I have a 6 year old son.
Current diagnosis ADHD with Autistic tendencies and possible periodic fever syndrome (seeing a rheumatologist who is running tests etc)
When he was born he struggled to nurse and bottle feed, he struggled with transitioning to solid food. He was a picky eater.
Struggled with speech and still sees a speech and language therapist
He had reoccurring ear perforations and ear infections from 3- 5. he had grommets at age 5
He is sensitive to loud noise
ADHD diagnosis at age 5 in May
November 2017 he had a strep throat infection.
He became angry in school, throwing things, having huge meltdowns, the same would happen at school, visits to the principle, class room had to be evacuated. Picked skin off his fingers around his nails, he struggled with transitions and change.
From that point on he has had monthly fevers, sore throat, negative strep test. behavior before the fever is always worse with meltdowns and anger.
His most recent flare showed his Streptolysin A ob as 2150, his non flare resluts showed the strep to be 800 (normal is apparently below 200.) He also gad high C reactive protein and ESR levels. The bloods were done because he is under investigation for PFAPA.
Originally when he was sick and given antibiotics I blamed the preservatives in the antibiotics and food color for the change in his behavior. But as monthly fevers and throat pain came with negative throat swabs and no antibiotics but still his behavior deteriorated I cant blame the meds!
Everything I have read about pandas says It includes OCD and ticks. I only see mild anxiety and finger picking, plus the behavior issues. I also know that he had symptoms of sensory issues from birth.
I am completely lost. I feel like there is something else going on with my kiddo, Its not "just adhd" I see a pattern with flares and behavior.
I am posting here in hope that if there is no such thing as mild pandas, that other kids may have similar symptoms and have a diagnosis that may be more relevant.
