We are waiting for all sorts of tests to completely diagnose my daughter. In the meantime, the doctor gave her Azithromyicin and Prednisone. Her OCD, anorexia, aggression, depression etc0 worsened along with the other symptoms she has.
She is being tested for Lyme and right now, I think that is a possibility as I was infected while I was pregnant with her. However, we have had a lot of tests since she was born and she has always tested negative, I am not sure why this would be causing a problem 10 years later. She has also had two really bad cases of strep in the past three years, so I am hoping that this is PANDAS not Lyme and Pandas. She also has Hashimoto's and it appears some kind of auto immune disorder.
It has been 1.5 weeks since we stopped the steroids, does anyone have any experience with their child worsening on the steroids and abx and then getting better once they flush it out of their system? If so, how long did it take? Or, was this permanent for your child?
Any experience and feedback is really helpful at this point because we are just waiting and I really need a glimmer of hope or a dose of reality.
Thanks