to treat AE. My daughter was never observed, it was based on the application. So, I moved on to a D
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