Hi,
It appears both daughters have PANS/PANDAS, after seeing many conventional specialists, and several believing PANS or PANDAS is the correct diagnosis.
Some symptoms I don't see frequently in the literature, though, and I wonder if they are related.
Abdominal pain. Several local doctors say they see that a lot in PANDAS patients. Why isn't it listed as symptom? That is the most-complained about symptom for both kids (they don't complain about the OCD (both), tic (one), anorexia (one) - that's all me!). We wasted a lot of time/energy with GI tests and procedures that showed nothing.
Leg pain. Huh? Why? Is this related? Sometimes it flares at the same time as the stomach pain.
Joint hypermobility and/or Ehlers Danlos syndrome. Is this co-morbid? Loose ligaments as symptom? EDS kids more vulnerable to PANS?
I'm just wondering how many problems I have on my hands... Thanks for any help you can give!